Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Protein Enzyme Pump
0

12 posts in this topic

Has anyone heard of or used a Protein Enzyme Pump for IBS. A colleague of my husband's uses it and was surprised that my GI didn't suggest it. I'm trying to get an appointment with his GI but need a referral. That's a sticky wicket as my only doctor in my new state is my GI.

Loey

0

Share this post


Link to post
Share on other sites


Ads by Google:

You could just ask your GI about it and see what he says instead of switching doctors.

0

Share this post


Link to post
Share on other sites

You could just ask your GI about it and see what he says instead of switching doctors.

I still think I want a second opinion. I just need to get a referral and they said it could be from any doctor. The place that was recommended to me has an excellent reputation. My GI isn't open to much that I have to say. I really had to put my foot down to get the capsule endoscopy and that's what showed the ulcer. I hate that this all happened when I moved to a new state. i had really god doctors in NJ. Starting from scratch is a PIA.

Loey

0

Share this post


Link to post
Share on other sites

You could just ask your GI about it and see what he says instead of switching doctors.

Maybe I will bite the bullet and see what he has to say.

Loey

0

Share this post


Link to post
Share on other sites

Maybe I will bite the bullet and see what he has to say.

Loey

If you do, you could get a second opinion on EVERYTHING once you get the referral in place.

1

Share this post


Link to post
Share on other sites




If you do, you could get a second opinion on EVERYTHING once you get the referral in place.

Yep and if he refuses to give you a referral for a second opinion you should switch doctors. No doctor who is a good doctor would object to a second opinion.

1

Share this post


Link to post
Share on other sites

Yep and if he refuses to give you a referral for a second opinion you should switch doctors. No doctor who is a good doctor would object to a second opinion.

Agreed!

1

Share this post


Link to post
Share on other sites

Yep and if he refuses to give you a referral for a second opinion you should switch doctors. No doctor who is a good doctor would object to a second opinion.

Thanks and I agree with you. I also think I found another doctor who will do it for me.

Loey

0

Share this post


Link to post
Share on other sites

If you do, you could get a second opinion on EVERYTHING once you get the referral in place.

I will. I'll have all of my records transferred and bring the results from the tests I had done before I moved.

Thanks!

Loey

0

Share this post


Link to post
Share on other sites

I will. I'll have all of my records transferred and bring the results from the tests I had done before I moved.

Thanks!

Loey

Even better than just having them transferred is having those complete records sent to you also.

0

Share this post


Link to post
Share on other sites

Even better than just having them transferred is having those complete records sent to you also.

Hospitals will charge you a fee for your records. The easiest way to avoid additional costs is to ask the new doc to make you a photocopy of the records (or ask the old doc to do so). Avoid having to get things directly from Medical Records if you can - that's how you avoid the fee.

0

Share this post


Link to post
Share on other sites

Hospitals will charge you a fee for your records. The easiest way to avoid additional costs is to ask the new doc to make you a photocopy of the records (or ask the old doc to do so). Avoid having to get things directly from Medical Records if you can - that's how you avoid the fee.

Good News! Got a referral from my GI in NJ. I'll still need the records from here (I'll ask to sign a release form) but thank God I can finally switch doctors. The pain is worse and my current GI has done almost nothing but make me feel like it's all in my head!

Loey

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,648
    • Total Posts
      921,603
  • Topics

  • Posts

    • You are right, the tests could be invalid.   All the celiac tests require you to be on a gluten-containing diet.  It is up to you to decide if you want to go gluten free.  You can do it.  Believe me, I know.  Hubby is not officially diagnosed.  He went gluten-free 15 years ago, based on the rather poor advice from my allergist and his GP.  It worked though.  But he would be the first to tell you that I have had way more support in terms of family and medical.    We think he has it.  Both of our families are riddled with autoimmine disorders.  I am the first to be diagnosed.   My Aunt went gluten free per the advice of her Chiropractor.  Her other doctors never suspected celiac disease.  The diet obviously worked for her.  Her daughter (my cousin) is a nurse.  She had an endoscopy but they did not check for celiac disease.  She chose to go gluten-free too since it worked for her mom.  Both will not do a gluten challenge.  However, my diagnosis has helped them get proper medical treatment.  My Aunt is very active in a celiac support group.    Now everyone in my family knows about celiac disease.  My own niece was just diagnosed with Crohn's, but her GI did test and will continue to test her for celiac disease.  You can develop additional autoimmune disorders at any time.   So far, a few other members have been tested.  No one else had had a celiac disease diagnosis yet.  Time will tell.  If I can save someone from the misery of struggling to get a diagnosis, then I can feel good.   Now, an official diagnosis will help you adhere to the diet .  You can get follow-up care.  Get checked for other things like SIBO, H. Pylori and cancer.  But ultimately, it is up to you.   Whatever you decided to do, please consider a family health history chart.  You might someday help a grandchild.   The stool tests?  In all my research, leading celiac experts do not recommend them.  http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/  
    • The procedure is a breeze. You will go in, be sedated and go to sleep for a short nap and then it's over. Some people will have a bit of a sore throat but not everyone does. For me the hardest part of the endo was not being able to drink coffee when I got up. You seem to have been back on gluten for long enough to have the test but as CLady said there is a good chance your blood work may be negative. In your case you may want to continue eating gluten after the biopsy at least until you get your blood results. If they are negative consider going a bit longer and getting them redone.
    • I think the gene tests are accurate.  Not sure if thier interpretation of them is.   If you actually think have Celiac, you need to know that.  You  need to know how careful you must be.  You need a diagnosis to get gluten-free food in hospitals or nursing homes (if you can find one that does gluten-free food).  Because thsese "stool tests" are not medically accepted, it is unlikely that a real medical facility will consider you to have Celiac.   http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/
    • Why would your doctor order an endoscopy and check for celiac disease, but not order a celiac panel?  Had you been gluten free already?  
    • Thanks cyclinglady ... just wondering, do most of the people on this forum believe the Enterolab stool / gene testing to be non-trustworthy? Or are you just recommending a diagnosis from my MD so that she is also treating me with full belief/knowledge of my condition? I've been gluten free now for 2 weeks - by the time I get in to my doctor, she orders the bloodwork and I get to a lab it could be another 2 weeks before the bloodwork is done. From what I understand, just a month of gluten free eating could skew the results of the blood test. Supposedly, the stool tests are much more accurate. I hate to go backwards and start eating gluten again just so I can have a blood test done that may or may not substantiate the results of the stool / gene testing. I'm so confused ...
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,653
    • Most Online
      3,093

    Newest Member
    KerryO
    Joined