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Does It Have To Be An Extreme Rash?
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I have only been diagnosed as IBS so far and that was by a regular doc. Recently been seeing more and more of my symptoms taking after Crohn's or Celiac. I have gotten rashes all my life that docs always dismissed as contact dermatitis an allergic reaction etc.. The most common rashes I get are on hands and look like a bunch of clear tiny bubbles mostly on index finger but have gotten over complete palms before. Swolling and itching occurs! Most recently though I have gotten some on my forearms. They started out looking like just a couple bug bites then got white heads on them. They itch on and off. I am slowly getting several more. The only pics i have found of DH online looked quite extreme. So was wondering if anyone gets this and it varies on itching and or appearance?

I have other symptoms (no periods unless on the pill, stomach issues of course, been vomiting on and off for last couple of months this month has been three days already though and not in a row, prickling sensations in skin on legs on occasion, was haivng some anxiety and depression a few months back etc...).

Thanks for any input. I have pics also if anyone wants to see.

~Steph

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My Mom & I both get the same thing you descibe, so I wonder the same thing. We have always called them "hives" but I think actual hives are bigger, these are small and very itchy! I also get rashes frequently, or I used to, that has gotten much better since starting digestive enzymes and I hope now that I am gluten free, they are going to stay gone. :D

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Thanks for the reply Lisa. Thank goodness it has been colder out (live on a tropical island right now) as I had one on upper arm that looked like a zit it was awful and husband teased me about it but now have them on my wrists. Most are tiny and can barely see them but there are a couple that have the bug bite appearnace. I also noticed they flatten out at times then others they are puffed out with or without the "head" on them ewww. It makes me so paranoid and been looking at every rash imaginable online to "diagnose" myself ha ha! We have to go to military docs and they aren't the best of the bucket for sure! Moving to England in a month so will be happy to go to real docs and from what I have gathered they are very intune with the digestive diseases.

~Steph

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    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
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