Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Bladder Spasms And Pain
0

17 posts in this topic

Anyone out there get bladder issues like spasms or pain after being glutened? I was glutened last week. Had my typical gas, huge bloating, big D, DH rash on knee. The last few times that I was glutened through CC, I get bladder issues after the intestinal ones. Anyone else?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Anyone out there get bladder issues like spasms or pain after being glutened? I was glutened last week. Had my typical gas, huge bloating, big D, DH rash on knee. The last few times that I was glutened through CC, I get bladder issues after the intestinal ones. Anyone else?

i dont know about spasms... but if i have too much fructose, or too many fructans i feel like im getting a bladder infection.

and in the past when i ate more than a little gluten, i also felt like i was getting a bladder infection.

i have a really sensitive or small bladder- and im wondering if its Interstitial Cystitis that is pretty much gone when i dont eat gluten or excess fructose. ???

0

Share this post


Link to post
Share on other sites

I also feel like I have a bladder infection when I eat something I shouldn't have (by accident).

0

Share this post


Link to post
Share on other sites

Yes, me too. Very painful as if there is an infection, but when they culture it is negative for bacteria, but I still have the severe spasms and symptoms of bladder infection if I get gluten. I'm glad you brought this up as I was wondering too.

0

Share this post


Link to post
Share on other sites

I get the same thing. That's partly how this started, I've had cramps for two years despite a hysterectomy, and many tests they still were there. Turns out the 'cramps' are bladder and rectal spasms and they are better now that I'm gluten free. I still get them from time to time but I'm still healing so it's expected that it wouldn't be 100%

0

Share this post


Link to post
Share on other sites




BTW, other food allergies/intolerances cause this for me too. One of my only symptoms of my recent problems with avocado is a feeling like I have a bladder infection. That was a fun one to try to figure out. :P

0

Share this post


Link to post
Share on other sites

Just wanted to pop in and add that my primary symptom of gluten exposure feels like a bladder infection, but may actually be interstitial cystitis that is aggravated by the gluten.

Tips for feeling better quick:

Steep some looseleaf nettle tea for 10 minutes, and drink up. I believe the antihistamine properties make me feel better within an hour. Linden tea is also quite nice.

A hot pad over the lower abdomen is lovely for the spasms. You might also try a castor oil pack, covered by the hot pad. I did this nightly for months, while drinking nettle tea, as I was getting better.

Also, check out Wendy Cohan's The Better Bladder Book, in which she draws a strong connection between gluten and bladder trouble. (Moderator, I'm not trying just to sell her book. She did save me, and my bladder, and the peeps here should know about it.)

You only get one bladder, be nice to it!

0

Share this post


Link to post
Share on other sites

Just wanted to pop in and add that my primary symptom of gluten exposure feels like a bladder infection, but may actually be interstitial cystitis that is aggravated by the gluten.

Tips for feeling better quick:

Steep some looseleaf nettle tea for 10 minutes, and drink up. I believe the antihistamine properties make me feel better within an hour. Linden tea is also quite nice.

A hot pad over the lower abdomen is lovely for the spasms. You might also try a castor oil pack, covered by the hot pad. I did this nightly for months, while drinking nettle tea, as I was getting better.

Also, check out Wendy Cohan's The Better Bladder Book, in which she draws a strong connection between gluten and bladder trouble. (Moderator, I'm not trying just to sell her book. She did save me, and my bladder, and the peeps here should know about it.)

You only get one bladder, be nice to it!

Just prior to my celiac dx I was running to the bathroom for both reasons. I seemed to have had the painful overactive and spasming bladder while having loose bowels. I had many scans and tests but the doctors did not tell me what was wrong with my bladder.

AFter seeing 3 urologists, the last one told me my bladder wall was thickened and since I had no infection it was non neurogenic neurogenic bladder voiding dysfunction.... huh? I seem to get relief when I take celebrex but I am worried about taking too much celebrex because I am still healing my gut. I have been gluten free for almost 2 years, so I am afraid that the damage has been done, now I just need to keep the symptoms from flaring up.

anyone out there have non neurogenic bladder?

0

Share this post


Link to post
Share on other sites

Good timing with this post. I have been gluten-free for 10 months and have never had this symptom until this last week. I have had many bladder infections before but this was different. I have never had actual cramping in the bladder before and this time I did, and bad. I had a culture done and doc gave me a week of antibiotics. However, I am positive I did not have any gluten. I wonder if other foods can create the same reaction? Could just be this was anotehr bladder infection but it did not feel like the typical symptoms I normally have.

0

Share this post


Link to post
Share on other sites

Good timing with this post. I have been gluten-free for 10 months and have never had this symptom until this last week. I have had many bladder infections before but this was different. I have never had actual cramping in the bladder before and this time I did, and bad. I had a culture done and doc gave me a week of antibiotics. However, I am positive I did not have any gluten. I wonder if other foods can create the same reaction? Could just be this was anotehr bladder infection but it did not feel like the typical symptoms I normally have.

I do think that other foods can cause this. I know that for me, corn syrup gives me bladder pain.

Hopefully you are feeling better by now!

:)

0

Share this post


Link to post
Share on other sites

I do think that other foods can cause this. I know that for me, corn syrup gives me bladder pain.

Hopefully you are feeling better by now!

:)

I feel terribly stupid at this point. My bladder pain and kidney pain came back about a week after being off antibiotics. I went to an online symptom checker and it came up with vitamin toxicity. I have red so much on vits and I am very careful. Unfortunately I think I made a mistake without even thinking twice and I thinks it is what has been costing me.

This past fall I was having real trouble with my eyes and started taking 3 tabs of cod liver oil a day and it made all my eye issues go away except some long distance blurring (20/20 long distance vision). When my multi vit ran out I replaced it without looking at the amount of A. After seeing the result of the symptoms checker I looked at my multi and calculated what I was taking in with my cod liver, ugh, a total of 6250 IUs and I was eating fish, chicken, leafy greens and carrots on top of that. Sp probably a minimum of 7000 IUs daily of vit A since Nov. Of course I have yet to confirm this with my doc, appt on Thurs.

However, I have stopped all vits except Milk Thistle to decongest the liver and I am on a liquid diet the clear my system.

0

Share this post


Link to post
Share on other sites

That was my main symptom when they were trying to figure out what I had. The ob said I had interstitial cystitis and the gastro Dr. finally said celiac and called the ob and told him he was wrong. It was quite a production. Two headstrong Dr.s both saying they were right. Never want to repeat that again. This aspect of celiac needs to be further researched. It would be worth a call to Gluten Free Living Magazine and ask them if they could ever do an article on this.

0

Share this post


Link to post
Share on other sites

A hot pad over the lower abdomen is lovely for the spasms. You might also try a castor oil pack, covered by the hot pad. I did this nightly for months, while drinking nettle tea, as I was getting better.

So is a warm purring cat! LOL I'm serious! good for cramps and tummy aches! The bigger the cat and the stronger the purrr...the vibrations are amazing! I know how funny this sounds...but I used to have asilver gray cat named Boo...and whenever I would feel rotten he would lay down on the exact spot (without ever being prompted) and his purring would make me feel better! I used to call him my little "chakra tuner"! LOL

And yes Gluten and Dairy also give me sharp pains and or feelings of bladder infection..or having to pee CONSTANTLY (I thought I had incontenance, but my Dr. said it was also one of many symtoms of celiacs)! :blink::D

1

Share this post


Link to post
Share on other sites

Good timing with this post. I have been gluten-free for 10 months and have never had this symptom until this last week. I have had many bladder infections before but this was different. I have never had actual cramping in the bladder before and this time I did, and bad. I had a culture done and doc gave me a week of antibiotics. However, I am positive I did not have any gluten. I wonder if other foods can create the same reaction? Could just be this was anotehr bladder infection but it did not feel like the typical symptoms I normally have.

yes, I have been cramping in my bladder for months now. I am going for bladder re-training therapy and bio feedback. Its awful not to be able to drink a lot of water because my bladder just

freaks out. My pt said that almost half her bladder re-trainig patients have celiac!! I have bladder wall thickening and she said its probably collagen thats built up over the years from the constant inflammation from gluten. I have been gluten free for several years now, so I am beginning to suspect another intolerance like peanut butter and hummus, which I eat alot of both...

anyone with a peanut intolerance out there have bladder spasming issues???

0

Share this post


Link to post
Share on other sites

yes, I have been cramping in my bladder for months now. I am going for bladder re-training therapy and bio feedback. Its awful not to be able to drink a lot of water because my bladder just

freaks out. My pt said that almost half her bladder re-trainig patients have celiac!! I have bladder wall thickening and she said its probably collagen thats built up over the years from the constant inflammation from gluten. I have been gluten free for several years now, so I am beginning to suspect another intolerance like peanut butter and hummus, which I eat alot of both...

anyone with a peanut intolerance out there have bladder spasming issues???

Very interesting! When I met with doc this week he told me he thought I had an over-active baldder which I have to say, I don't think is the case but I do have a referral to urology.

As far as peanut butter, it is on the high oxalate food list. No sure if that could be giving you issues or not. I am taking them out of my diet.

0

Share this post


Link to post
Share on other sites

Quincy,

Ask your pt if he has any articles he has written on this subject or ask him to write an article. I am very interested if he has further info on this subject since my ob who is the bladder specialist in this town, does not know that celiac can cause bladder issues! He just thinks I'm crazy. I just had a hyst. due to bladder, uterus pain. So this of extreme interest to me. PM me if get further info or a web site or anything further on this issue. Thanks so much.

0

Share this post


Link to post
Share on other sites

Very interesting! When I met with doc this week he told me he thought I had an over-active baldder which I have to say, I don't think is the case but I do have a referral to urology.

As far as peanut butter, it is on the high oxalate food list. No sure if that could be giving you issues or not. I am taking them out of my diet.

Did you get any resolution to your bladder symptoms? I still am improving but its still uncomfortable: it feels like a UTI but there is never any infection or blood in the urine. some of us

might have painful bladder syndrome (PBS) or Overactive bladder syndrome (OBS) or IC interstitial cystitis.

my naturopath doctor recently emailed me this statement about the latest theory of IC : "one of the theories about IC is that it is the liver not quenching or processing the metabolites fast enough (or a leaky gut that's recycing things several times making the liver repeat everything!)"

I don't fully understand what she means here and I will ask her when I see her this Thursday. keep you posted. If anyone reads this post and wants to provide an update on bladder problems please do because this has been a major quality of life issue for many of us....

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,592
    • Total Posts
      918,290
  • Topics

  • Posts

    • Allergy or Preference? Waiter asks
      At my local Five Guys, I told the counter guy that I had to avoid gluten for medical reasons. I was ordering a burger with no bun and some fries. He yelled back "Allergy Alert!" and every line cook immediately changed gloves and cleaned their work space. Will I go back? You bet I will!
    • celiac disease is psychosomatic
      The office is located in another city than location I went to. There is no receptionist at the location cloest to me meaning patients wait for the doctor to open her closed door to call their name for consult. So, I would have to knock on her door which would really make her say that I'm sick since I keep writing letters AND show up in person. The main office is too far for me to travel with construction going on for remainder of the year. I suppose I could mail the letter instead But the staff is very irresponsible so it might be thrown away. The doctor probably told them that nothing needed correction in my records so ignore further requests from me.
    • celiac disease is psychosomatic
      The letter I am suggesting has nothing to do with the doctor.  I would type it and walk it to the desk when are in the building for your other appointment. 
    • celiac disease is psychosomatic
      Thanks. I'm not sure if the doctor will read another email I send and that's the way I'm told by staff to contact her. It will just confirm that I keep writing her letters although I only sent her one email about it! I already told the staff and her that I didn't want my medical records sent to any doctor's office, but I don't know if they will do it out of spite. It was scary talking to this doctor because she wouldn't listen or let me get a word in...I guess that's the reason why I feel the need to raise my voice at this office. When I requested a Lyme disease prescription from another doctor years ago before I knew I had celiac disease, this ignorant doctor told me not to come back to his office because there's no such thing as Lyme disease so only crazy people think they have it. I thought that was the worst experience I had with a doctor, but this experience was worse. I mean this neuropsychiatrist kept calling me a sick person over and over. It's so scary dealing with doctors like this. I really don't know how many other doctors may have wrote in my records that my symptoms are all in my head because celiac disease isn't real.   And my neurologist said this neuropsychiatrist was great. Maybe he says that about all the doctors he refers to patients to? I don't know if you call her personality psychopath since she appeared really nice during my consult, but she was thinking all this negative s*** in her mind at the time or different than she appeared to be.
    • Nature's Bounty Protein & Vitamin Shake Mix
      Sort of funny.  Says no wheat at the bottom but also says this " Other Ingredients: Proprietary Protein Blend (Soy Protein Isolate, Whey Protein Concentrate), Cocoa (processed with alkali), Inulin, Oat Fiber, Fructose, Natural Flavors, Maltodextrin, Soy Lecithin, Tricalcium Phosphate, Xanthan Gum. Contains milk and soy ingredients. Contains wheat ingredients.   I bet they do not use gluten free oats, so its a bit of a gamble.  Not one a Celiac should take as there is no such thing as "not severe Celiac".  Even if you don't feel the damage, consuming gluten will start damaging you.  Maybe its just catching up with you.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,690
    • Most Online
      1,763

    Newest Member
    jilord
    Joined