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How Long After Going Gluten Free Should It Stop?
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How long after giving up gluten should the diarrhea stop? I've been off it for 5 days, still wake up in the morning with soft stool or diarrhea, although bloating is gone and stools have changed from green to brown (I'm sorry, I know that's gross). Is this normal? Should it have stopped by now?

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Are you eating dairy? If you are, I would stop that for a while and see if it helps.

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I did stop dairy too, and soy, a few days after I stopped gluten. I'm also taking some probiotics to try and help heal my gut. I don't have stomach pain any more, just the soft, loose stools. I get so defeated every morning when I wake up and still have them!

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I have been off for five days as well, and I have the same problem. I don't go as often, but when I go it is still soft, or diarrhea. My stomach pain is gone and I feel better. I wonder if I am still getting gluten with out knowing it! Is microwave popcorn a problem?

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I think this is a very individual thing - and also once you know you have either a gluten sensitivity or celiac - you may find that you have developed other sensitivities as well. I know that after my first flare up, I no longer could eat corn chips, potatoes, soy, grains of any kind, nightshade vegetables - potatoes, tomatoes, green peppers, dairy, high fructose, carrots and other green vegetables. This was in September. Now in January, I still do have many of the sensitivities that developed after the initial flareup - BUT I can now eat my rice chex cereal (gluten free), and have added back some of the green vegetables I could not tolerate. It just takes time and patience. For me, the flare up happened after many years of abusing my body with gluten, cafeine and Splenda. I no longer ingest cafeine, Splenda or gluten. I really now am beginning to feel good - but it did take time. I no longer have the diarrhea and/or soft stools (after having it for a good 3+ months)and sometimes it even alternates now with constipation - which at least gives my intestinal track a rest!

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I had the same problem, but mine lasted weeks. I found that eating white rice helped and watching my ratio of green veggies to meat/starch. Even then it just took a while. I've been on the diet just over 3 months now and have only been what I'd call "normal" for the last 3 weeks. It's also coincided with feeling a great deal better & having some of my food sensitivities diminish. I can eat small amounts of cheese now and I was having big problems with dairy at first. I ate chocolate (with soy lecithin and dairy) and was fine. The latest is that I can eat Mission corn chips (they have dedicated lines in mfr'g) and I'm fine. I had to give up dairy, corn & soy. Now soybean oil is still a No-No but I think I've always been somewhat allergic to it even when I was healthier.

Once you root out your sensitivites, I think it's just a matter of time for the intestines to start healing. I find it interesting that my bowel disturbances clearing coincided with being able to reintroduce the items successfully. It speaks to the advice you get so often to eat a whole foods diet for a while & let your intestines heal.

Hang in there,

FooGirlsMom

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Everybody is different. I felt a little better after a few days but it took me about ten days on my elimination diet for the D to stop. I was eating nothing but lamb, rice, and lettuce. (I was looking for food allergies. Hah!)

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Thanks for the replies!! I guess I'm not sure what I should eat anymore. Here's what I am eating and thinking is safe: fruit, veggies, rice, potatoes, corn tortillas, nuts, eggs, meat, fish, beans. I gave up dair and soy too yesterday- hopefully these are temporary though. Any input? What is a good safe diet to start out with and heal on?

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Thanks for the replies!! I guess I'm not sure what I should eat anymore. Here's what I am eating and thinking is safe: fruit, veggies, rice, potatoes, corn tortillas, nuts, eggs, meat, fish, beans. I gave up dair and soy too yesterday- hopefully these are temporary though. Any input? What is a good safe diet to start out with and heal on?

Sounds good to me. Do you have Mission brand tortillas available? They are made on a dedicated line, so there is less chance of CC with flour tortillas.

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    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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