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Celiac Switching From gluten-free Back To Gluten..help!


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#1 kostrof1

 
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Posted 12 December 2010 - 01:51 PM

I was diagnosed with Celiacs in April of this year and immediately changed my diet to gluten free which relieved all my problems in just weeks. I am faced with a situation recently where I HAVE NO CHOICE but to switch back to a gluten diet for a period of time..a couple months. I do not want to say why in case this comes across the wrong eyes but point being I have to go back to an unregulated diet. I have accidentally consumed gluten about 2 times since my gluten-free diet.. I got sick for a day or two. My question is if I take the risk and eat gluten then continue to eat it will my body cope like it did before until I can once again resume my gluten-free diet? Or will the illness not stop? I'm in a real sticky situation here and have about a month until I have no choice but to eat gluten. Someone please help me
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#2 kareng

 
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Posted 12 December 2010 - 02:04 PM

I couldn't tell you, since I wouldn't go back to eating gluten on purpose. Even in prison, they must give you a medically safe diet ( not tasty, just safe).

Seriously, other people on here have had Celiac and been in the military. Some were allowed to continue but maybe not deploy to a " difficult" situation. If that's your situation, they probably know about your diagnosis or will soon if you used the insurance.
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#3 kostrof1

 
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Posted 12 December 2010 - 02:12 PM

I couldn't tell you, since I wouldn't go back to eating gluten on purpose. Even in prison, they must give you a medically safe diet ( not tasty, just safe).

Seriously, other people on here have had Celiac and been in the military. Some were allowed to continue but maybe not deploy to a " difficult" situation. If that's your situation, they probably know about your diagnosis or will soon if you used the insurance.


I appreciate your time but if you couldn't tell me I don't know why you replied. I am aware of situations in jail, military, etc. where they must provide you with special meals. Sometimes it just doesn't work that way and in my case...it doesn't. Thanks anyway.
Anyone else have some experience with this?
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#4 ravenwoodglass

 
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Posted 12 December 2010 - 02:28 PM

I am sorry you are having to go through this. You will heal again after the couple months is over but it may take some time. It may unfortunately be an unpleasant couple of months for you. Liquid Pepto Bismal can be helpful for stomach pain. Immodium helps with the D.
You should keep in close contact with your doctor if your doing this because you now need an endo for diagnosis. There are times when if the reaction to the challenge is severe the doctor will stop the challenge and will diagnose firmly based on the reaction. If you haven't seen your doctor in a while and are self diagnosed, it might be a good idea to make an appointment so he gets to see you as you are now on gluten free diet and tell him what your doing.
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celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
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Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

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Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

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HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#5 psawyer

 
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Posted 12 December 2010 - 02:43 PM

If you got sick for a day or two after accidentally consuming gluten, you should expect to be sick every single day of the two months. You will likely be back to square one when you resume the gluten-free diet, meaning your symptoms will continue for some time. It is difficult to predict how long you will have to be gluten-free again to get back to where you are today.
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#6 GlutenFreeManna

 
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Posted 12 December 2010 - 03:15 PM

I don't mean to be rude, I can't think of a single situation that would force me to eat gluten again. I can think of lots of situations where it might be difficult to remain gluten free, but none where I would just give up and plan on being sick for two months--especially if I knew in advance that that time was coming and I could make arrangements for gluten free food. Whatever you are going through I hope you will research your options better to figure out if eating gluten really is your only option. Even homeless shelters should be able to give you plain rice or potatoes or something if you explain, especially since you have a doctor diagnosis. I'm not sure what type of help you were looking for here, since you were so vague on the situation details. I hope you can figure out a solution other than just eating gluten and being sick. The long time health risks of going back to gluten are not worth it IMO.
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A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

#7 Clown Shews

 
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Posted 12 December 2010 - 07:21 PM

I don't mean to be rude, I can't think of a single situation that would force me to eat gluten again. I can think of lots of situations where it might be difficult to remain gluten free, but none where I would just give up and plan on being sick for two months--especially if I knew in advance that that time was coming and I could make arrangements for gluten free food. Whatever you are going through I hope you will research your options better to figure out if eating gluten really is your only option. Even homeless shelters should be able to give you plain rice or potatoes or something if you explain, especially since you have a doctor diagnosis. I'm not sure what type of help you were looking for here, since you were so vague on the situation details. I hope you can figure out a solution other than just eating gluten and being sick. The long time health risks of going back to gluten are not worth it IMO.


It's actually incredibly rude. I know of several people who want to serve in our military honorably who would be kicked out of boot if it was known they are celiac. They get friends to trade them meat for bread and spend months, if not years trying to cover up their sickness. Once they get through boot and get their assignments they can get a doctor to check them out, and get their disease diagnost as a new condition.

To the originator of this thread... don't know if this is you, but I can tell you they all made it through. I'm sure you'll survive and get straight on the flip side.
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#8 GlutenFreeManna

 
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Posted 12 December 2010 - 08:05 PM

It's actually incredibly rude. I know of several people who want to serve in our military honorably who would be kicked out of boot if it was known they are celiac. They get friends to trade them meat for bread and spend months, if not years trying to cover up their sickness. Once they get through boot and get their assignments they can get a doctor to check them out, and get their disease diagnost as a new condition.

To the originator of this thread... don't know if this is you, but I can tell you they all made it through. I'm sure you'll survive and get straight on the flip side.


Let me assure you as the daughter of a Marine I have great respect for what our military goes through. However, my opinion remains the same that it's not worth it to risk long term health for the short term. If the military does not accomodate celiac than that is awful. At the same time I don't see anything "honorable" about lying about a medical condition to get through basic. If you are sick while on the field you put your fellow solidiers at risk. Going gluten free again after a two month glutening is not like flipping a switch and then you can be healthy again right away, at least not for most people. With the possibility of other food intolerance, other autoimmune diseases and cancer developing why would anyone want to take that risk? There's also the possiblity of refractory celiac developing which doesn't respond to diet at all.
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A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

#9 tarnalberry

 
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Posted 12 December 2010 - 08:28 PM

It's actually incredibly rude. I know of several people who want to serve in our military honorably who would be kicked out of boot if it was known they are celiac. They get friends to trade them meat for bread and spend months, if not years trying to cover up their sickness. Once they get through boot and get their assignments they can get a doctor to check them out, and get their disease diagnost as a new condition.

To the originator of this thread... don't know if this is you, but I can tell you they all made it through. I'm sure you'll survive and get straight on the flip side.


This is still, however, not a situation in which the person is forced to eat gluten. It is a choice. Yes, the alternative would be to be discharged, but not getting what you want they way you want it doesn't mean you don't have a choice.
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#10 eatmeat4good

 
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Posted 12 December 2010 - 08:35 PM

Well,unfortunately I have direct experience, so I will share it with you regardless of what your situation is. When I went back on gluten after 5 years on whole foods, my symptoms were 10 times worse than they were before. I didn't know about gluten at the time. I had remained on the Atkins strict version of the diet for my weight. I spent the number of grams of carbs per day on ...chocolate. I was fine. Little did I know it was actually gluten, not carbohydrate making me ill. So when I got married, my husband ate pita bread, so I used my allowed number of carbs on-pita bread-every day. Within a week, my face swelled and my fingers and feet swelled. I could NOT think clearly, I was dizzy, nauseous, dazed confused and sad. The next week I got bad acne which turned into oozing sores that did not go away for years. (DH) I became irritable, moody, clumsy and started having really bad migraine headaches that seemed to last longer and longer until they almost never went away. I was so tired I had to sleep every moment I was not at work and I had a small son to take care of. It was impossible to figure what was making everything about my body not work. The next thing I noticed was incredible forgetfulness, I would drive right past work and not realize it. Then I developed heart palpitations and kidney spasms and my fingernails peeled and cuticles bled. I had stomach aches and nausea every day. It was a long time before I got diarrhea but that too developed. I was horrified by all of this, but the Dr. said I had clinical depression and referred me for therapy. It didn't work. I couldn't think or process well enough to have a conversation. I started falling in the shower for no reason. I bruised easily and cried if someone spoke to me. I slept all day every day and never felt alert. This all happened within 3 months. It lasted years before I figured out it was really gluten. My symptoms were mostly the dermatological and neurological symptoms of Celiac. I thought I would share this because it can be more than the stomach aches and diarrhea..and you should know what you are getting into just in case you too happen to get neurological symptoms. I forgot to mention the tooth discoloration that occurred during my exposure to gluten. As far as recovery, I am healing, but certainly the DH scars are here to stay, and the tooth discoloration, but now my muscles and joints are working properly and the fatigue and depression are mostly gone. I have been gluten free two months. I hope this helps.
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Healing is a matter of time, but it is sometimes also a matter of opportunity.
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#11 GlutenFreeManna

 
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Posted 12 December 2010 - 08:43 PM

This is still, however, not a situation in which the person is forced to eat gluten. It is a choice. Yes, the alternative would be to be discharged, but not getting what you want they way you want it doesn't mean you don't have a choice.


Yes, I agree. When the OP wrote they have no choice, I was actually thinking perhaps this person is trying to get out of an abusive relationship and is planning on surviving off the kindness of others for a few months until they can get on their feet. That's the only situation I could think of where you might know in advanced you will be forced into it--being homeless and not knowing if you will get safe food (or enough food). The way the OP wrote that they didn't want the wrong eyes to see it made me think it was something more secretive and dangerous.
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A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

#12 MATT1983

 
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Posted 12 December 2010 - 09:28 PM

I was diagnosed with Celiacs in April of this year and immediately changed my diet to gluten free which relieved all my problems in just weeks. I am faced with a situation recently where I HAVE NO CHOICE but to switch back to a gluten diet for a period of time..a couple months. I do not want to say why in case this comes across the wrong eyes but point being I have to go back to an unregulated diet. I have accidentally consumed gluten about 2 times since my gluten-free diet.. I got sick for a day or two. My question is if I take the risk and eat gluten then continue to eat it will my body cope like it did before until I can once again resume my gluten-free diet? Or will the illness not stop? I'm in a real sticky situation here and have about a month until I have no choice but to eat gluten. Someone please help me


I think to honestly answer this you have to have gone threw this situation. I have tried to go back on a non-gluten free diet and it has successfully not worked. I have tried more than three times to go back to eating Gluten again for certain reasons also, and Each Time I got even more sicker and even worse than the time before that and the symptoms last longer than you want or even expect. I have also been diagnosed with Celiac Disease Also and cannot tolerate any, and I Mean ANY Dairy or Gluten. All I can say is, if you have to go back to eating Gluten, Be wise about it and try not to over eat. It might help some but you WILL be SICK. The illness will not stop and only get worse and your body will try to cope, but it will not be successful. As I said, You WILL BE SICK. But, if you feel like you can tolerate being Sick as a Dog, then you have to. Be prepared to have a Lot of time to re-cooperate after you have to do this. Whatever the reason is, prepare your Mind, Heart, and Body to try and stay sane. This will mentally, and Physically drain you, not to mention could cause more physical damage to your body than you have now and you will be mad at yourself for doing this. Have someone that is a Great friend to help you threw this also. The only reason I know this is because I only speak from experience. Good luck and hope you make it threw whatever your having to go threw.
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#13 srall

 
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Posted 13 December 2010 - 04:57 AM

Since I don't know what your situation is, I'll assume you don't have any choice whatsoever and will have no control over your diet.
When I eat gluten (and I'm not diagnosed Celiac btw) every joint in my body swells up to the point where I can barely walk. I get a DH rash all over my body and I'm so fuzzy headed I can't think clearly. My rage and anxiety act up and my poor family takes the brunt of my wrath. I have spent up to two weeks in bed sleeping 16 hours a day after a gluten attack.
If you are in a position where others are depending on you, ie children, co-workers, patients, fellow soldiers, I think you could be putting them at a huge risk. I can't think of anyway for you to make it easier on yourself.
I hope you're not in any kind of danger.
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#14 Loey

 
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Posted 13 December 2010 - 06:41 AM

I was diagnosed with Celiacs in April of this year and immediately changed my diet to gluten free which relieved all my problems in just weeks. I am faced with a situation recently where I HAVE NO CHOICE but to switch back to a gluten diet for a period of time..a couple months. I do not want to say why in case this comes across the wrong eyes but point being I have to go back to an unregulated diet. I have accidentally consumed gluten about 2 times since my gluten-free diet.. I got sick for a day or two. My question is if I take the risk and eat gluten then continue to eat it will my body cope like it did before until I can once again resume my gluten-free diet? Or will the illness not stop? I'm in a real sticky situation here and have about a month until I have no choice but to eat gluten. Someone please help me


A heating pad and herbal (mint or chamomile tea) can provide some relief. I'm so sorry for what you're going through and even more sorry that you can't share the circumstances. It would make it a lot easier to help you. I was paranoid when I first joined the forum that my GI would see my posts (as if he spends his free time on it). I do understand that some things need to be kept to yourself. I just hope that you're not in harm's way.

Keeping you in my prayers,
Loey



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#15 Gemini

 
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Posted 13 December 2010 - 08:26 AM

It's actually incredibly rude. I know of several people who want to serve in our military honorably who would be kicked out of boot if it was known they are celiac. They get friends to trade them meat for bread and spend months, if not years trying to cover up their sickness. Once they get through boot and get their assignments they can get a doctor to check them out, and get their disease diagnost as a new condition.

To the originator of this thread... don't know if this is you, but I can tell you they all made it through. I'm sure you'll survive and get straight on the flip side.


I don't think the response was rude, it was honest and based in reality. It serves no purpose to cover up an illness just to try and make it through basic training. Sometimes a person cannot do what they want in life due to an illness or condition and there is no shame in that. I'm sure there are positions in the military where having Celiac would not compromise their job duties but lying and covering up so you can pass basic, and then having it diagnosed as a new condition is plain stupid, not to mention dishonest. Not a good way to start out a military career and there is no guarantee this won't keep you from getting a medical discharge anyway.
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