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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Biopsy Results And Still Confused.
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12 posts in this topic

So, my 2 year old son had his biopsy in November and the Dr saw no damage but she said that there still could be some that cannot be seen with the naked eye. She said there was damage to the intestines but from food allergies. Tell me, what would the difference be in damage? I didn't think about it until this morning so I didn't ask her.

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I don't understand her comment that there could still be some damage that cannot be seen with the naked eye. The reason for a biopsy is to look at the specimen under a microscope, because a Dr. can't tell for sure what's going on with the naked eye!

Am I making sense? Celiac causes the villi to be almost non-existent in some cases...I'm not sure what food allergies would do to the intestines. That's what you need to ask her: what do the villi look like and what is the difference in the way an intestine looks like with damage from celiac vs. allergies.

Hope that helps.

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I don't understand her comment that there could still be some damage that cannot be seen with the naked eye. The reason for a biopsy is to look at the specimen under a microscope, because a Dr. can't tell for sure what's going on with the naked eye!

Am I making sense? Celiac causes the villi to be almost non-existent in some cases...I'm not sure what food allergies would do to the intestines. That's what you need to ask her: what do the villi look like and what is the difference in the way an intestine looks like with damage from celiac vs. allergies.

Hope that helps.

Well, I think she was referring to any ulcers or polyps, etc. So it occured to me today, when talking to a friend about this, that I am now wondering what the visual difference would be so I thought I'd ask the experts here :) She's hard to get ahold of, I'm hoping there is a vast difference because if it's just damage to her through the microscope and maybe it's the beginnings of damage as in celiac damage and she's mistaking it for food allergy damage (whatever that entails) I hope she'd know and can explain to me. I'm rambling I am sure, thank you for the reply.

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Food allergies don't cause ulcers or polyps! That doesn't make sense. If you google under intestinal damage and causes, all you get pretty much is celiac, Chrohn's, ulcerative collitis, perhaps gastroparesis. It is possible that what was seen on biopsy was some inflammation which is often the first sign of early celiac. I think you should get a copy of the repirt and see what it says for yourself.

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Her statement is confusing. Are you sure she took biopsies? How many did she take? Is it possible she just did a scope and didn't actaully take any samples? It's my understanding from reading on here (someone correct me if I'm wrong) that they can't see villi damage when they do an endoscopy (during the procedure), that's why they can miss biopsying the damaged regions of the intestines if the damage is patchy. People do have just scopes however to look for polyps and ulcers. I think you may need to find a new doctor if she didn't do a biopsy to look for villi damage.

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http://www.medscape....rticle/405488_2

Although villous atrophy is not exclusive of celiac disease, it is considered a crucial finding. Other causes of blunted villi include tropical sprue, malnutrition, intolerance to cow's milk, soy protein intolerance, and infectious gastroenteritis. However, most of these conditions can be readily excluded on the basis of clinical history and laboratory data.

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Food allergies don't cause ulcers or polyps! That doesn't make sense. If you google under intestinal damage and causes, all you get pretty much is celiac, Chrohn's, ulcerative collitis, perhaps gastroparesis. It is possible that what was seen on biopsy was some inflammation which is often the first sign of early celiac. I think you should get a copy of the repirt and see what it says for yourself.

She was investigating why my son would be bleeding intestinally and said that polyps could cause bleeding, she was also looking for any ulcers so initially she didn't see anything but when she did the biopsy and really looked closely she saw damage that she said was from food allergies. It got me to thinking about how she would know the difference between gluten damage and say, dairy damage?

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http://www.medscape....rticle/405488_2

Although villous atrophy is not exclusive of celiac disease, it is considered a crucial finding. Other causes of blunted villi include tropical sprue, malnutrition, intolerance to cow's milk, soy protein intolerance, and infectious gastroenteritis. However, most of these conditions can be readily excluded on the basis of clinical history and laboratory data.

Your link doesn't work, what is it? He's allergic to dairy and wheat; they affect his intestines.

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Your link doesn't work, what is it? He's allergic to dairy and wheat; they affect his intestines.

The link needs to be subscribed too. I copied and pasted the information for you.

Do you or his father have digestive issues, or a history of intestinal distress (IBS)?

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The link needs to be subscribed too. I copied and pasted the information for you.

Do you or his father have digestive issues, or a history of intestinal distress (IBS)?

Oh I see now, thank you for that.

Yes, I was diagnosed with IBS that is "cured" by going gluten-free. I tested neg through the blood test for celiac and quit there. I stay gluten free because it helps me in a number of ways, not just in the bowels.

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Oh I see now, thank you for that.

Yes, I was diagnosed with IBS that is "cured" by going gluten-free. I tested neg through the blood test for celiac and quit there. I stay gluten free because it helps me in a number of ways, not just in the bowels.

I have always heard that testing children under the age of five is unreliable. And the tendency can be genetic.

Perhaps you can put your son on a gluten free/dairy free diet for a period of several months. Positive dietary response can be diagnosis as well.

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I would venture to guess that your child's doctor is not knowledgeable enough to determine whether or not your son's biopsy shows signs of villi destruction or not. Even trained pathologists can find reading biopsies difficult. Also, sometimes the scope can't reach the area that is damaged in the small intestine. Would your doctor be willing to send the biopsy to a trained pathologist or gastroenterologist for a second opinion? Since you have gluten sensitivity, it would seem logical for the doctor to suggest a gluten-free diet for your son to see if the symptoms resolve themselves. If you don't get direct, logical answers from her, perhaps you need to seek another medical opinion elsewhere.

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