Posted 18 December 2010 - 06:28 AM
Fast forward to now. I got glutened the other day in a big way and had little to no symptoms, which throws everything into doubt now for me.
Should I start eating gluten again and pursue testing? Do no symptoms mean I'm not celiac after all this time? What the heck is going on?
Thanks for listening...very confused now.
Posted 18 December 2010 - 06:46 AM
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
Posted 18 December 2010 - 01:04 PM
It seems like every story I heard from people had them getting more sensitive with time, not less....is that not universal?
I am certainly grateful that my recent glutening did not leave me on the floor like it used to, but now all I can think about is C H E A T I N G! *evil laugh*
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