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5938 replies to this topic
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"Migratory flight complete."
Posted 06 March 2013 - 09:55 PM
So GD broke my phone...well perhaps not...all I know is I tried twice to post a quite witty comment if I do say so myself...and my phone slowed...I turned it off...and on...and then tried to post here....phone needs to rest...hoping it will magically reset in the morn....so I have hopped back on the good old laptop....kitty pissed because she had to scoouuuch over to make room -- yes I use on my lap!
Goodness...I have forgotten what I originally posted on GD....oh ya...something along the lines of...
Thank you for sharing your story...I too love our purple tongued friends...oh wait...I mean our long necked compadres...oh darn it...perhaps I am unclear....I love Giraffes and your hubby for supporting you....Happy 5th Addie!
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
Advanced Community Member
Posted 07 March 2013 - 12:39 PM
very sweet story, addie 
i think it takes a 'keeper' to put up with our crazy disease - luckily i think most of us have one!
tonight, it's: MACARONI AND CHEESE!!!!!
(and i am going to make 'regular' pasta for his share - your story made me all gooey inside <and not the *bad* way lolz)
ps - schar! are the cookies as good as the bread? it's a new addition at the grocery store - just the white bread. been toasting it and spreading (butter, jam, everything) on it. even ate it plain. i have seen many (ciabatta! sourdough! hoagie rolls!) varieties of it when i visited my sister's in nj and i am just going to go nuts about bread(s) next time i visit
arlene
misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010
i'm down here in the well, looking back up at the hill
well, thank heavens i fell, i must look more like myself.
everyone is so kind, everyone looks like
a long lost friend of mine.... - 'up from under' - the wallflowers
have a nice day
Celiac.com - Celiac Disease Board Moderator
Glass zebra just because he's cute
Posted 07 March 2013 - 12:42 PM
We love the Schar baguettes! You cook them for a few minutes. The only cookies I have had are the plain shortbread biscuit thingys. They are like a plain shortbread tea cookie. Not very exciting. Kinnitoos are by Kinninick and are "Oreos". Very yummy
Celiac.com - Celiac Disease Board Moderator
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy
Advanced Community Member
Posted 07 March 2013 - 01:08 PM
Kipenzi
Posted 07 March 2013 - 01:55 PM
I might have eaten about half of the angel food cake I made in about a day. I also had no regrets. It was just there, staring at me every time I went to the kitchen. And when I wasn't in the kitchen it was there, calling to me, reminding me that it was amazingly delicious and needing to be eaten. What could I do but comply?
Those Oreo things are really good. You have to be careful dunking though or they'll fall off and then you need a spoon, which I was not ready with the first time. I always come armed now though.
Tonight for dinner chicken cheddar bacon ranch sandwiches. My husband got hooked on them when he worked at a Blimpie forever ago. He doesn't want me to feel left out eating mine as a salad so he is stopping on his way home from work to pick up a loaf of Udi's bread for me. 
Not that I minded the salad at all, but it is just so super sweet of him to want me to have a sandwich.
Gluten free January 2012.
Tyramine free June 2012 - slowly getting a few foods back at a time.... scratch that
Low Histamine April 2013 - I swear this better be the last time I have to restrict my diet because giving up chocolate is the final straw
Iodine free briefly fall 2012
I like nonsense, it wakes up the brain cells. Fantasy is a necessary ingredient in living. It's a way of looking at life through the wrong end of a telescope, which is what I do, and that enables you to laugh at life's realities. -- Theodor Geisel
Glass zebra just because he's cute
Posted 07 March 2013 - 06:17 PM
Chicken Chipolte chili with black beans and corn in it.
Celiac.com - Celiac Disease Board Moderator
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy
Advanced Community Member
Posted 08 March 2013 - 08:45 AM
So I tried making a crepe out of just flax meal, tapioca starch, and water (and sweet seasonings).
It's edible..... I will get back to you guys when i manage to make it tasty.
arlene
misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010
i'm down here in the well, looking back up at the hill
well, thank heavens i fell, i must look more like myself.
everyone is so kind, everyone looks like
a long lost friend of mine.... - 'up from under' - the wallflowers
have a nice day
Celiac.com - Celiac Disease Board Moderator
Advanced Community Member
Posted 08 March 2013 - 01:12 PM
Kipenzi
Posted 08 March 2013 - 05:35 PM
Hope he's feeling better soon. I had a lot of rough times with that when my oldest was a baby and toddler so I know how stressful it is for everyone, which certainly doesn't help.
Tonight I had battered fish and fried green beans. My day did not go at all as planned and by dinner time cooking was not on the agenda.
Gluten free January 2012.
Tyramine free June 2012 - slowly getting a few foods back at a time.... scratch that
Low Histamine April 2013 - I swear this better be the last time I have to restrict my diet because giving up chocolate is the final straw
Iodine free briefly fall 2012
I like nonsense, it wakes up the brain cells. Fantasy is a necessary ingredient in living. It's a way of looking at life through the wrong end of a telescope, which is what I do, and that enables you to laugh at life's realities. -- Theodor Geisel
"Migratory flight complete."
Posted 08 March 2013 - 06:42 PM
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
Glass zebra just because he's cute
Posted 08 March 2013 - 06:51 PM
Celiac.com - Celiac Disease Board Moderator
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy
"Migratory flight complete."
Posted 08 March 2013 - 07:02 PM
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
Mushroom
Posted 08 March 2013 - 07:59 PM
Saw in the paper that Christchurch is sending a team to the world leggo robotics in Missouri this year, iffen they can raise the funds (on short rations the last couple of years 
)
Kipenzi
Posted 08 March 2013 - 08:07 PM
As I talked to my oldest daughter this week it dawned on me to ask her about her robot team. I remembered her mentioning the first time she was going was on my birthday, which was Jan. 5. She is getting more and more excited now every time she talks about it as there is about a month left. So seeing your little pic every day it finally clicked and I asked her and she is doing the First Robotics thing. She goes on and on and I'm no dummy but it is mostly all over my head. Some of it makes sense, but mostly I'm just happy to listen to her prattle on about something that excites her so much.
Gluten free January 2012.
Tyramine free June 2012 - slowly getting a few foods back at a time.... scratch that
Low Histamine April 2013 - I swear this better be the last time I have to restrict my diet because giving up chocolate is the final straw
Iodine free briefly fall 2012
I like nonsense, it wakes up the brain cells. Fantasy is a necessary ingredient in living. It's a way of looking at life through the wrong end of a telescope, which is what I do, and that enables you to laugh at life's realities. -- Theodor Geisel
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