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This Is Disgusting.....


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37 replies to this topic

#16 celiac3270

 
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Posted 27 June 2005 - 09:32 AM

lol...there's the sense of humor...both very nice sounding colors :lol:

By the way, the going downstairs in a bag had me rolling! Now I can definitely see myself doing that!!!! Celiacs are quite familiar with the feeling of "Gotta go NOW!"


Sorry, what do you mean by going downstairs in a bag? :huh:
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#17 Canadian Karen

 
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Posted 27 June 2005 - 09:40 AM

The "BM in a Bag" story is JenVan's experience she was relating to me earlier in the thread. It made me feel better knowing I am not the only one these things happen to!!!

Oh, by the way, with regard to someone mentioning "Well, at least you don't have to open the can"....... that's the problem, I do, EVERY TIME I HAVE TO GO!! I am really dreading having to go each time now.......

Oh, here's another shade: Shanghai Specimen

:P :D

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#18 celiac3270

 
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Posted 27 June 2005 - 09:44 AM

Oh, of course. Downstairs...it took me awhile to pick up on that, lol. You could come out with a bowel line.
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#19 Canadian Karen

 
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Posted 27 June 2005 - 10:28 AM

Hey, who knows? I could discover/invent this fall's colour trends....... lol!

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#20 Guest_Viola_*

 
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Posted 27 June 2005 - 11:45 AM

:lol: Just as long as you don't do any 'scratch & sniff? paints.
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#21 Guest_imsohungry_*

 
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Posted 27 June 2005 - 12:28 PM

HA! I'm just LMAO here at work. You all have my "warped" kind of sense of humor... :lol:

Thanks for the laugh. Lord bless us all as we "aim" at our jugs and cans! :P

-Jules ;)
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#22 Canadian Karen

 
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Posted 27 June 2005 - 12:46 PM

Yep, that's us! We're just a wild and crazy bunch!!!! ;)

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#23 celiac3270

 
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Posted 27 June 2005 - 03:29 PM

How is it going so far? Or are you holding it?
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#24 Canadian Karen

 
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Posted 27 June 2005 - 03:40 PM

I only wish I could hold it! Each time is getting worse and worse. What I am doing is spraying all over the bathroom before I open the can so it is not as overpowering...... This is quite brutal!

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#25 Guest_BERNESES_*

 
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Posted 27 June 2005 - 04:05 PM

Hang in there Karen- remember I'm the one who pooped on her own couch! And while you're at it, check this website out:

www.createfarts.com

My personal favorite is Shanghai Specimen- it would be a lovely chocolate brown. :P
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#26 SueC

 
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Posted 27 June 2005 - 04:06 PM

You are an inspiration to those of us that know this too is our destiny.....
Please keep us informed of any do's and DONT"S that only come with experience! :D
Hang in there... less that 48 hours to go!!!!

Sue
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Sue

Diagnosed April 2005 via bloodwork and endoscopy

4 year old daughter diagnosed March 2006 via bloodwork and endoscopy
She was completely asymptomatic

4 year old also diagnosed with Graves disease Sept 2006

#27 Guest_vetnurse_*

 
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Posted 27 June 2005 - 04:24 PM

Oh Karen I can relate, imagine how happy I was when I went for my bloods for celiac, I also had to get the stuff for giardia tests etc., the girl looks at me with a straight face, lol, and tells me she needs 4 stool samples one from every time I went, which I thought to myself, Oh no problem I am always going! here is the catch, the stool cannot touch the water, oh I said, how can I arrange this now, she tells me to line the toilet with either saran or aluminum foil :huh: and go on that, I thought oh sure, lol. Picture this you are now half asleep running to your kitchen to pull foil from the draw, to line the toilet, only to sit on the foil (lined it to tight) for the foil to break and the stool, well it hits the water :o O I can relate, took me forever to finish the test! Hang in there ;)
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#28 Canadian Karen

 
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Posted 27 June 2005 - 05:02 PM

I can remember getting samples for that too. I resorted to disposable aluminum pie plates that I would hold while I did the deed!!! It worked!

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#29 angel_jd1

 
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Posted 27 June 2005 - 06:27 PM

Okay, I had my follow-up with my GI specialist down at St. Mike's in Toronto. He is sending me to an immunologist to see if he can figure me out..... He did mention something about maybe an enzyme syndrome (I forgot the name of it) that he said is quite rare, but wanted to look into it further....... He did a few more blood tests. But here is the worst part: He wants to measure the fat content of my bowel movements for 48 hours (normally, it is 72 hours but he said since I go so often, 48 hours will suffice for me.....). I have to basically poop into a paint can (yes, you read correctly, a paint can.....) I went down to the lab in the hospital and they actually give you a paint can to collect all your bowel movements!!! Actually, they gave me two, due to the number of bowel movements I have in the span of one day...... All I have to say is: THIS IS THE MOST VILE THING I HAVE EVER HAD TO DO!!!! It is so unfair to have to put my family through this! I have basically told them that the downstairs bathroom is OFF LIMITS for two days, and Terry and the four kids have to put up with sharing one bathroom for the next two days!!!! I will be sooooo glad when this is over!! Add on top of that the fact that my back is killing me and you can just imagine (sorry for the visual, lol!) me trying to get down onto a paint can on the floor without toppling over!!!! I am having nightmares about falling over and knocking the can over!!!!

Wish me luck that I will get through the next two days without losing my sanity!!!

Hugs,
Karen

I had to collect my poo also, but just one sample. I totally feel your pain. It is the most degrating event ever!!
The lab DID give me a little bucket that attached to the inside of the toilet to collect the stuffs though. You might try asking for one of those.

Funny thing is, after they gave me all of my "equipment" for the sample collection, they stuck it in this hazardous waste plastic bag :P and I had to walk out of their office with it, down the hall, ride in the elevator (with people staring at me) then walk across a huge parking lot!!! THEN had to bring the poo back in that bag the next day doing the trip all over again!! I sure got some wierdo looks. :lol:

What we won't do for a solid diagnosis :D

-Jessica
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Jessica
Gluten Free since 12-31-2002!!
Kansas

#30 Canadian Karen

 
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Posted 27 June 2005 - 06:37 PM

Okay, I am getting the hang of this even though it is DISGUSTING!!!

I only wish I had kept the little toddler cushioned potty seat (you know the ones that you put over your own toilet so their little bums won't fall through the big hole??). After my twin boys were trained, I threw it out - now I could sure use it! The bones in my behind are getting sore from sitting right on the rim of the paint can!!!! Sorry for the visual, guys...........

This too shall pass.............

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown




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