Anyone Else Have This Happen?
Posted 27 June 2005 - 06:08 PM
i know this is so so so gross, but this is the only place i can ask about it.
is this because my system has been "cleaned out" so much? or is it that my celiac disease was worsening as time went on and my body would react like this whether i had stopped eating gluten or not? and if this is happening whether i eat gluten or not, and literally RIGHT after eating, what else could be going on??
Posted 27 June 2005 - 06:54 PM
I avoid as much as possible salads, fruits with skin, tomatoes, corn, mushrooms. All go through my system basically undigested.
The next time you see your doctor, ask him maybe to investigate the possibility of you having collagenous colitis. After a decade of permanent watery diarrhea, the top celiac guy in Canada finally figured out (by colonoscopy) that I also had collagenous colitis. Google it up, it might sound very familiar to you......
positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)
Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.
Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......
"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden
Laughter is the shortest distance between two people.
-- Victor Borge
"An optimist laughs to forget. A pessimist forgets to laugh."
"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Posted 28 June 2005 - 02:27 AM
Posted 28 June 2005 - 04:07 AM
Posted 28 June 2005 - 08:36 AM
Posted 28 June 2005 - 09:16 AM
gluten-free since Feb 2005
Posted 28 June 2005 - 05:20 PM
Diagnosed April 2005 via bloodwork and endoscopy
4 year old daughter diagnosed March 2006 via bloodwork and endoscopy
She was completely asymptomatic
4 year old also diagnosed with Graves disease Sept 2006
Posted 28 June 2005 - 10:10 PM
Posted 29 June 2005 - 09:23 AM
I would give up all dairy for two weeks and see what happens, also look for dairy ingredients in the foods that you eat, cause it is in a lot of things. I can eat Yoplait and Dannon yogurt with no problem at all.
Self-diagnosed after many tests and no results to feel better
Gluten Free since 8-6-2005
Lactose free for many years
Casein Free since 02/14/06
Posted 01 July 2005 - 03:47 PM
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