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Soy; Bad Or Ok?
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9 posts in this topic

Is soy ok for celiacs to eat or is it one of those individual things like oatmeal?

Also, is being gluten sensitive have the same damaging effects on your villi as

a full blown celiac has? I dont get as sick as alot of people on here when glutenated

but I think I could be still getting the same damage as a full blown celiac, of which

I still consider myself a celiac. Sometimes the pain on my side is so bad I can barely

walk straight up.

Thanks.....Derrick

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Soy is gluten-free, but some people, including some celiacs, are unable to eat it. It is one of the FDA's top eight allergens, so it must be clearly disclosed on labels in the USA.

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Soy is an individual thing, Derrick. There do seem to be a lot of us who do not tolerate it, but gluten and soy sensitivities do not go hand in hand. Some people think it's bad for everyone because of its hormonal effect but soy is generally considered to be a safe edible.

As for damage from gluten, gluten has different damaging effects in each individual. To say it is worse or not as bad - well, it's hard to quantify. Would you rather have D and/or C with cramps, or gluten ataxia and brain fog, or have it silently attack some other part of your body like your thyroid? Or suddenly end up with lymphoma? You will never know until it shows up what damage it is doing. And it doesn't matter if you have a diagnosis or not, if you are sensitive to it it is harming you.

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Thanks for the replies. Love this board, really helps me.

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Soy SAUCE is not always gluten free. Some of it is made with wheat (check the label, it has to be disclosed in the US). Soy ALONE does not have gluten in it. However many do react to soy in various ways. I did a poll asking how many people here also avoid soy and the variety of reasons for avoiding it was wide. Some people might have an allergy, some might get the same symptoms from it as they get from glutening, some avoid it because they also have thyroid issues.

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Soy SAUCE is not always gluten free. Some of it is made with wheat (check the label, it has to be disclosed in the US). Soy ALONE does not have gluten in it. However many do react to soy in various ways. I did a poll asking how many people here also avoid soy and the variety of reasons for avoiding it was wide. Some people might have an allergy, some might get the same symptoms from it as they get from glutening, some avoid it because they also have thyroid issues.

thanks......soy sauce kills me just like a big mac would. found san j organic tamari sauce, good substitute.

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Soy is an individual thing, Derrick. There do seem to be a lot of us who do not tolerate it, but gluten and soy sensitivities do not go hand in hand. Some people think it's bad for everyone because of its hormonal effect but soy is generally considered to be a safe edible.

It is my understanding that, technically, soy has never been granted official GRAS (generally regarded as safe) status by the FDA. I will have to track down my source on that, though. Maybe Weston Price.. Price Pottinger.. Maybe Mercola.. Can't find it at present.

CS

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It is my understanding that, technically, soy has never been granted official GRAS (generally regarded as safe) status by the FDA. I will have to track down my source on that, though. Maybe Weston Price.. Price Pottinger.. Maybe Mercola.. Can't find it at present.

CS

A little common sense, please. The GRAS lists are for additives and flavorings, not for whole foods that are obviously edible. I doubt carrots or chicken have been granted official GRAS status either. Anyone trying to invoke lack of GRAS status for a whole food like soy has an axe to grind and if that's the best argument they can come up with, they're in sad shape.

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A little common sense, please. The GRAS lists are for additives and flavorings, not for whole foods that are obviously edible. I doubt carrots or chicken have been granted official GRAS status either. Anyone trying to invoke lack of GRAS status for a whole food like soy has an axe to grind and if that's the best argument they can come up with, they're in sad shape.

I consider myself educated now. Thank you. It is just something that stuck in the back of my mind from my early ventures into understanding gluten-free and all my other problems. One of those statements that, contextually, can be made without fibbing in order to put forth an agenda but isn't really true either. I guess that would mean I don't have GRAS status either.. thank heavens! (I will have to tell my wife I am dangerous now.)

CS

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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