Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Depression Question


Mama Melissa

Recommended Posts

Mama Melissa Enthusiast

Hey,

I just wanted to know if anyone here fights bouts of severe depression and feeling hopeless with the diet even when you know your 100% gluten free,i find one of my earlier symptoms before diagnosis was depression and now i do go through phases of severe bouts still although not as long lasting as before diagnosis,it really impacts my life.I wanted to know if anyone here has the same problem and how they combated it??also how long did it take if ever for the diet to get rid of the depression??I'm seriously concidering maybe medicating for atleast the next few months until the diet kicks in a little longer:(

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I found that just being diagnosed with a life long condition is a stress and a bit depressing. The stress of being gluten-free can get to you. It's extra work and worry even in the best of circumstances. You can be going along fine, then suddenly, something stupid, like reading labels in a busy grocery will make you sad. I try to find humor in it if I can. Just wanting to say that some depression is normal but if you feel it's a bit unmanageable...it's Ok to get help.

Link to comment
Share on other sites
curiousgirl Contributor

I found that just being diagnosed with a life long condition is a stress and a bit depressing. The stress of being gluten-free can get to you. It's extra work and worry even in the best of circumstances. You can be going along fine, then suddenly, something stupid, like reading labels in a busy grocery will make you sad. I try to find humor in it if I can. Just wanting to say that some depression is normal but if you feel it's a bit unmanageable...it's Ok to get help.

Absolutely! I had a lot of anxiety too. At this moment and for a good part of the day, I'm feeling pretty sad. And, it's not just the blues, it's more of a PHYSICAL sadness I FEEL in my chest/heart chakra. It seems there is a difference between being mentally sad...does that make sense to anyone??

But, then it is that time of year and I'm having a new procedure for my motor neuropathy (or CIDP) called ivig. I've had a nurse here (home) for 3 days in a row for 4-5 hours each day and one more day tomorrow...for me, it's difficult to have someone in my space for that amount of time. I don't know...maybe i was glutened afterall.

I just remind myself that in a few days, I'll be ok. I hope that thought helps you get through it.

Hugs

Link to comment
Share on other sites
Mama Melissa Enthusiast

i know i appreciate it but is this what i have to look foward to FOREVER??Will my deoression ever go away with this diet or will it always return?? that in itself is enough to keep me depressed:(

Link to comment
Share on other sites
curiousgirl Contributor

i know i appreciate it but is this what i have to look foward to FOREVER??Will my deoression ever go away with this diet or will it always return?? that in itself is enough to keep me depressed:(

Yes it will get better...

Link to comment
Share on other sites
Mama Melissa Enthusiast

thank you curious :) how long have you been on the diet?? i have almost 3 1/2 months

Link to comment
Share on other sites
Ox on the Roof Apprentice

Melissa, I haven't been gluten-free long enough to answer your initial question, but I just wanted to say that I am sorry you are depressed. Last year, when I was REALLY sick, I became extremely depressed. My B12 and D levels were in the basement, but I wasn't diagnosed with the deficiencies for months. We had to move in with my in-laws (thankfully they are amazing and I love them dearly) and I couldn't care for my kids or husband. It was so hard!

Of course, this time of year sometimes aggravates depression. And if you are, indeed, a Mama, that can make things more difficult when you are trying to get yourself well.

Have you had your vitamin levels checked? Mine wasn't ALL vitamins, but getting those up helped a lot. And of course there is nothing wrong with getting on medication if you need it. You don't have to stay on it forever.

I hope you feel better very soon.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mari Explorer

Long before I went gluten-free I found that using loads of turmeric helped the kind of depression you described. I took capsules, make a paste and spread it on different foods, there are lots of recipes online for theraputic use. Later I started taking iodine drops after meals. These remedies both work if the depression is being caused by enteric bacteria producing toxins which cause depression.

Link to comment
Share on other sites
Mama Melissa Enthusiast

ox you hit the nail on the head i have 2 young children who i now stay home with fulltime, i was part time employed but due to celiac i stopped waitresing with food problems didnt think it mixed well.Mari im not sure what it is caused by as that was one of my nagging symptoms before i got diagnosed,also my father is a manic depressive and i think those things might be herditary:(Boy sometimes i think the mental is worse than the physical symptoms.Thank you ladies for your time i love this board<3

Link to comment
Share on other sites
Mama Melissa Enthusiast

oh and ox i did have normal blood tests which showed i did not have anemia but i am going to vitamins panels soon if that is the case it would explain alot:)

Link to comment
Share on other sites
Ox on the Roof Apprentice

Girl, I hear you. I have three of them (8,5 and 3) AND we homeschool. The doctors kept telling me that I was having anxiety and hinting that it was because my kids were stressing me out. They didn't get it - taking care of my kids is my THING! I quit working because I wanted to be with them. But when you are sick, it is very, very hard.

Of course, I might have had anxiety (this weird internal shaking, and random panic attack-like episodes) because my B12 was very low, but since they didn't test for it, they had to come up with something. I got on the B12 injections and mega-doses of D, and after about a month the neuro stuff (including depression) began to fade away like a very bad dream. Unfortunately, the gastro symptoms continued, so here I am, trying to see if gluten is the culprit.

Here's a big (((HUG))) from an understanding mama!

Link to comment
Share on other sites
kareng Grand Master

ox you hit the nail on the head i have 2 young children who i now stay home with fulltime, i was part time employed but due to celiac i stopped waitresing with food problems didnt think it mixed well.Mari im not sure what it is caused by as that was one of my nagging symptoms before i got diagnosed,also my father is a manic depressive and i think those things might be herditary:(Boy sometimes i think the mental is worse than the physical symptoms.Thank you ladies for your time i love this board<3

Mellissa, if it runs in the family, a little medical help might be a good idea. From what I have seen on here, it can take a year or so for neuro problems to go away. Getting vitamin levels where they should be helps a lot. Do something silly everyday with your kids. It really helps. Might I suggest ping pong balls and plastic spatulas or hair brushes?

Link to comment
Share on other sites
Ox on the Roof Apprentice

Melissa, if you haven't had that tested, get it done as soon as you can! If those two are low, you can feel psycho, depressed, you name it. It's such an easy, cheap fix! But until your gut is healed, you'll need to do B12 by injection. I think you may be able to do sublingual, too.

Link to comment
Share on other sites
Ox on the Roof Apprentice
Do something silly everyday with your kids.

YES. It's hard to make yourself want to do it, but just pick something easy. I bought one of those silly plug-n-play Pac Man games and we took turns playing. (Don't call the truant officer! :lol: ) Also, we were living with my in-laws and my mother-in-law would drag me to the park, to the zoo, wherever. Just to get me out of the house. It didn't make me feel less sick, but it passed the time and I felt that the kids were getting outdoors and living a bit.

Link to comment
Share on other sites
Cypressmyst Explorer

My little black cloud went away at about the three month mark, however I also have a relatively stress free life so others mileage may vary.

The world is so much brighter without that constant shade of grey, life really feels wonderful and worth living. :D

Now one of my glutening symptoms is depression for a day or two afterwards...but at least I know the cause! B)

Link to comment
Share on other sites
curiousgirl Contributor

Mama, I;ve been gluten free for 7 months now. However, I'm what we call a silent celiac. I never had D or vomiting, or pains in gut. But, my symptoms among depression, C, crankiness, anxiety, achy muscles and joints, were not being able to get up and and stay out of bed for a few days...absolutely NO energy. I'm diabetic too so some of that is because of sugars being high or low.

May I suggest that if you have a dog or a cat, get one of those laser lights...they'll chase it around wherever you shine it...they'll get you rolling on the floor and laughing out loud. if you don't have a pet, maybe you could get one...something you can hug; let sit on your lap, lick your face, purr in your ear, look at you with unconditional love, enjoy making you laugh????

I recently wanted to temporarily discontinue receiving notifications from this site. I receive so many every day, some of my other "personal" emails had been slipping through the cracks. And, I felt I just needed a break. But, I think I've changed my mind...I can always choose to read the ones that are close to my heart. I really don't know what I'd do if this site wasn't available!

Are you feeling better now?

Link to comment
Share on other sites
debnak Newbie

I'm so thankful for everyone's posts about depression. I have suffered from depression my entire life. I was diagnosed with Celiac's in 2004 but when I try to follow the diet I get so angry and depressed that I cave in and eat gluten because it's easier. I'm not sure which depression is worse, the kind I'm used to or the new feeling when I know I can't have what I want to eat....UGH!

Link to comment
Share on other sites
Mama Melissa Enthusiast

thank you everyone for your kind thoughts and words:)I do have animals but i feel so depressed sometimes i dont even feel like seeing them its a horrible feeling:(My kids are my life but i agree its hard to take proper care of them when you feel down in the dumps,i just want to get over this hump and be normal but deb i totally hear you on the mixed feelings about the diet and also how pricey it can get esepcially with a family.I just want to order out!!!!!!!!!!!

Link to comment
Share on other sites
Aggie2011 Newbie

I was just recently diagnosed with Celiac and I do not have severe depression when I am on a gluten-free diet, but if I happen to take in gluten I get very depressed. Does this happen to anyone else, and is there anything that might help with the depression?

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...