Right, usually they do an endoscopy after a positive blood antibody test. The biopsy confirms the antibody results. Doing them in the reverse order doesn't hurt anything though. Sometimes people "fail" the antibody tests but still have gut damage. Not everybody makes the same antibodies or in the same quantities. Anyway, you should make sure they are doing the complete celiac antibody panel, not just a ttg test.
And don't worry if the celiac tests are positive for gliaden antibodies. Going gluten-free is an adjustment to your diet. Quite a few people around here have managed to adjust successfully. It takes some effort, but anything worthwhile does they say.
I don't have scotomas but you might find more help on a forum dedicated to vision issues. Here are a couple I found. the last link is a Yahoo search for "eye forum" There may be others found if you try a search on Google.
BTW, all first degree relatives of celiacs are supposed to be tested for celiac every 2 years in the absence of symptoms -- immediately if symptoms present. Your kids, your parents & all siblings should be tested. And that goes for your brothers kids too.
I agree completely with cyclinglady! Do you even know that there is such a thing called silent celiac? No symptoms at all but the villi are damaged.
I see you joined in 2009. Why? Is that when your brother was diagnosed?
IMHO you need to do a lot of research & find out just exactly what you're risking.
What? Be sure that next endoscopy tests you for lymphoma (cancer) as well!
Seriously. You need to do some research as your knowledge of celiac disease is lacking. Did you fail the entire celiac panel? Or did your doctor/insurance save cash and just order the very good (but does not catch all celiacs) TTG IgA? You have a family history, a positive biopsy, what more do you need? You do realize that this is not about just giving up gluten, don't you? We just had a member join this year who was told years ago that her tests were "inconclusive" and that she now has suffered with lymphoma (cancer)?
Endoscopy in 10 years? Who would even wait 10 years? This isn't colon cancer and polyps! Are you talking about a colonoscopy? Are you even sure you had an endoscopy?
Be sure you have your bones checked too.....and forget the breath. You might not have any teeth and implants will be out since your bones will be compromised.
Sorry, if I come on strong, but when I was diagnosed I had no tummy issues. A few months later, my bones began breaking. I was undiagnosed for a long time because of mis-informed doctors. At least it was not stupidity on my part. So, I urge you to research this disease more! Hopefully you'll ward on another autoimmune disorder by remaining gluten free. Find what celiac blood tests were actually taken! Even if you do not think you have celiac disease, something has caused villi damage -- like a parasite, milk, or something......even more sinister!
Hello cycling lady, have you noticed my picture is showing up as you? Have no idea why but it's rather disconcerting to see my picture and your words 😉 Do you know how to fix it? You seem to have far more experience with this board than I do
Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
Here is the link if you have never watched it.