I tried the Iodine patch test last night. (I have been having hive-like rashes for 6 months) I put some 2% iodine (the strongest I could find at a drug store) on a piece of gauze and taped a bandage over it near my left elbow. I read that you should leave it on for 48 hours, but after about an hour and a half it started burning very badly. I took it off and the next day it still burns when I touch it. I have not noticed any blisters, but I can't tell if it is red or not because my skin is stained.
Can anyone make and sense out of this?
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7 replies to this topic
#1
jessicalw28
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Posted 06 December 2010 - 10:46 AM
Jessica
"One person can make a difference, and everyone should try."- JFK
Self diagnosed gluten intolerant- December 2010
Lactose intolerant- since childhood
"One person can make a difference, and everyone should try."- JFK
Self diagnosed gluten intolerant- December 2010
Lactose intolerant- since childhood
#2
ravenwoodglass
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Posted 06 December 2010 - 12:33 PM
I'm no doctor but that sounds like a positive reaction to me.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#3
cassP
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Posted 07 December 2010 - 12:22 AM
I tried the Iodine patch test last night. (I have been having hive-like rashes for 6 months) I put some 2% iodine (the strongest I could find at a drug store) on a piece of gauze and taped a bandage over it near my left elbow. I read that you should leave it on for 48 hours, but after about an hour and a half it started burning very badly. I took it off and the next day it still burns when I touch it. I have not noticed any blisters, but I can't tell if it is red or not because my skin is stained.
Can anyone make and sense out of this?
i tried this test too- i placed the bandaids with iodine ( 2 of them) next to my suspected DH patch. i only lasted an hour- because of the burn. the skin was stained for about a week. one part of my skin was actually BURNED & peeling & raw. i was afraid cause i only did an hour that it wouldnt work- but i did get a few more DH blisters a day later.
im not sure tho- if everyone that feels a burn is a positive for DH, or only a positive for an iodine sensitivity.?? i really just started learning about this.
1986- Elevated Speckled ANA/no Lupus.negative Sjorgens
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
8/2010- DH
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
8/2010- DH
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(
#4
ChemistMama
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Posted 08 December 2010 - 11:20 AM
i tried this test too- i placed the bandaids with iodine ( 2 of them) next to my suspected DH patch. i only lasted an hour- because of the burn. the skin was stained for about a week. one part of my skin was actually BURNED & peeling & raw. i was afraid cause i only did an hour that it wouldnt work- but i did get a few more DH blisters a day later.
im not sure tho- if everyone that feels a burn is a positive for DH, or only a positive for an iodine sensitivity.?? i really just started learning about this.
According to this:http://www.wisegeek.com/what-are-the-effects-of-an-iodine-allergy.htm
very few people have iodine allergies/sensitivities, and these usually come about when you have to ingest iodine. Both of your responses to iodine sound like DH to me for sure. In a normal person, the iodine would stain their skin and then be absorbed back into their skin over a few days.
If you've both just been diagnosed, make sure your go gluten-free and steer clear of iodine-containing foods (vitamins, iodized salt, shellfish, seaweed) and NSAIDS (like ibuprofen and naproxen) for a few months, these are known to aggravate your DH. I"ve been gluten-free over 2 years and can eat both with no problem now.
#5
jessicalw28
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Posted 08 December 2010 - 02:45 PM
I have donated blood a few times and have not ever noticed that the iodine they use harmed my skin, but that was a year ago or more. I did not have as many celiac symptoms then. Maybe it has to do with the recent "flare up" of symptoms. I have not suspected celiac as being my problem until a few months ago.
Jessica
"One person can make a difference, and everyone should try."- JFK
Self diagnosed gluten intolerant- December 2010
Lactose intolerant- since childhood
"One person can make a difference, and everyone should try."- JFK
Self diagnosed gluten intolerant- December 2010
Lactose intolerant- since childhood
#6
cassP
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Posted 08 December 2010 - 06:22 PM
chemistmama- hey 
ya, it is impossible for me to give up seafood or to survive without ibuprofen... the DH actually surfaced in the first month that i went gluten free- it stuck around for about 4 months.. it's still not quite gone- but fading and not itching anymore. i used some topical ionized silver ointment which calmed it down A LOT. im glad it worked, cause there's just no way i could give up seafood (on top of all my other dietary restrictions).
ya, it is impossible for me to give up seafood or to survive without ibuprofen... the DH actually surfaced in the first month that i went gluten free- it stuck around for about 4 months.. it's still not quite gone- but fading and not itching anymore. i used some topical ionized silver ointment which calmed it down A LOT. im glad it worked, cause there's just no way i could give up seafood (on top of all my other dietary restrictions).
1986- Elevated Speckled ANA/no Lupus.negative Sjorgens
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
8/2010- DH
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
8/2010- DH
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(
#7
jessicalw28
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Posted 11 December 2010 - 07:02 AM
It's been about a week since I did the test and the stain is still there. Not burning anymore, but the skin feels kind of dry and scaly where the stain is. Hopefully it will go away soon 
Jessica
"One person can make a difference, and everyone should try."- JFK
Self diagnosed gluten intolerant- December 2010
Lactose intolerant- since childhood
"One person can make a difference, and everyone should try."- JFK
Self diagnosed gluten intolerant- December 2010
Lactose intolerant- since childhood
#8
jessicalw28
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Posted 14 December 2010 - 07:14 PM
The stained skin eventually started peeling off and left reddened shiny skin underneath. No blisters, but it is a bit itchy.
Jessica
"One person can make a difference, and everyone should try."- JFK
Self diagnosed gluten intolerant- December 2010
Lactose intolerant- since childhood
"One person can make a difference, and everyone should try."- JFK
Self diagnosed gluten intolerant- December 2010
Lactose intolerant- since childhood
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