Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Lectin Lock - Product Review


mushroom

Recommended Posts

mushroom Proficient

Those of you who have been around for more than a few months will know that for some time now I have been yammering on about lectins, and my suspicion that they are at the core of my other food intolerances. This 'gut' :blink: feeling was reinforced over the summer when I consulted Krispin Sullivan, a nutritionist, and by a cardiologist after I went into atrial fibrillation from one of my food episodes. I had been reading about this product called Lectin Lock and Krispin thought it would be good to try it. It is expensive, but a-fib is something I don't want to mess around with.

Basically, the problem with lectins (if you have a problem with them, and you can have a problem with one, or two, or several :o ) is that (to give a simplified explanation) they are a key, which key is attracted to certain kinds of sugar on the surface of cells in your body, let's call them keyholes. If you happen to have the right kind of keyhole that the lectin fits, it locks on to that cell and causes havoc in the body. The idea of Lectin Lock, is to provide in the gut the sugars that the lectins are attracted to and encourage them to lock on to those instead of the sugars on the cellular surface of the body. The gut can then process them through the intestine as waste.

Now obviously, I don't go around eating the foods to which I am intolerant when I can avoid it. There was one occasion (our book club meeting) where the hostess had gone to the trouble of making everything gluten free just for me, and I thought I should eat one of her mini-quiches. Upon biting into it I found tomato, and instead of panicking and making what could have been a scene, I ate it and said to self, 'Time for Lectin Lock.' I took two caps, and had no problems.

Yesterday, we had our Probus end-of-year Christmas lunch, and there three of we gluten-freers (in a group of 80 - that skews the stats a bit, doesn't it?) We all sat together at their request and they served us first with special meals which was very kind of them. Two problems - I think there might have been some lemon juice in the mustard sauce on the ham, and there was mandarin orange in the fruit salad. I ate everything, (including a tiny piece of roast potato) and waited to see what happened. Well, the familiar bloating, stinky gas and other problems started to rev up about 6 hours later, so it was time to test Lectin Lock again. Within an hour, the symptoms were gone, no a-fib, had a great night's sleep.

This product is for real in my book. It certainly passed both tests, the preventive - before symptoms got going, and the cure - once they started. It was amazing how the gas just.... went away :unsure:

I don't care what it costs, it's worth its weight in gold to me.:D

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Wow Shroom--that's very interesting and fantastic that it works for you! Is it available in stores?

Link to comment
Share on other sites
mushroom Proficient

No, you have to order it online. Just google it :)

Link to comment
Share on other sites
cassP Contributor

i actually have a lectin blocker pill from a doctor that i will just refrain from naming. it has 2 of your ingredients (N-Acetyl Glucosamine, and Fucus Bladderwrack) i feel better when i take it- but it can get pricey, so i dont take it regularly.

yours however also has the D-Mannose (which my personal favorite doc has said gluten has an affinity for and may bind to it).

btw- i overdid my last cheats on corn during thanksgiving- and I AM paying for it BIG TIME... no more corn for me :(

Link to comment
Share on other sites
  • 2 weeks later...
Lisa79 Enthusiast

Thats great news, I will check google now :D

I have been seeing a homeopath for about 7 months and my lectin intolerance has improved, I still try avoid everything where I can but If I slip up I am not suffering as much as I used to.

Link to comment
Share on other sites
mushroom Proficient

Update: I did have some problems (because of the delay) with hives after a day or two, not bad, but no GI problems from the citrus and potatoes

BUT THEN: :ph34r: Hub wanted potato salad (yearning for it and potato doesn't bother him) so I decided to make some for him. After I had put the dressing on the warm potatoes I just automatically did what I normally do, the cook by taste test :P , and actually did it a couple of times before I realized what I was doing. GAAAHHH. Rushed out to the car (because that's where the Lectin Lock lives - normally need to use it when I'm away from home) and took a couple of caps. Hey!, no problemo :D This stuff is for real.

Link to comment
Share on other sites
Gutsy Girl Rookie

Through keeping a food journal to the T, I realized I was reacting with brain fog and zombie-ness and bloating, among other things...to POTATOES. Of all things, I would have thought potatoes were pretty safe, bland, etc.

A few weeks ago, I cut white potatoes and all white potato products out of my diet entirely, and I'm happy because I feel clearer-headed now than I have for at least two years. Still not great and I sure do realize it when I mess up and get potato cc.

Then I had a friend send me this link about lectins: Open Original Shared Link

I read it and had an ah-HA! moment. As I'm one of those Celiacs who isn't healing (I've been gluten-free since 7/28/09 with a few disasterous cc incidents that landed me in the hospital), I know there's a lot more behind my problems than just "simple Celiac's" where you go GFD and feel great in a year or so.

I'm MISSING SOMETHING BIG.

But you guys seem to be in the know and some of you are veterans here, so here's my shout out. :)

There are so many directions I could go in. I'm ADHD and feel overwhelmed at the prospect of changing my diet YET AGAIN. I'm seriously considering an elimination diet, but HOW to do that is the question. Do I eliminate lectins? Or oxalates? Or salicylates (sp?) or...........I'm soooooo lost. I mean....I have to eat SOMETHING, right? :?

Please...ask me questions, guide me as you can with what you know - I am open to hearing suggestions and greatly appreciate any help ya'll are willing to give! :D In return, I'm glad to help especially along the gluten ataxia lines where I tend to know more. And I have a background in Occupational Therapy Assistant so I'd be glad to give practical suggestions about how to adapt and problem solve daily life sorts of things. :)

Thanks, ya'll!!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gutsy Girl Rookie

Is Rachel-24 still around?

She sure had some great ideas. I'm divulging an incredibly long thread very slowly (the "OMG...I think I'm on to something" one). It's like a billion pages long. LOL. :D

Link to comment
Share on other sites
mushroom Proficient

No, Rachel-24 no longer posts on this forum.

I have to go make Christmas cake (the British kind - fruit has been soaking in brandy) but will get back to you later.

Link to comment
Share on other sites
Lisa79 Enthusiast

No, Rachel-24 no longer posts on this forum.

I have to go make Christmas cake (the British kind - fruit has been soaking in brandy) but will get back to you later.

I also look forward to your reply, Lectins are still of great interest to me too :D

Link to comment
Share on other sites
mushroom Proficient

Just got back on the board today and posted the following response to another poster on some of my experience with lectins, obviously not the same as yours, but it may be of interest. Fire back with any questions you have. You will find it at

Link to comment
Share on other sites
  • 3 months later...
StephanieGF Rookie

I was just wondering if anyone else has tried this product? I am looking for something to help with Corn CC when eating out...

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,095
    • Most Online (within 30 mins)
      7,748

    Marazoo
    Newest Member
    Marazoo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...