22 replies to this topic

[Carriefaith]

Before I got really sick with celiac, I was a very active person with tons of energy. Back in the day I used to be in track and field, hockey, ringette, rugby, soccer, and I used to play a lot of other sports just for fun. Now after being diagnosed, I just play soccer and I'm not the same as I used to be... Last year was a lot tougher for me since I had just been diagnosed. This year I feel tons better than last year, which is great! But I'm still not the same as I used to be. I don't believe I am "out of shape" because I play soccer 2x a week and do other activities such as running, walking, vollyball, badminton, ect. When I'm playing soccer I get tired very quickly and sometimes feel weak. It's very frustrating! Has anyone else noticed a decline in athletic ability after celiac. Does anyone have any suggestions that may help? Maybe you've experienced this and got over it? *Just to add, I eat lots of veggies, fruits, rice, gluten-free grains, and fish. I do eat beef, chicken and turkey too, but I eat way more fish than any other meats.

[shimma]

I find my muscles ache even during really simple activities - like walking. I don't have nearly the energy I used to, but I keep on plugging because I don't see much of an alternative. Sitting on the couch certainly isn't going to help!

I may be in a different situation than you though - still have a lot of symptoms and haven't put on any weight since I lost it before my diagnosis. My body is definitely not as healthy as it could be.

[jenvan]

absolutely carrie. aside from the fibromyalgia i have, i have also noticed that it seems to take my muscles longer to recover. ie. if i was lifting weights i will be more sore for longer than previously when more healthy. i definitely don't have the endurance i did either. i ran mini marathon successfully in '01, and was hoping to train for a smaller size triathalon or for a full marathon. now the thought is exhausting. i hope one day...

i eat very healthy as well. for those of us who have been sick for along time, i can't help but think it just takes a long long time to recover. and sadly, maybe some of us may not be exactly what we were before ? can't think of any ideas for you if you are eating high energy foods/water before a work and replenishing after...

[cmom]

I have also noticed that the last four months or so, I am very stiff and sore when I get out of bed in the morning. Don't know why, since I am just as active as I was before. No change in level of activity. Maybe it's my age!

[Carriefaith]

Thanks guys for your help I just needed to know if this was normal or if other people were experiencing similar problems. I guess we need longer to feel 100% better. I'm so impatient though, I just get frustrated with myself when I get tired so easily.

[rmmadden]

Carrie,

I've noticed a drop-off in my athletic ability. Before I got sick with celiac disease I was playing men's fastpitch baseball. I decided to take this year off as I didn't think I had the energy to play 9-inning games. I don't really get tired but, I've noticed that if I do too much I get light headed a bit and have to sit down.

I do walk a lot and bicycle some as well. I have been playing co-ed softball 1x per week and so far I've faired pretty well. I think I'm still recovering and slowly getting better (Knock-on-wood) so I hope to see my energy level pick-up some and start doing more physical activity.

Cleveland Bob

[tarnalberry]

I've done much better at the active things I do recently than I used to. I don't know if it's all the diet, or what, but I've done better.

[KaitiUSA]

When I got mono (that triggered celiac) that is when I had trouble with endurance and I never had that problem before.
I had problems until I went gluten free...then about 8-10 months being gluten free everything was fine again

[watkinson]

Hi Carrie,
I was wondering if your taking any vitamins? A B-complex vitamin helps with energy. I take one that I get from Trader Joe's that you put under your tingue. I take it every morning.

Also, are you getting enough sleep? Good sleep, the deep REM kind of sleep. I know with me when my muscles are extremely sore and tight I don't sleep deeply.


Hope you feel better soon,

Wendy

[Carriefaith]

Cleveland Bob - Glad to hear that you are slowly getting better My energy levels have improved a lot since last year, but they still aren't 100%. I think I will need more time.

Tiffany - Yea, I was wondering if it was the diet cauing a lack of energy.

Kaiti - Good to hear that your endurance got better. There is hope for us

Wendy - I take calcium and vitamin D. But if a B-complex will help, I'll give it a try! I guess we probably miss out on some of the B vitamins since they are a lot of them in gluten foods. I try to get lots of sleep 7-9 hours most nights

[Nadtorious]

It took me about a year and a half to really feel about 75% and now I'm at about 95%. Anemia is a big problem facing celiacs, especially those recently diagnosed. I also noticed that I was short of breath all the time, bruised easily, and got tired way quick. Not to mention anxiety and everything else (i'm an avid mountain biker, and this was tough for me to overcome). I don't take any supplements, but I do eat a lot of red meat and fish (esp. salmon) and fruits and veggies and natural fats. I'm no longer anemic, and can keep up with the junior kids that I coach Good luck with everthing-it's always nice to see fellow celiac athletes!
Nadia

[broncobux]

I notice I start to "suck wind" pretty quick now. I usually have to wait a few minutes or fight through it.

My second wind is actually AMAZING....I can play hoops for like an hour, but after the first 15 minutes I feel so winded, but Like I said, it goes away....

[Carriefaith]

Thanks for the info Nadia, I guess it not abnormal to still be feeling less than 100% at this point in time on the diet.

I notice I start to "suck wind" pretty quick now. I usually have to wait a few minutes or fight through it. My second wind is actually AMAZING....I can play hoops for like an hour, but after the first 15 minutes I feel so winded, but Like I said, it goes away....

broncobux, I am kinda like that too. The first 10-15 minutes of running or playing soccer is sometimes harder then the rest. But maybe it's because I'm not warmed up yet

[Carriefaith]

I've found that I have to force myself to do stuff, it does take longer to recover, but I'm usually glad I did.

I agree, I forced myself to keep in shape and I was glad I did or I think I'd be worse off.