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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long After Going Gluten Free Should It Stop?
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9 posts in this topic

How long after giving up gluten should the diarrhea stop? I've been off it for 5 days, still wake up in the morning with soft stool or diarrhea, although bloating is gone and stools have changed from green to brown (I'm sorry, I know that's gross). Is this normal? Should it have stopped by now?

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Are you eating dairy? If you are, I would stop that for a while and see if it helps.

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I did stop dairy too, and soy, a few days after I stopped gluten. I'm also taking some probiotics to try and help heal my gut. I don't have stomach pain any more, just the soft, loose stools. I get so defeated every morning when I wake up and still have them!

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I have been off for five days as well, and I have the same problem. I don't go as often, but when I go it is still soft, or diarrhea. My stomach pain is gone and I feel better. I wonder if I am still getting gluten with out knowing it! Is microwave popcorn a problem?

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I think this is a very individual thing - and also once you know you have either a gluten sensitivity or celiac - you may find that you have developed other sensitivities as well. I know that after my first flare up, I no longer could eat corn chips, potatoes, soy, grains of any kind, nightshade vegetables - potatoes, tomatoes, green peppers, dairy, high fructose, carrots and other green vegetables. This was in September. Now in January, I still do have many of the sensitivities that developed after the initial flareup - BUT I can now eat my rice chex cereal (gluten free), and have added back some of the green vegetables I could not tolerate. It just takes time and patience. For me, the flare up happened after many years of abusing my body with gluten, cafeine and Splenda. I no longer ingest cafeine, Splenda or gluten. I really now am beginning to feel good - but it did take time. I no longer have the diarrhea and/or soft stools (after having it for a good 3+ months)and sometimes it even alternates now with constipation - which at least gives my intestinal track a rest!

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I had the same problem, but mine lasted weeks. I found that eating white rice helped and watching my ratio of green veggies to meat/starch. Even then it just took a while. I've been on the diet just over 3 months now and have only been what I'd call "normal" for the last 3 weeks. It's also coincided with feeling a great deal better & having some of my food sensitivities diminish. I can eat small amounts of cheese now and I was having big problems with dairy at first. I ate chocolate (with soy lecithin and dairy) and was fine. The latest is that I can eat Mission corn chips (they have dedicated lines in mfr'g) and I'm fine. I had to give up dairy, corn & soy. Now soybean oil is still a No-No but I think I've always been somewhat allergic to it even when I was healthier.

Once you root out your sensitivites, I think it's just a matter of time for the intestines to start healing. I find it interesting that my bowel disturbances clearing coincided with being able to reintroduce the items successfully. It speaks to the advice you get so often to eat a whole foods diet for a while & let your intestines heal.

Hang in there,

FooGirlsMom

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Everybody is different. I felt a little better after a few days but it took me about ten days on my elimination diet for the D to stop. I was eating nothing but lamb, rice, and lettuce. (I was looking for food allergies. Hah!)

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Thanks for the replies!! I guess I'm not sure what I should eat anymore. Here's what I am eating and thinking is safe: fruit, veggies, rice, potatoes, corn tortillas, nuts, eggs, meat, fish, beans. I gave up dair and soy too yesterday- hopefully these are temporary though. Any input? What is a good safe diet to start out with and heal on?

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Thanks for the replies!! I guess I'm not sure what I should eat anymore. Here's what I am eating and thinking is safe: fruit, veggies, rice, potatoes, corn tortillas, nuts, eggs, meat, fish, beans. I gave up dair and soy too yesterday- hopefully these are temporary though. Any input? What is a good safe diet to start out with and heal on?

Sounds good to me. Do you have Mission brand tortillas available? They are made on a dedicated line, so there is less chance of CC with flour tortillas.

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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