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#1
Posted 10 January 2011 - 01:49 PM
Here is the thread I started: http://community.dis...8/m/43019274701
Gluten-Free since November 2010
GAPS Diet since January/February 2011
me - not tested for celiac - currently doing a gluten challenge since 11/26/2011
partner - not tested for celiac
ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.
dd - age 12.5, not celiac, has Tourette's syndome
both kids have now-resolved attention issues.
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#2
Posted 10 January 2011 - 02:37 PM
Someone on another site brought up how cool it would be to see cross contamination and gluten featured on mythbusters. My kids love the idea and asked me to get everyone I can to submit myths about gluten to mythbusters. I started a thread on their site and I hope folks will post their gluten related myths as well.
Here is the thread I started: http://community.dis...8/m/43019274701
The person who responded to your thread on there needs some serious Celiac education!
9 -18 months only gained 1-2 lbs.
18-24 months went gluten-free after she started getting dermatitis herpetiformis upon gluten exposure and started gaining a pound a month
Food sensitivity test showed moderate sensitivity to gluten
IgE showed no allergies
Genetic test showed gene for Celiac
Pediatric Gastroenterologist says Celiac
#3
Posted 10 January 2011 - 02:48 PM
Yeah. I wrote this back:The person who responded to your thread on there needs some serious Celiac education!
domesticactivist
Junior Member
Registered: 01-10-11
Posted 01-10-11 05:31 PM
We've already seen and experienced the very real negative effects from getting cross contaminated food, despite careful ingredient checking. The question is not whether we need to be concerned about contamination, but what measures actually can destroy the gluten proteins.
Interestingly, the wiki article the person quoted contradicts what was said in that person's post!
I am a little nervous mb will take it up then spread misinformation, but the more people post contradictory statements, the more likely the topic is to be taken up. My son really would love to see his issues reflected in mainstream culture and mb does tend to do a good job. I want to support his efforts to reach out.
Gluten-Free since November 2010
GAPS Diet since January/February 2011
me - not tested for celiac - currently doing a gluten challenge since 11/26/2011
partner - not tested for celiac
ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.
dd - age 12.5, not celiac, has Tourette's syndome
both kids have now-resolved attention issues.
#4
Posted 10 January 2011 - 02:50 PM
Just to be clear, the butthead is the guy arguing on the thread about destroying gluten, not this forum
#5
Posted 10 January 2011 - 03:02 PM
Gluten-Free since November 2010
GAPS Diet since January/February 2011
me - not tested for celiac - currently doing a gluten challenge since 11/26/2011
partner - not tested for celiac
ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.
dd - age 12.5, not celiac, has Tourette's syndome
both kids have now-resolved attention issues.
#6
Posted 10 January 2011 - 03:02 PM
"Why are you being so argumentative? Questioning the ladies illness? All she and her kids wanted to know was at what temperature a wheat gluten protein incinerates. We have heard that it is a big sturdy molecule that can withstand temperatures that would destroy other proteins. Debating with us whether 1 molecule can make us sick has nothing to do with the topic and request."
Celiac.com - Celiac Disease Board Moderator
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy
“Life may not be the party that we hoped for…But while we’re here, we should dance.â€
#7
Posted 10 January 2011 - 03:03 PM
Brother!
FooGirlsMom
#8
Posted 10 January 2011 - 03:29 PM
Just to be clear, the butthead is the guy arguing on the thread about destroying gluten, not this forum
No...none of us here are ever butt heads!
I think everyone should go on there and back her up! C.com against Buttheads!
Celiac.com - Celiac Disease Board Moderator
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy
“Life may not be the party that we hoped for…But while we’re here, we should dance.â€
#9
Posted 10 January 2011 - 05:44 PM
Gluten-Free since November 2010
GAPS Diet since January/February 2011
me - not tested for celiac - currently doing a gluten challenge since 11/26/2011
partner - not tested for celiac
ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.
dd - age 12.5, not celiac, has Tourette's syndome
both kids have now-resolved attention issues.
#10
Posted 10 January 2011 - 09:08 PM
I wish people would be more understanding and encouraging about what we have to do to stay healthy. It's not like it's easy or something we do just cause we want to.
#11
Posted 11 January 2011 - 09:33 PM
#12
Posted 12 January 2011 - 06:20 AM
#13
Posted 12 January 2011 - 07:14 AM
Anyway, ignoring him will probably frustrate him the most.
Celiac.com - Celiac Disease Board Moderator
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy
“Life may not be the party that we hoped for…But while we’re here, we should dance.â€
#14
Posted 12 January 2011 - 08:06 AM
Gluten-Free since November 2010
GAPS Diet since January/February 2011
me - not tested for celiac - currently doing a gluten challenge since 11/26/2011
partner - not tested for celiac
ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.
dd - age 12.5, not celiac, has Tourette's syndome
both kids have now-resolved attention issues.
#15
Posted 12 January 2011 - 08:11 AM
You know what? I'm so impressed to have finally found a forum (this one) where people know how to deal with trolls!
Don't you get a really big Billy Goat to head butt him off the bridge?
Celiac.com - Celiac Disease Board Moderator
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy
“Life may not be the party that we hoped for…But while we’re here, we should dance.â€
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