Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Bladder Spasms And Pain
0

17 posts in this topic

Anyone out there get bladder issues like spasms or pain after being glutened? I was glutened last week. Had my typical gas, huge bloating, big D, DH rash on knee. The last few times that I was glutened through CC, I get bladder issues after the intestinal ones. Anyone else?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Anyone out there get bladder issues like spasms or pain after being glutened? I was glutened last week. Had my typical gas, huge bloating, big D, DH rash on knee. The last few times that I was glutened through CC, I get bladder issues after the intestinal ones. Anyone else?

i dont know about spasms... but if i have too much fructose, or too many fructans i feel like im getting a bladder infection.

and in the past when i ate more than a little gluten, i also felt like i was getting a bladder infection.

i have a really sensitive or small bladder- and im wondering if its Interstitial Cystitis that is pretty much gone when i dont eat gluten or excess fructose. ???

0

Share this post


Link to post
Share on other sites

I also feel like I have a bladder infection when I eat something I shouldn't have (by accident).

0

Share this post


Link to post
Share on other sites

Yes, me too. Very painful as if there is an infection, but when they culture it is negative for bacteria, but I still have the severe spasms and symptoms of bladder infection if I get gluten. I'm glad you brought this up as I was wondering too.

0

Share this post


Link to post
Share on other sites

I get the same thing. That's partly how this started, I've had cramps for two years despite a hysterectomy, and many tests they still were there. Turns out the 'cramps' are bladder and rectal spasms and they are better now that I'm gluten free. I still get them from time to time but I'm still healing so it's expected that it wouldn't be 100%

0

Share this post


Link to post
Share on other sites




BTW, other food allergies/intolerances cause this for me too. One of my only symptoms of my recent problems with avocado is a feeling like I have a bladder infection. That was a fun one to try to figure out. :P

0

Share this post


Link to post
Share on other sites

Just wanted to pop in and add that my primary symptom of gluten exposure feels like a bladder infection, but may actually be interstitial cystitis that is aggravated by the gluten.

Tips for feeling better quick:

Steep some looseleaf nettle tea for 10 minutes, and drink up. I believe the antihistamine properties make me feel better within an hour. Linden tea is also quite nice.

A hot pad over the lower abdomen is lovely for the spasms. You might also try a castor oil pack, covered by the hot pad. I did this nightly for months, while drinking nettle tea, as I was getting better.

Also, check out Wendy Cohan's The Better Bladder Book, in which she draws a strong connection between gluten and bladder trouble. (Moderator, I'm not trying just to sell her book. She did save me, and my bladder, and the peeps here should know about it.)

You only get one bladder, be nice to it!

0

Share this post


Link to post
Share on other sites

Just wanted to pop in and add that my primary symptom of gluten exposure feels like a bladder infection, but may actually be interstitial cystitis that is aggravated by the gluten.

Tips for feeling better quick:

Steep some looseleaf nettle tea for 10 minutes, and drink up. I believe the antihistamine properties make me feel better within an hour. Linden tea is also quite nice.

A hot pad over the lower abdomen is lovely for the spasms. You might also try a castor oil pack, covered by the hot pad. I did this nightly for months, while drinking nettle tea, as I was getting better.

Also, check out Wendy Cohan's The Better Bladder Book, in which she draws a strong connection between gluten and bladder trouble. (Moderator, I'm not trying just to sell her book. She did save me, and my bladder, and the peeps here should know about it.)

You only get one bladder, be nice to it!

Just prior to my celiac dx I was running to the bathroom for both reasons. I seemed to have had the painful overactive and spasming bladder while having loose bowels. I had many scans and tests but the doctors did not tell me what was wrong with my bladder.

AFter seeing 3 urologists, the last one told me my bladder wall was thickened and since I had no infection it was non neurogenic neurogenic bladder voiding dysfunction.... huh? I seem to get relief when I take celebrex but I am worried about taking too much celebrex because I am still healing my gut. I have been gluten free for almost 2 years, so I am afraid that the damage has been done, now I just need to keep the symptoms from flaring up.

anyone out there have non neurogenic bladder?

0

Share this post


Link to post
Share on other sites

Good timing with this post. I have been gluten-free for 10 months and have never had this symptom until this last week. I have had many bladder infections before but this was different. I have never had actual cramping in the bladder before and this time I did, and bad. I had a culture done and doc gave me a week of antibiotics. However, I am positive I did not have any gluten. I wonder if other foods can create the same reaction? Could just be this was anotehr bladder infection but it did not feel like the typical symptoms I normally have.

0

Share this post


Link to post
Share on other sites

Good timing with this post. I have been gluten-free for 10 months and have never had this symptom until this last week. I have had many bladder infections before but this was different. I have never had actual cramping in the bladder before and this time I did, and bad. I had a culture done and doc gave me a week of antibiotics. However, I am positive I did not have any gluten. I wonder if other foods can create the same reaction? Could just be this was anotehr bladder infection but it did not feel like the typical symptoms I normally have.

I do think that other foods can cause this. I know that for me, corn syrup gives me bladder pain.

Hopefully you are feeling better by now!

:)

0

Share this post


Link to post
Share on other sites

I do think that other foods can cause this. I know that for me, corn syrup gives me bladder pain.

Hopefully you are feeling better by now!

:)

I feel terribly stupid at this point. My bladder pain and kidney pain came back about a week after being off antibiotics. I went to an online symptom checker and it came up with vitamin toxicity. I have red so much on vits and I am very careful. Unfortunately I think I made a mistake without even thinking twice and I thinks it is what has been costing me.

This past fall I was having real trouble with my eyes and started taking 3 tabs of cod liver oil a day and it made all my eye issues go away except some long distance blurring (20/20 long distance vision). When my multi vit ran out I replaced it without looking at the amount of A. After seeing the result of the symptoms checker I looked at my multi and calculated what I was taking in with my cod liver, ugh, a total of 6250 IUs and I was eating fish, chicken, leafy greens and carrots on top of that. Sp probably a minimum of 7000 IUs daily of vit A since Nov. Of course I have yet to confirm this with my doc, appt on Thurs.

However, I have stopped all vits except Milk Thistle to decongest the liver and I am on a liquid diet the clear my system.

0

Share this post


Link to post
Share on other sites

That was my main symptom when they were trying to figure out what I had. The ob said I had interstitial cystitis and the gastro Dr. finally said celiac and called the ob and told him he was wrong. It was quite a production. Two headstrong Dr.s both saying they were right. Never want to repeat that again. This aspect of celiac needs to be further researched. It would be worth a call to Gluten Free Living Magazine and ask them if they could ever do an article on this.

0

Share this post


Link to post
Share on other sites

A hot pad over the lower abdomen is lovely for the spasms. You might also try a castor oil pack, covered by the hot pad. I did this nightly for months, while drinking nettle tea, as I was getting better.

So is a warm purring cat! LOL I'm serious! good for cramps and tummy aches! The bigger the cat and the stronger the purrr...the vibrations are amazing! I know how funny this sounds...but I used to have asilver gray cat named Boo...and whenever I would feel rotten he would lay down on the exact spot (without ever being prompted) and his purring would make me feel better! I used to call him my little "chakra tuner"! LOL

And yes Gluten and Dairy also give me sharp pains and or feelings of bladder infection..or having to pee CONSTANTLY (I thought I had incontenance, but my Dr. said it was also one of many symtoms of celiacs)! :blink::D

1

Share this post


Link to post
Share on other sites

Good timing with this post. I have been gluten-free for 10 months and have never had this symptom until this last week. I have had many bladder infections before but this was different. I have never had actual cramping in the bladder before and this time I did, and bad. I had a culture done and doc gave me a week of antibiotics. However, I am positive I did not have any gluten. I wonder if other foods can create the same reaction? Could just be this was anotehr bladder infection but it did not feel like the typical symptoms I normally have.

yes, I have been cramping in my bladder for months now. I am going for bladder re-training therapy and bio feedback. Its awful not to be able to drink a lot of water because my bladder just

freaks out. My pt said that almost half her bladder re-trainig patients have celiac!! I have bladder wall thickening and she said its probably collagen thats built up over the years from the constant inflammation from gluten. I have been gluten free for several years now, so I am beginning to suspect another intolerance like peanut butter and hummus, which I eat alot of both...

anyone with a peanut intolerance out there have bladder spasming issues???

0

Share this post


Link to post
Share on other sites

yes, I have been cramping in my bladder for months now. I am going for bladder re-training therapy and bio feedback. Its awful not to be able to drink a lot of water because my bladder just

freaks out. My pt said that almost half her bladder re-trainig patients have celiac!! I have bladder wall thickening and she said its probably collagen thats built up over the years from the constant inflammation from gluten. I have been gluten free for several years now, so I am beginning to suspect another intolerance like peanut butter and hummus, which I eat alot of both...

anyone with a peanut intolerance out there have bladder spasming issues???

Very interesting! When I met with doc this week he told me he thought I had an over-active baldder which I have to say, I don't think is the case but I do have a referral to urology.

As far as peanut butter, it is on the high oxalate food list. No sure if that could be giving you issues or not. I am taking them out of my diet.

0

Share this post


Link to post
Share on other sites

Quincy,

Ask your pt if he has any articles he has written on this subject or ask him to write an article. I am very interested if he has further info on this subject since my ob who is the bladder specialist in this town, does not know that celiac can cause bladder issues! He just thinks I'm crazy. I just had a hyst. due to bladder, uterus pain. So this of extreme interest to me. PM me if get further info or a web site or anything further on this issue. Thanks so much.

0

Share this post


Link to post
Share on other sites

Very interesting! When I met with doc this week he told me he thought I had an over-active baldder which I have to say, I don't think is the case but I do have a referral to urology.

As far as peanut butter, it is on the high oxalate food list. No sure if that could be giving you issues or not. I am taking them out of my diet.

Did you get any resolution to your bladder symptoms? I still am improving but its still uncomfortable: it feels like a UTI but there is never any infection or blood in the urine. some of us

might have painful bladder syndrome (PBS) or Overactive bladder syndrome (OBS) or IC interstitial cystitis.

my naturopath doctor recently emailed me this statement about the latest theory of IC : "one of the theories about IC is that it is the liver not quenching or processing the metabolites fast enough (or a leaky gut that's recycing things several times making the liver repeat everything!)"

I don't fully understand what she means here and I will ask her when I see her this Thursday. keep you posted. If anyone reads this post and wants to provide an update on bladder problems please do because this has been a major quality of life issue for many of us....

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,116
    • Total Posts
      919,451
  • Topics

  • Posts

    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,155
    • Most Online
      1,763

    Newest Member
    AndiR
    Joined