Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

New Problem

Googles

By Googles
in Coping with Celiac Disease

Recommended Posts

Googles Community Regular
Googles
Posted

I have been having a new problem. It's really hard to describe. I have had heart burn intermittently in the past, but the last week it has been almost constant. I have been taking tums which usually works in the past, but it just keeps coming back. I haven't changed anything I eat. Then yesterday and today it feels like food is trying to claw its way out of my chest. Like burp and it feels like food is trying to come out (not up). They've also been painful at the bottom of my diaphragm. My chest feels raw on the inside. I don't know how to better describe it. Any ideas?

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I have been having a new problem. It's really hard to describe. I have had heart burn intermittently in the past, but the last week it has been almost constant. I have been taking tums which usually works in the past, but it just keeps coming back. I haven't changed anything I eat. Then yesterday and today it feels like food is trying to claw its way out of my chest. Like burp and it feels like food is trying to come out (not up). They've also been painful at the bottom of my diaphragm. My chest feels raw on the inside. I don't know how to better describe it. Any ideas?

I have a hiatal hernia and I experience similar symptoms, sporadically. Hope you are not taking Tums Smoothies, they are not gluten free (as my last check). Regular Tums are gluten-free to my current knowledge.

You could also have developed an ulcer, or an inflamed esophagus. Maybe time to see a doctor. Acid can do some damage too.

Link to comment
Share on other sites
jerseyangel Proficient
jerseyangel
Posted

I have a hiatal hernia and I experience similar symptoms, sporadically.

I do too, and for me there doesn't seem to be any set food or pattern that sets it off. I get the pressure, belching, and also coughing and hiccups (both at the same time <_< ).

I don't take anything for it, as I find that otc antacids make it worse. Walking helps, as does drinking water, and elevating the head of the bed. I second Lisa's suggestion that you check with your doctor on this one so you know what you're dealing with.

Link to comment
Share on other sites
Lisa Mentor
Lisa
Posted

I do too, and for me there doesn't seem to be any set food or pattern that sets it off. I get the pressure, belching, and also coughing and hiccups (both at the same time <_< ).

I don't take anything for it, as I find that otc antacids make it worse. Walking helps, as does drinking water, and elevating the head of the bed. I second Lisa's suggestion that you check with your doctor on this one so you know what you're dealing with.

Patti, I have noticed also that antacids don't seem to help much. Tums don't help much but I was told it's good calcium.

Regarding the hernia..when resting or beginning sleep, turning to the left or flat side helps. Right side at rest finds the discomfort.

Link to comment
Share on other sites
jerseyangel Proficient
jerseyangel
Posted

Regarding the hernia..when resting or beginning sleep, turning to the left or flat side helps. Right side at rest finds the discomfort.

Interesting--I'll try that. Thanks :)

Link to comment
Share on other sites
cassP Contributor
cassP
Posted

if it's an acid reflux that's nonstop and you're not getting relief like before- it could very well be an ulcer. If it's convenient for you- you should think about seeing your doctor to see if you've got H.Pylori... And in the future- all of us with reoccuring reflux should get endos to check our esophagus.

I have crappy insurance and hate going on antibiotics- so last year when i thought i had an ulcer - i pounded ionized silver and grapefruit seed extract (*always follow instructions on bottle). These are natural antibiotics without the awful side effects. I also took pepto, tums, and occasional zantac. By the 3rd week i felt practically all better.

Link to comment
Share on other sites
cahill Collaborator
cahill
Posted

Dont tums/most over the counter antacids have soy in them??? Do you have issues with soy?

Do you have issues with your gallbladder ??

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Googles Community Regular
Googles
  • Author
Posted

I have a doctor's appointment with student health services for tomorrow. I hate going to the doctor. I'm worried they are going to tell me they don't know what is wrong and to just go away. Ugh.

Link to comment
Share on other sites
GFinDC Veteran
GFinDC
Posted

if it's an acid reflux that's nonstop and you're not getting relief like before- it could very well be an ulcer. If it's convenient for you- you should think about seeing your doctor to see if you've got H.Pylori... And in the future- all of us with reoccuring reflux should get endos to check our esophagus.

I have crappy insurance and hate going on antibiotics- so last year when i thought i had an ulcer - i pounded ionized silver and grapefruit seed extract (*always follow instructions on bottle). These are natural antibiotics without the awful side effects. I also took pepto, tums, and occasional zantac. By the 3rd week i felt practically all better.

Garlic is supposed to be a good anti-bacterial too. I have been wondering what the GSE was for. Thanks for that.

Link to comment
Share on other sites
Salax Contributor
Salax
Posted

I have the same. I higly recommend George's Aloe Vera juice twice a day. Once in the AM and once before bed. About 1/2 of a shot glass full. More than that can give you D. I have the herna as well, my doc started me on this for 3 weeks, symptoms gone, it heals the herna and the throat, etc.. When or if they start again, go back on the aloe. You should be able to find this in most health food stores or online. I hope you feel better. B)

Link to comment
Share on other sites
Googles Community Regular
Googles
  • Author
Posted

So I went to the doctor today and they said I have GERD and should take antacids. So I will start doing that. They also said I should give up spicy food, and caffeine, and maybe tomatoes.Ugh. Within the last few months I just added tomatoes back in. I don't want to have to give them up again, but I guess I need to. I don't know how giving up caffeine is going to work. I might just cut back to start.

Link to comment
Share on other sites
GFinDC Veteran
GFinDC
Posted

So I went to the doctor today and they said I have GERD and should take antacids. So I will start doing that. They also said I should give up spicy food, and caffeine, and maybe tomatoes.Ugh. Within the last few months I just added tomatoes back in. I don't want to have to give them up again, but I guess I need to. I don't know how giving up caffeine is going to work. I might just cut back to start.

Maybe you can switch to decaf in the afternoons. And later decaf in the mornings.

Link to comment
Share on other sites
Wolicki Enthusiast
Wolicki
Posted

I have had similar problems in the past, and it turned out to be hyporchlorydia- low stomach acid. The effects are similar to GERD. Problem is I was prescibed acid blockers for over 20 years, so now I have no stomach acid or enzymes. So I take Betaine HCL and enzymes and the problems were resolved.

Link to comment
Share on other sites
dilettantesteph Collaborator
dilettantesteph
Posted

I get GERD as a sign of glutening. It helped me to cut down on processed foods.

Link to comment
Share on other sites
Juliebove Rising Star
Juliebove
Posted

So I went to the doctor today and they said I have GERD and should take antacids. So I will start doing that. They also said I should give up spicy food, and caffeine, and maybe tomatoes.Ugh. Within the last few months I just added tomatoes back in. I don't want to have to give them up again, but I guess I need to. I don't know how giving up caffeine is going to work. I might just cut back to start.

Everyone is different. I know people with GERD who also can not have onions and peppers. None of those things bother me. What does bother me is dark chocolate. The pain! Oh mama!

You should also invest in a GERD wedge pillow to sleep on. Or failing that, put some blocks under the head of your bed to raise it up a couple of inches.

Link to comment
Share on other sites
Googles Community Regular
Googles
  • Author
Posted

Contrary to most people with GERD, for me it is not at all problematic when I lie down. It is actually better then. My doctor thinks it might be stress related, and so when I lie down, I usually am able to relax. So hopefully I wont have to adjust my sleeping position (I love sleeping on my stomach). I started the meds today. I hope that after being on them a couple of weeks it will all go away and then I can stop taking them. (wishful thinking probably, but I can hope.)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. plumbago
      - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed...
    2. trents
      - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    3. Suzi374
      - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it.
    4. Suzi374
      - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be be...
    5. Peace lily
      - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748
    Suzi374
    Newest Member
    Suzi374
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • plumbago
      Lots of tests

      By plumbago · Posted

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Lots of tests

      By trents · Posted

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Would like to gain weight

      By Peace lily · Posted

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...