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I Am Ready To Eat Gluten!


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23 replies to this topic

#1 cap6

 
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Posted 12 December 2010 - 08:19 PM

Here I thought I had the perfect "recipe" for my chronic constipation. It worked for about 2 months and then just quit. Right now I think I would eat some gluten just to get D - anything but this C. I have been living on 3 Ducolax, every night for 2 weeks. The dr gave me Lactulose on Friday but that isn't working. After 6 days of little to no poop I got desperate and did the "colon cleanse" yesterday. Drink two 64oz gatorades and two of the 238 mg bottles of miralax. Well, it helped a little but today when ever I eat something I am bent over with bloating. The dr office just brushes me off so don't know if I can get in to see the dr tomorrow. I am getting pretty desperate!
Oh... I just had to vent. I have been gluten-free since March & doing pretty good - except for this C!!!!!
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#2 shopgirl

 
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Posted 13 December 2010 - 07:29 AM

Have you looked for other foods that could be causing it? Dairy/casein? Soy? Are you eating plenty of leafy greens, fruit, vegetables? Drinking a good amount of water? Exercising?

C was my number one gluten symptom and it hasn't totally eased off since I went gluten-free a couple months ago but I can alleviate it by eating a big spinach/lettuce salad every day with a good serving of plain olive oil on top. Fruits and veggies throughout the day. Water.

Give us a few more details and we might be able to help but don't go back to gluten. Not worth it.
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"My experience has been that there is, surprisingly, always hope." - Eleven

Positive blood test & endoscopy / Gluten-free 10-07-10 / Dairy-free / Soy-free

#3 bridgetm

 
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Posted 13 December 2010 - 07:40 AM

I'm scheduled for a colonoscopy on the 30th out of concern of Crohn's or some other IBD (upper scope, 2 MRIs and a pill cam showed no abnormalities). The thought of eating a real Christmas cookie is looking more attractive than 3 dulcalax, 64 oz of Gatorade and Miralax and magnesium bromide. Who needs drugs when wheat protein could be incredibly successful?? Of course, I'll go the drug route... at least they won't put me to bed for 48 hours.

I can relate to your frustration though. My main symptom with gluten was diarrhea. When I get trace CC'd consistently (happened a few days in a row last week) I get the D but almost simultaneously I also get C. It feels like C, like my system had just shut down, but I'll still get D-like BMs. I make at least one meal a day a simple bowl of white rice with some salt and, of course, lots of water throughout the day helps to balance things out.
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#4 mamaw

 
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Posted 13 December 2010 - 07:57 AM

I feel your pain! I was in the hospital for aweek because of thet same issue.... I have no problems -- its just I have weak bowel muscles... I've been checked & tested many times. My dad had the same issue. Here is what I do: miralax twice a day & mineral oil as dirested. Once I start being reg or the stool gets like the big D I slack off a day or more then start back up with miralax once a day.


good luck...
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#5 cap6

 
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Posted 13 December 2010 - 08:17 AM

Thanks for your replies. I do feel like just curling up and crying like a baby at times.

I drink a lot of water, 5 or 6 bottles a day as am always very thirsty. Water is about all I drink other than a glass of wine here and there.

Food wise - not much what I would call "junk". Veggies, fruit, chicken mostly. We do very little processed stuff any more, our dinners and stuff are all well balanced. Since I can't eat close to all of the advised serving of healthy stuff every day I figure there is no room for the junk or processed stuff.

Metamucil 2 x's a day. Flax seed oil & probiotic every day.
I don't eat much dairy -about all would be a bit of cheese sprinkled on a meal. Don't like milk and use very little butter. Don't use soy that I am aware of but am going to check all of the stuff in the cupboard for any hidden ingredients that I may have missed.

Have had this C issue on and off all of my life but never quite as bad as right now. I am going to try to get in to see the dr today but I think they are getting tired of seeing me every couple of months. But what else is there to do? It's weird as last year I missed Christmas as was so very sick (not diagnosed yet) and feel like "here it comes again". I am not trying to be negative I just feel very negative today. Usually am a pretty up beat person but I swear there are times when this disease really tests you!

As for a cookie - even a bite is sounding like a welcome relief right now!
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#6 polarbearscooby

 
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Posted 13 December 2010 - 08:26 AM

Its good to know I'm not the only one, because I've had times when Ive considered eating gluten just to go...but I've been to embarrassed to ask about it...

I've had the issue my whole life, and it got worse after my gallbladder was taken out. I actually ended up in the ER because we though I might have busted an internal stitch, but my doctor told me my entire bowel, all the way up to my stomach, was um. Full. Then two years later I got diagnosed and I was free of the D and the C....until my first glutening, then it happens like clock work, D 30 mins after for 2 hours, then after that C for up to a week.... and once it's all gotten out of my system I'm fine until my next accident.

I ALWAYS drink plenty of water, we buy by the case now, I drink 4-6 bottles a day...
I eat veggies (although probably not as much as I should...)
I don't drink milk, the only dairy I get is from a vitamin and cheese on things like Tacos and Pizza :) (what?! I'm a college student! lol)


Anyway thank you for finally breaching this subject!!
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#7 cap6

 
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Posted 13 December 2010 - 08:40 AM

my pleasure. Lol !!! I think that this is a topic that concerns all celiacs to some degree but not necessarily one that is easy to bring up. But desperation does force us I guess and it's good to feel so safe to talk on this board.
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#8 polarbearscooby

 
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Posted 13 December 2010 - 08:48 AM

my pleasure. Lol !!! I think that this is a topic that concerns all celiacs to some degree but not necessarily one that is easy to bring up. But desperation does force us I guess and it's good to feel so safe to talk on this board.


Very true! :)
Thanks for having that courage!
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#9 jenngolightly

 
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Posted 13 December 2010 - 01:49 PM

Here I thought I had the perfect "recipe" for my chronic constipation. It worked for about 2 months and then just quit. Right now I think I would eat some gluten just to get D - anything but this C. I have been living on 3 Ducolax, every night for 2 weeks. The dr gave me Lactulose on Friday but that isn't working. After 6 days of little to no poop I got desperate and did the "colon cleanse" yesterday. Drink two 64oz gatorades and two of the 238 mg bottles of miralax. Well, it helped a little but today when ever I eat something I am bent over with bloating. The dr office just brushes me off so don't know if I can get in to see the dr tomorrow. I am getting pretty desperate!
Oh... I just had to vent. I have been gluten-free since March & doing pretty good - except for this C!!!!!

Are you only gluten-free? Dairy, soy, or corn might be causing constipation. That's what happens to me.
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Jenn
dx celiac 9/2007: gluten-free 9/2007
corn intolerant: corn-free 5/2010
nut allergy: nut-free 8/2010

#10 cap6

 
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Posted 13 December 2010 - 07:26 PM

I eat little to no dairy but will take a look at the corn & soy. Thank you!
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#11 sandsurfgirl

 
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Posted 13 December 2010 - 07:49 PM

Get a good old fashioned enema. Not the little bottle of Fleet's. Get the one that's like a hot water bottle but it has a tube attached. It is natural, safe and the best thing to get immediate relief without taking more medications, etc.

It holds like a quart of water but only a little bit will go in at a time. This is gross, but hey we're celiacs. We dont' care right? The best thing to do is to lay on your back first. Then after you go to the bathroom, lay on your right side. Bathroom. Tummy or hands and knees. Bathroom. Then left side.

You'll feel so much better if you try it.
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Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!

#12 cap6

 
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Posted 14 December 2010 - 08:18 PM

gulp! I am ready for that step. Also have a dr appt on thursday. Here's hoping something breaks loose. No pun intended!
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#13 Judy3

 
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Posted 14 December 2010 - 08:25 PM

Glad to know that I'm not the only one!!! I went from D 15 times a day before the gluten free diet and now it's C most of the time...

I thought it was just me!!

:lol:
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*Judy

Food allergies to fish, seafood, tree nuts, aspartame(Equal),flax seed, and many drugs
Stomach issues since childhood
Hypoglycemia (low blood sugar) age 6-44
Diabetes age 44 to present now going back to Hypoglycemia since gluten free.
Diagnosed with Fibromyalgia in 2005 and it's gone now that I'm aspartame and gluten free. Hmmm
Celiac disease- negative test in 2009, positive tests in Nov. 2010
Gluten free started 11/08/2010
Genetic tests positive- DQ2, positive -DQ6 (?) negative- DQ8 11/15/2010

#14 cap6

 
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Posted 14 December 2010 - 09:47 PM

do we really want to talk about it? lol I've never discussed so many bodily functions before going gluten-free!!
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#15 ravenwoodglass

 
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Posted 15 December 2010 - 02:26 AM

I eat little to no dairy but will take a look at the corn & soy. Thank you!


Good idea to give up the soy. You maybe should give them up one at a time. Soy was the C offender for me. Even a little bit binds me up painfully for days. My system doesn't tolerate flax seed in any form so I couldn't use anything with that for relief.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)




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