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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Sweetest Thing Happened Today
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15 posts in this topic

The sweetest thing happened to me today. It was my turn to grocery shop and as I was walking through the store filling my basket, while carefully reading the ingredient labels, I looked down at my list and there written next to bread was (sorry :( ).

I almost burst into tears at how sweet it was for my husband to feel bad that he likes to eat sandwiches for lunch while I have chicken or something. He is amazing and has been right by my side since my diagnosis a few months ago.

He's the guy who reminds me to look for barley and oats and not just wheat on labels and he's the guy who holds my hand and rubs my back when I am sick.

I just wanted to share with someone how wonderful those parenthesis made me feel. I've had a hard time at work with the copious amount of cookies etc... that I can't eat. Needless to say the "parenthesis" are few and far between.

I knew all of you would appreciate those parenthesis as much as I did. :)

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The sweetest thing happened to me today. It was my turn to grocery shop and as I was walking through the store filling my basket, while carefully reading the ingredient labels, I looked down at my list and there written next to bread was (sorry :( ).

I almost burst into tears at how sweet it was for my husband to feel bad that he likes to eat sandwiches for lunch while I have chicken or something. He is amazing and has been right by my side since my diagnosis a few months ago.

He's the guy who reminds me to look for barley and oats and not just wheat on labels and he's the guy who holds my hand and rubs my back when I am sick.

I just wanted to share with someone how wonderful those parenthesis made me feel. I've had a hard time at work with the copious amount of cookies etc... that I can't eat. Needless to say the "parenthesis" are few and far between.

I knew all of you would appreciate those parenthesis as much as I did. :)

Sweet!!!

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My parents have been reaallllly supportive of me as well (Well, my dad was initially defensive, but he realized how serious I am about this; I now know I HAVE to be!). My mom was, not excited but she was I guess impressed with me working on figuring out what foods agree with me and what ones don't in addition to going gluten-free. My dad's hugged me on those days I had a massive emotional outburst over a lost item (and now I'm finally able to explain WHY I freak out that badly!). They're getting better and better about asking me if I can eat stuff. And so on.

I think my friends will be equally supportive; I just don't see them as often as I'd like. :(

Supportive people rock; in the midst of all those goons and doofbrains who dismiss us it's definitely tear-inducing. <3

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The sweetest thing happened to me today. It was my turn to grocery shop and as I was walking through the store filling my basket, while carefully reading the ingredient labels, I looked down at my list and there written next to bread was (sorry :( ).

I almost burst into tears at how sweet it was for my husband to feel bad that he likes to eat sandwiches for lunch while I have chicken or something. He is amazing and has been right by my side since my diagnosis a few months ago.

He's the guy who reminds me to look for barley and oats and not just wheat on labels and he's the guy who holds my hand and rubs my back when I am sick.

I just wanted to share with someone how wonderful those parenthesis made me feel. I've had a hard time at work with the copious amount of cookies etc... that I can't eat. Needless to say the "parenthesis" are few and far between.

I knew all of you would appreciate those parenthesis as much as I did. :)

yep, that's sweet... and AWESOME!!! What a supportive guy you've got there!

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That's cute! Mine said if I didn't want to buy & touch the regular bread for him and the kids, to let him know so he can pick it up after work.

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My parents have been reaallllly supportive of me as well (Well, my dad was initially defensive, but he realized how serious I am about this; I now know I HAVE to be!). My mom was, not excited but she was I guess impressed with me working on figuring out what foods agree with me and what ones don't in addition to going gluten-free. My dad's hugged me on those days I had a massive emotional outburst over a lost item (and now I'm finally able to explain WHY I freak out that badly!). They're getting better and better about asking me if I can eat stuff. And so on.

I think my friends will be equally supportive; I just don't see them as often as I'd like. :(

Supportive people rock; in the midst of all those goons and doofbrains who dismiss us it's definitely tear-inducing. <3

I am so happy your family is starting to support you in a more expressive way. It sounds like you are starting to feel better. I sure hope this is the answer for you. You sound like an amazing person. I am in awe of your maturity. You feel, to me, like an amazing person who will overcome and doing important things with your life.

Stay strong. I'm rooting for you!!!!

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That's cute! Mine said if I didn't want to buy & touch the regular bread for him and the kids, to let him know so he can pick it up after work.

Awwwwww, I love it! It's amazing that these little things can really make a huge difference. I'm glad that you are supported in your journey. I know that if feels great!!!

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It's so nice to see someone getting the caring and supportive they need. My husband is also very supportive and wonderful.

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Ah if only more people were as nice, the world would be a better place, wouldn't it? He's a keeper. Couldn't be happier to share your story. Thanks. :)

FooGirlsMom

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I have to tell my good story. A few nights ago a dear friend had a big cocktail party. When I arrived she quietly said " there are dips and some pork tenderloin in the kitchen. Make your plate in there" She knew I always take crackers in my purse, and she was protecting me from cross contamination. I know how lucky I am to have such support from all of my family and friends.

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After awhile you will get to know which gluten free desserts you like and then that gluten stuff wont' tempt you. So far I haven't run across any gluteny thing I can't make gluten free that tastes great or even better.

I keep Betty Crocker gluten-free mixes on hand. Gluten Free Pantry mixes on hand. And I use Annalise G. Roberts Gluten Free Baking Classics book to bake with. We have more gluten free junk food than we need to be eating in our house.

Libby's pumpkin pie with no crust is really good! Just make the filling according to directions. Grease the pie pan and pour it in.

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I was ordering some take-aways at a new place that had opened up. First day open and they were very busy.

The owner who was taking orders said "Wow, that must be hard..." very sympathetically when I explained why I needed wheat-free fish. That was the first time someone actually sympathised with me, instead of staring/smiling/laughing or just no comment (Waiters laugh, I don't know why, when I ask specifically no wheat. Maybe they think it's a joke???)

I really appreciated that. I also get sympathy from husband and family, it does help somewhat :) Hubby especially feels bad ordering awesome food, and I have to always have a salad/chips instead. I wish I could explain that it isn't that bad for me - feeling great instead of sick is more important to me than having an awesome restaurant meal.

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I have to tell my good story. A few nights ago a dear friend had a big cocktail party. When I arrived she quietly said " there are dips and some pork tenderloin in the kitchen. Make your plate in there" She knew I always take crackers in my purse, and she was protecting me from cross contamination. I know how lucky I am to have such support from all of my family and friends.

Wow!!! What an amazing friend. Thanks for sharing your story! It's the beautiful things in life that keep us going.

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I was ordering some take-aways at a new place that had opened up. First day open and they were very busy.

The owner who was taking orders said "Wow, that must be hard..." very sympathetically when I explained why I needed wheat-free fish. That was the first time someone actually sympathised with me, instead of staring/smiling/laughing or just no comment (Waiters laugh, I don't know why, when I ask specifically no wheat. Maybe they think it's a joke???)

I really appreciated that. I also get sympathy from husband and family, it does help somewhat :) Hubby especially feels bad ordering awesome food, and I have to always have a salad/chips instead. I wish I could explain that it isn't that bad for me - feeling great instead of sick is more important to me than having an awesome restaurant meal.

It's just nice to know that they are thinking about you when they order and they eat. That your situation does not go unnoticed. Sounds like your hubby is a keeper, too.

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What a kind thing! Hang on to that special friend.

My dear friend is a chef and has been hanging on my every word as to how and what I can eat. She said that she has to learn too!!

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    • Weird Reaction
      Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'. 
    • 9 year Old going through testing
      Thank you everyone. I have scheduled a second opinion. He last biopsie came back and he is lactose intolerant.     
    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
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