Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Diagnosed As Ibs But Think It Is Something More..
0

7 posts in this topic

First off let me apologize if any of you read all boards here as posted also on the DH one here.

I have only been diagnosed as IBS so far and that was by a regular doc. Recently been seeing more and more of my symptoms taking after Crohn's or Celiac. I have gotten rashes all my life that docs always dismissed as contact dermatitis an allergic reaction etc.. The most common rashes I get are on hands and look like a bunch of clear tiny bubbles mostly on index finger but have gotten over complete palms before. Swolling and itching occurs! Most recently though I have gotten some on my forearms. They started out looking like just a couple bug bites then got white heads on them. They itch on and off. I am slowly getting several more. The only pics i have found of DH online looked quite extreme. So was wondering if anyone gets this and it varies on itching and or appearance?

I have other symptoms (no periods unless on the pill, stomach issues of course, been vomiting on and off for last couple of months this month has been three days already though and not in a row, prickling sensations in skin on legs on occasion, was having some anxiety and depression a few months back,loud tummy especially at night,mucusy bm's etc...).

For those of you who had vomiting before being diagnosed did it come on suddenly or slowly? I ask because i threw up once in July out of nowhere then also have had at least one day a month since then where I just have to get sick sometimes several times in one day. But then I feel fine. Well now this week I threw up several times on Wednesday was decent on Thursday then threw up once on Friday and once Saturday.

Also if you lost weight is this why because of the getting sick or did you feel fine and just dropped pounds becasue of no absorbing of the calories?

Thanks for any input. I have pics of my rash also if anyone wants to see.

~Steph

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi Steph-

My name is Heather.... I as well was previously diagnosed with IBS but I knew it was more once I became pregnant with my daughter. I got all the rest of the symptoms then when I was pregnant but I thought it was the pregnancy... It wasnt. After having my daughter I became very ill and everything was making me sick. Finally i went to a dietition and she spoke with me about Celiac Disease. I immediately began a gluten-free diet and it helped right away although it took a long timw to get to where I am now, which isnt perfect but is a lot better than I was, thats for sure. Anyway... I also have the skin conditions you mention... I get rashes that itch and burn when i get into water. I get little blisters on my hands but they feel like theyre under the skin coming up. im not sure that it is. They feel sore almost like a blood blister. I have been looking around about it and also say HD pics that looked horrible... Maybe we have it... I dont know.. i just wanted to let you know that youre not the only one!

0

Share this post


Link to post
Share on other sites

I have always had sensitive skin and get rashes very easily. I have gotten blisters on my scalp for years and once I knew about celiac disease I wondered if they were DH. I never had any blisters on my body until after I went gluten-free for a while and then had to go back on gluten for the biopsy. Before going gluten-free my diet was normally pretty low on gluten, but when I was gluten-free the blisters on my head went a way. When I was back on gluten, (I ate alot, everyday) I was eating more gluten in a day than I normally would in a week. I started to get this horribly itchy blistery rash all over my palms and fingers. It progressively got worse over the two months on gluten(spreading to my forearms and a few on my back and legs) and only lessened for a few days when we were on vacation by the beach. I think the salt water helped to dry them a bit, but they were still itchy. Once I was back on the gluten-free diet the blisters went away completely on my hands and body, except my scalp. I always know when I have gotten gluten because my scalp breaks out and if it was a lot of gluten my fingers get blisters. I am pretty sure this is DH. I did find one picture of DH on the hand and it did look similar to mine, but they mostly show the bad cases of DH online. I'll look around and see if I can find it again and post a link here.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Thanks Mariann and Heather,

i do live in a very salty air region also! (Okinawa Japan) which I know they have said the salt air and coral dust in the air here can cause lots of people to get excema over here (my husband developed it) but these are definitly not that as I have had patches of excema too. So maybe the salt has kept the others (DH?)in check! Never thought of that. I know the times i got it on my hands it was horrible in highschool I could not even drive my hands were so swollen and itchy! Wish I had pictures of those to compare to the ones online. Mine looks similar to the ones i did find online but hard to tell for sure since mine is not as severe and all rashes start looking similar after awhile ha ha. Just looked at my pics I took and they are rather blurry so going to try and get clearer ones. My scalp has been itchy lately too and I know I used to get scabs in it occasionally but thought it was build up but now hmmm maybe it was related also. Heather I also used to get the ithces that were worse in water (especially down front of lower legs)but I figured it was just because i had scratched myself like crazy in the sleep so my skin was raw.

Thanks again you two!

0

Share this post


Link to post
Share on other sites

Another thing about my hand rash, is that it was extremely painful on the palms. Almost like the nerves were being poked with needles. And anytime I get surprised or something bothers me a lot, I get that same prickly feeling in my hands. I think it is still effecting the nerves (I've only been gluten-free for going on 8 weeks), and I am hoping it will go away. The ocean air might be keeping your rash down to a minimum. It will be interesting to see what they say when you get to England.

Here is that link I said I'd post. Now her thumb looks the worst, but if you look at the section of palm that is showing you can see more small pin prick like blisters and red marks. That is what my entire palm would look like and I would only have about 2 or 3 bad ones like she has on her thumb. I still have scars from the bad ones...

http://www.nlm.nih.gov/medlineplus/ency/im...llsize/2674.jpg

Mariann

0

Share this post


Link to post
Share on other sites




Yup Mariann that is the photo I had seen and looked the closest to what I got especially that one blister on her thumb closest to the hand that is by itself. That is what all mine pretty much look like. So weird. I find that the aveeno oatmeal lotion works good and of course cold water if they start itching. Thanks for posting

0

Share this post


Link to post
Share on other sites

When I was 15, I broke out in a terrible itchy, weepy rash all over my legs, ankles and face, then finally my arms. The allergist's and dermatologist used me as a guinea pig for several years and when they could not help told my mom to take my to a psychologist, because it was anxiety that was causing the problem. Then our holistic doctor suggested my parents take me to the ocean for several weeks and get me in to the salt water every day. Believe my, every morning when I woke up my bed looked like it was full of corn flakes as it healed. The ocean water and salt water seems to be what really helped. Of course, 50 years later it was discovered I had Celiac disease and now my rashes are dwindling and I can control them with a 1% OTC hydrocortizone ointment. My only salvation was that during college, the rash got really bad again so my folks brought me back to San Diego for the ocean water and I met my husband, married him six months later and have lived near the ocean since. Believe me, the ocean has kept me sane, many times from the itching. Shirley

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,878
    • Total Posts
      919,449
  • Topics

  • Posts

    • So I've been glutened....
      That sounds like a plan JMG.  If things aren't working then make a change, hopefully a positive change.  It seems to me we have more noticeable symptoms sometimes after being gluten-free a while.  I made a mistake last night and ate some tuna canned in water.  It definitely wasn't boring.  I usually have more sense than to eat tuna canned in water but screwed up last night.  They canned  it in broth of some sort.  Ingredients say vegetable broth and soy.  Yuck, not good for me.  It sure tasted good though, just ouch.  I am not saying it had gluten in it, but it does have soy and some kind of unnamed veggie monsters.  So it could be soy, or carrots or some other disgusting vegetable that got me.   Not all celiacs have additional food intolerances beyond gluten, but some do.  My gut could testify to that.  Anyway, if you have bloating, cut out all carbs and sugar for starters.  And try peppermint tea or Altoids.  Over here we have something called Pepto Bismol that helps soothe gut pain and another neat thing called aspirin.  And gluten-free beer as needed.  
    • Gluten free apparently not helping entirely
      Jean, Maybe your boss can find you a job in the office for a while?  It's worth asking maybe? It's not easy being on constant travel with celiac disease but it can be done.  Your effort to find safe food is going to be harder than most but it is not impossible.  But if you can't manage it you should really think about getting a non-travel job.  Your boss may be willing to work with you on an office position, even if it's temporary.  That would give you some time to look for a local job and also eat a safer diet. It's really up to you to control your diet and make sure it is safe.  If you can't figure out how to  do that while traveling you owe it to yourself to figure a way out of the travel. Celiac disease isn't always fun and games.  Not always.   I hope you find a way to improve your circumstances.
    • Gluten Free baby food pouches?
      Anyone know of any baby food pouches that are gluten free?  We love to have them on the go for our kids (not just baby), but I have no idea which ones to get now!  We used to get Meijer brand and Plum.   Thanks!
    • gluten free, oat free, egg free breakfast ideas needed for 6 year old
      Thanks for everyone's suggestions!  I think I felt at a loss when we had to cut oats- we used to do cheerios and oatmeal regularly and now those are out.  She has a sensitivity to oats as well as wheat/barley/rye. 
    • So I've been glutened....
      The bloating has, if anything, got worse. It seems better when I'm lay down, when I stand it gets worse. Although the lymph swelling has gone down so maybe I'm through the worst. Hope so anyway... I never used to get a great deal of GI symptoms. Certainly not so serious as the other stuff. It's making me wonder if I just react differently now having been gluten-free for some time. I've noticed lot's of you saying that reactions seem to change over time. Of course its possible the other stuff was masking the GI things. I almost dont trust my memory of those times anymore because a whole chunk of my life seems to have been lived through a brain fog. Tomorrow I'm thinking of going away for a couple of days, maybe just taking some ultra simple food with me so I can try and settle my stomach by boring it into submission      
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,920
    • Most Online
      1,763

    Newest Member
    Stensco28
    Joined