Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

This Is Disgusting.....
0

38 posts in this topic

You are an inspiration to those of us that know this too is our destiny.....

Please keep us informed of any do's and DONT"S that only come with experience! :D

Hang in there... less that 48 hours to go!!!!

Sue

0

Share this post


Link to post
Share on other sites


Ads by Google:

Oh Karen I can relate, imagine how happy I was when I went for my bloods for celiac, I also had to get the stuff for giardia tests etc., the girl looks at me with a straight face, lol, and tells me she needs 4 stool samples one from every time I went, which I thought to myself, Oh no problem I am always going! here is the catch, the stool cannot touch the water, oh I said, how can I arrange this now, she tells me to line the toilet with either saran or aluminum foil :huh: and go on that, I thought oh sure, lol. Picture this you are now half asleep running to your kitchen to pull foil from the draw, to line the toilet, only to sit on the foil (lined it to tight) for the foil to break and the stool, well it hits the water :o O I can relate, took me forever to finish the test! Hang in there ;)

0

Share this post


Link to post
Share on other sites

I can remember getting samples for that too. I resorted to disposable aluminum pie plates that I would hold while I did the deed!!! It worked!

Karen

0

Share this post


Link to post
Share on other sites
Okay, I had my follow-up with my GI specialist down at St. Mike's in Toronto. He is sending me to an immunologist to see if he can figure me out..... He did mention something about maybe an enzyme syndrome (I forgot the name of it) that he said is quite rare, but wanted to look into it further....... He did a few more blood tests. But here is the worst part: He wants to measure the fat content of my bowel movements for 48 hours (normally, it is 72 hours but he said since I go so often, 48 hours will suffice for me.....). I have to basically poop into a paint can (yes, you read correctly, a paint can.....) I went down to the lab in the hospital and they actually give you a paint can to collect all your bowel movements!!! Actually, they gave me two, due to the number of bowel movements I have in the span of one day...... All I have to say is: THIS IS THE MOST VILE THING I HAVE EVER HAD TO DO!!!! It is so unfair to have to put my family through this! I have basically told them that the downstairs bathroom is OFF LIMITS for two days, and Terry and the four kids have to put up with sharing one bathroom for the next two days!!!! I will be sooooo glad when this is over!! Add on top of that the fact that my back is killing me and you can just imagine (sorry for the visual, lol!) me trying to get down onto a paint can on the floor without toppling over!!!! I am having nightmares about falling over and knocking the can over!!!!

Wish me luck that I will get through the next two days without losing my sanity!!!

Hugs,

Karen

I had to collect my poo also, but just one sample. I totally feel your pain. It is the most degrating event ever!!

The lab DID give me a little bucket that attached to the inside of the toilet to collect the stuffs though. You might try asking for one of those.

Funny thing is, after they gave me all of my "equipment" for the sample collection, they stuck it in this hazardous waste plastic bag :P and I had to walk out of their office with it, down the hall, ride in the elevator (with people staring at me) then walk across a huge parking lot!!! THEN had to bring the poo back in that bag the next day doing the trip all over again!! I sure got some wierdo looks. :lol:

What we won't do for a solid diagnosis :D

-Jessica

0

Share this post


Link to post
Share on other sites

Okay, I am getting the hang of this even though it is DISGUSTING!!!

I only wish I had kept the little toddler cushioned potty seat (you know the ones that you put over your own toilet so their little bums won't fall through the big hole??). After my twin boys were trained, I threw it out - now I could sure use it! The bones in my behind are getting sore from sitting right on the rim of the paint can!!!! Sorry for the visual, guys...........

This too shall pass.............

Karen

0

Share this post


Link to post
Share on other sites




You guys crack me up!! I remember when they were still trying to figure out what was wrong with me. I had to take a stool sample to the hospital lab. She asked me when I "obtained" it and when I told her she said "Oh, we can't use that; it's been too long." Then I said, "Well, I can give you another one right now." She said, "Can you go at will or what?" I said, "sure can!" Needless to say, they still got their specimen! :)

0

Share this post


Link to post
Share on other sites

Way to show 'em Robin!!!!

Hey, some people can burp at will, well, we Celiacs can............ you know........

;)

Karen

0

Share this post


Link to post
Share on other sites

Ha ha Robin! On Demand ! :)

0

Share this post


Link to post
Share on other sites

I had to do it for a five yr old. It was more trouble than holding him still for a barium enema!

0

Share this post


Link to post
Share on other sites

wow Donna--that would be a hard job !! :unsure:

0

Share this post


Link to post
Share on other sites

No physician should reaquire his/her patient to undergo any process or procedure that he/she has not experienced personally. I mean, hey -- how many of these M.D.s ever pooped into a paint can, much less gave chemo or radiation a whirl, or get regular colonoscopies, etc., themselves?!

westiepaws

0

Share this post


Link to post
Share on other sites

Bingo - I'd love to see both my GI's put in Karen's paint can!

0

Share this post


Link to post
Share on other sites

Still ... I think it's easier doing it myself than to try and get a five year old to do it :o You deserve a medal for that one Donna! :D

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,131
    • Total Posts
      919,522
  • Topics

  • Posts

    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
    • I'm so confused about my daughter's diagnosis.  I hope somebody can help.   My 4 year old daughter has a swollen belly, stomachaches, and lots of gas.  She does not have diarrhea or delayed growth.  Because of her symptoms and because it runs in the family (2nd degree relatives) I had her tested for celiac.   She was weak positive for TTG (IGA)  and strong positive for DGP (IGG)   TTG (IGA)  8   (0-3 neg, 4-10 weak positive, greater than 10 positive) TTG (IGG)  2   EMA: Negative DGP (IGG)  47  (0-19 negative, 20-30 weak positive, greater than 30 positive) Last week, she had her endoscopy.  The doctor found inflammation and little holes or bumps on her duodenum.  He started her on prevacid and said based on his observations, he was suspicious of celiac, but he would not be able to confirm until the biopsy came back. The biopsy showed no signs of celiac disease.  He said that he could not diagnose her with celiac without the biopsy report saying there was celiac damage.  He said he would categorize her as a potential celiac, keep her on a gluten diet and redo the endoscopy in a year or two to check for damage again.  My questions are: 1.)  If it is not celiac, something is causing her duodenum to be inflamed and have little holes or bumps on it, right?  Could it be a wheat allergy or gluten sensitivity?  What else could it be and how do they test for it?  Given her elevated celiac antibodies, how likely is it to be anything besides celiac causing the damage?  2.)  How likely are false positives for TTG and DGP?  I've heard they are pretty sensitive and specific.  Does getting two positives make false positives less likely? 3.) What have you done in this situation?  I want her to have an official diagnosis to make things easier at school and to feel confident that we are eliminating gluten permanently for a worthy reason, etc.  But, I'm having a hard time imagining keeping her on gluten and waiting for her to get more sick and have more intestinal damage just for a diagnosis.     Thanks in advance for your help.  I'm so overwhelmed and confused.  I hope someone has some insight and experience that will help clear things up for me.            
    • Yeah I actually live in Japan which is pretty similar, because Coeliac disease is rare over here so is the understanding and accommodating it. When I mention Gluten to some restaurants they think I am talking in English and they are unfamiliar with the word in Japanese.    So it seems I can write off my chances of getting some authentic Chinese gluten-free food at the airport, but at least there is a Thai restaurant in T3 so I won't starve. Its called  'Phrik Thai' for future reference. http://en-shopping.bcia.com.cn/store/739.html  
    • While in Boston I found Cheer's  Bloody Mary mix that says gluten-free on the bottle and have had no issues and  tastes pretty good 
    • I always assumed plain coffee was, but I have seen some controversy online about this. I know someone who is gluten free and only buys whole beans and grinds them herself because she doesn't trust how the grounds are processed.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,167
    • Most Online
      1,763

    Newest Member
    Cristina17
    Joined