Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Finding A Private Dr
0

5 posts in this topic

Hey guys, hope you're all well and excited for Christmas!

I'm now 3 months in to my gluten free diet. I'm still suffering with brain fog, terrible fatigue, sore eyes. These are the issues that bother me most, as they're 24/7 and have been for over 15 years and it's really driving me nuts.

My Dr sucks, he was reluctant to do any tests. I'm not sure what I was supposed to do, to ensure he understood how desperate I was, short of collapsing on his floor.

The only tests he wants to do was Iron and Thyroid. Though the Thyroid tests were merely TSH, which come out at 0.7. I've since learned that, there are various reasons why TSH can be low, and still have low Free T3 and T4. But he said the clinic won't test for the others, as my TSH is normal.

Well, I have this nagging feeling, that I have a thyroid issue. I have nearly every symptom and the way I feel, just isn't damn normal and I'm sick and tired of dealing with it. I want to be well and I'm not going to give in, because my Dr is a tit.

So, I want to find a reliable, private Dr, in the London area of the UK. But I have no idea where to start.

What I really want, is not to even talk to anybody, but have a full blood test, that covers everything and will tell me what I need to know and give me some direction.

Any advice, links, suggestions, would be awesome.

Thanks a lot guys :)

0

Share this post


Link to post
Share on other sites


Ads by Google:

I can relate to docs who will not listen to you! I am sorry you are having so much trouble. I ended up ordering my own blood tests though an online company. They send you the lab order, then you go to the lab they have contracted with to have your blood drawn. I used MyMedLab.com. You have to pay out-of-pocket, but it was worth it to me just to figure out what was wrong. Not sure if you have the same things available in the UK, but maybe worth a shot to google and find out?

Another way to find good docs is to ask the pharmacist at a compounding pharmacy. Very often they work with naturopaths, or alternative doctors who are used to treating the whole body, and not just treating symptoms. I have found that these types of docs are more thorough then traditional MD's.

That said, you don't mention what types of doc you are currently seeing. Is he an internist? Endocrinologist? GI? Perhaps an endocrinologist would order a more comprehensive thyroid panel, and a GI doc would be able to do a complete screening for celiac.

You can also check the websites of alternative physician trade organizations in the UK. Very often they have patient resource links with information on local doctors.

Good luck to you!

0

Share this post


Link to post
Share on other sites

I'm sorry you feel so lousy. I'm in the US so I can't help you there. Just want to give you some encouragement to stick with it, I hope you get to feeling a lot better.

0

Share this post


Link to post
Share on other sites

Thanks guys :)

My current doc is just a GP (general practitioner). He's not mad any referrals and is extremely unlikely to, until I get to the bottom of this myself. Or at least have some good leads.

I was talking to a friend last night, who has lupus. She's convinced I do too. Largely because of the massive sensitivity to fluorescent lights I have. As soon as I'm under them, I begin to feel uncomfortable, my eyes get sore and eventually I feel weak and dizzy. My skin gets bothered too and just generally feel disorientated. In sunlight, which I enjoy, I just get wiped out pretty quickly but don't get sore eyes.

I've emailed a few local rheumatologists, who I'm hoping will be able to look in to my sickness a little deeper. I also found an article about auto immune disorders, which I found really helpful, you can check it out here: understanding autoimmune diseases. It explained a lot about what's actually going on inside, why we're sick etc.

I think between a rheumatologist and a full blood scan, I should be able to make some strides forward.

0

Share this post


Link to post
Share on other sites

Don't know how the process works in the UK, RealMaverick. I used the system in 1961 but that was way too long ago. Have been used to the U.S. system, and am just now getting readjusted to the New Zealand system. Modern life is so complex :P Here we have the option of the public system, or "going private", which I tend to do a lot of the time because waiting times can be so long for referrals to public. I am lucky to have a GP who thinks I know what I am talking about and is willing to make a referral for me to any of the specialists I want. You may not be so lucky on this count. I often don't accept them because I have full private insurance in the U.S. and go there every summer, so just prefer to wait for what will be covered by my insurance. But I remember years ago in New Zealand under our system that a GP wanted to remove a mole I was concerned about. I was sufficiently concerned about it that I wanted to have someone who really 'knew' what he was doing remove it, i.e., a surgeon. I was told I could not see a surgeon without a referral, which I was not going to get :rolleyes: So I called the surgeon of my choice, explained the situation, and was given an appointment the next week as a private patient. So there are ways around things, I guess if you are willing to foot the bill. If it is important enough to you, it is probably important enough to pay the money. I would make personal contact with the doctor you want to see.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,688
    • Total Posts
      921,756
  • Topics

  • Posts

    • Do you mean something like a protein powder you could mix up?  A lot of them in the US seem to be gluten free.  Maybe just go to your local store and read all the labels?
    • Yeah I ended up allergic to corn, olives, sesame, whey, and peanuts and intolerant to dairy, soy, yeast, enzyme issues with breaking down meats, and egg yolks, along with extreme bloat with any kind of carbs/sugars in moderate amounts. And very adverse reactions to certain artificial sweeteners. So your not alone in all the other issues cropping up, it happens as our bodies adjust.  I eat a bunch of stir frys with veggies, egg whites, plenty of  avocados, and toasted and raw forms of almonds, coconut, cashews, walnuts, hemp seeds, pumpkin seeds, flax seeds, sancha inchi seeds, chia seeds, and sunflower seeds in all forms including making them into butters, spreads, and incorporating them into sauces.   Most meals are forms of soups, omelettes, and stir frys. I do the seeds and nuts on rotation same with my veggies and snack on fruits in small amounts along with some homemade baked goods I make for markets. I do suggest a rotation of foods, my dietician said I need to rotate my foods to prevent more issues, making sure I am off one one for at least 7-14 days at a time completely. I find changing up the spices and rotating my cuisine base works well. I also make puddings, and protein shakes along with nut/seed milks, and different bases and extract flavorings to get my random cravings Taken care of. Guess take what you can from this and and see how it can help you,    As to the tinging, I ended up with both B vitamin and magnesium deficiency issues, the magnesium one caused a fire like tingling in my arms, legs and back, along with muscle pain. Ended up on a doctors best powder form of it so I can dose it out right, and found epsom salt bathes helped.  
    • Hi, I've gained so much knowledge on this forum over the past few months, which I am so thankful for. I can see how much hell people are going through with this disease and it's so lovely to see how much support and advice people give to others on here. I'd like a little bit of reassurance and advice myself from anyone that can help. I've been gluten free for six months. Two weeks after going gluten free I realised I also had a problem with corn so cut out processed food. Over the following weeks and months I continually had problems with food; fruit, dairy, a lot of vegetables, nuts, soya....it's basically dwindled down to just eating potatoes (not white potatoes), cucumber, lettuce, small amounts of red onion, spring onion, sprouts and beetroot. There may be more things I could be okay with but to be honest I'm too scared to try.  Is this all normal? Am I an extreme case? I've been taking some digestive enzymes and probiotics for about six weeks, my acid reflux has dramatically decreased but I always have a lot of loud noises going on in my guts, I'm guessing this is the probiotics working.  I've lost nearly 3st in weight since this started - which I'm not complaining about as I was overweight due to thyroid problems. I've had loads of blood tests done recently, all organs are working 'great' according to my doctor, the only thing they've picked up on is ketones, I seem to be having a glucose problem, which might explain my exhaustion and weight loss. I also have permanent numbness and sometimes tingling in one of my legs and sometimes hands and one shoulder, I thought it could have vitamin B12 deficiency but that's okay according to blood tests. I would be greatful for any replies. Thanks for reading.
    • Hi everyone, I am doing job in restaurant at evening 5 to 12 during working hours no time to do a dinner. I'm thinking to make a shake but don't know the gluten free vitamin or supplement brand which one is good for me and easily available in Berlin Germany to make me fit cause last one week i feel weak. I'm 28 year old. Sincerely
    • Hey there just wanted to warn anyone that has other allergies- these crackers may not be a good choice! I'm mildly sensitive to MSG- I only react if there's a giant amount like in Chinese food or Ramen noodles, etc.  I literally have a to eat TONS of a the offending food before reacting.  Anyway, I was excited to try these Trader Joes pumpkin crackers, kept hearing about them on the radio .... and they're gluten free!  (I have Hashi's).  I ate about 3/4 of the box last night. Woke up this morning with a red itchy face and nasal congestion, headache, anxiety. Hallmark symptoms for me of high MSG intake. (It does say yeast extract on the side but it's pretty far down the list). So if you're sensitive.... stay away! Apparently these particular crackers are loaded with it. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,690
    • Most Online
      3,093

    Newest Member
    lastcowgirl26
    Joined