Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Soy; Bad Or Ok?


rockectman

Recommended Posts

rockectman Rookie

Is soy ok for celiacs to eat or is it one of those individual things like oatmeal?

Also, is being gluten sensitive have the same damaging effects on your villi as

a full blown celiac has? I dont get as sick as alot of people on here when glutenated

but I think I could be still getting the same damage as a full blown celiac, of which

I still consider myself a celiac. Sometimes the pain on my side is so bad I can barely

walk straight up.

Thanks.....Derrick

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Soy is gluten-free, but some people, including some celiacs, are unable to eat it. It is one of the FDA's top eight allergens, so it must be clearly disclosed on labels in the USA.

Link to comment
Share on other sites
mushroom Proficient

Soy is an individual thing, Derrick. There do seem to be a lot of us who do not tolerate it, but gluten and soy sensitivities do not go hand in hand. Some people think it's bad for everyone because of its hormonal effect but soy is generally considered to be a safe edible.

As for damage from gluten, gluten has different damaging effects in each individual. To say it is worse or not as bad - well, it's hard to quantify. Would you rather have D and/or C with cramps, or gluten ataxia and brain fog, or have it silently attack some other part of your body like your thyroid? Or suddenly end up with lymphoma? You will never know until it shows up what damage it is doing. And it doesn't matter if you have a diagnosis or not, if you are sensitive to it it is harming you.

Link to comment
Share on other sites
rockectman Rookie

Thanks for the replies. Love this board, really helps me.

Link to comment
Share on other sites
GlutenFreeManna Rising Star

Soy SAUCE is not always gluten free. Some of it is made with wheat (check the label, it has to be disclosed in the US). Soy ALONE does not have gluten in it. However many do react to soy in various ways. I did a poll asking how many people here also avoid soy and the variety of reasons for avoiding it was wide. Some people might have an allergy, some might get the same symptoms from it as they get from glutening, some avoid it because they also have thyroid issues.

Link to comment
Share on other sites
rockectman Rookie

Soy SAUCE is not always gluten free. Some of it is made with wheat (check the label, it has to be disclosed in the US). Soy ALONE does not have gluten in it. However many do react to soy in various ways. I did a poll asking how many people here also avoid soy and the variety of reasons for avoiding it was wide. Some people might have an allergy, some might get the same symptoms from it as they get from glutening, some avoid it because they also have thyroid issues.

thanks......soy sauce kills me just like a big mac would. found san j organic tamari sauce, good substitute.

Link to comment
Share on other sites
chasbari Apprentice

Soy is an individual thing, Derrick. There do seem to be a lot of us who do not tolerate it, but gluten and soy sensitivities do not go hand in hand. Some people think it's bad for everyone because of its hormonal effect but soy is generally considered to be a safe edible.

It is my understanding that, technically, soy has never been granted official GRAS (generally regarded as safe) status by the FDA. I will have to track down my source on that, though. Maybe Weston Price.. Price Pottinger.. Maybe Mercola.. Can't find it at present.

CS

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

It is my understanding that, technically, soy has never been granted official GRAS (generally regarded as safe) status by the FDA. I will have to track down my source on that, though. Maybe Weston Price.. Price Pottinger.. Maybe Mercola.. Can't find it at present.

CS

A little common sense, please. The GRAS lists are for additives and flavorings, not for whole foods that are obviously edible. I doubt carrots or chicken have been granted official GRAS status either. Anyone trying to invoke lack of GRAS status for a whole food like soy has an axe to grind and if that's the best argument they can come up with, they're in sad shape.

Link to comment
Share on other sites
chasbari Apprentice

A little common sense, please. The GRAS lists are for additives and flavorings, not for whole foods that are obviously edible. I doubt carrots or chicken have been granted official GRAS status either. Anyone trying to invoke lack of GRAS status for a whole food like soy has an axe to grind and if that's the best argument they can come up with, they're in sad shape.

I consider myself educated now. Thank you. It is just something that stuck in the back of my mind from my early ventures into understanding gluten-free and all my other problems. One of those statements that, contextually, can be made without fibbing in order to put forth an agenda but isn't really true either. I guess that would mean I don't have GRAS status either.. thank heavens! (I will have to tell my wife I am dangerous now.)

CS

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,225
    • Most Online (within 30 mins)
      7,748

    jhand
    Newest Member
    jhand
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...