Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Could This Be Cd?

lushgreen

Recommended Posts

Matilda Enthusiast
Matilda
Posted

..

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lushgreen Apprentice
lushgreen
  • Author
Posted

Hi Matilda,

I appreciated your post - it is not so academic now because I did end up with negative results, as I learnt from my doctor in a rushed phone conversation (I am getting a new doctor!). I have no idea what the values are and I think she only ordered IgA and tTG. She had done a whole bunch of tests and I am positive for hypthyroidism and a severe vitamin D deficiency. So a lot of my symptoms are explained but my GI problems remain unaccounted. I am not sure what to do now in terms of pursuing the question of celiac/gluten intolerance. Getting these two diagnoses were actually quite overwhelming. I have been feeling so unwell for so long and denying it even to myself as everyone insisted that I was a "perfectly healthy individual" that it is going to take me some time to process even this and learn what diet and lifestyle changes I need to make in addition to the best way to manage them medically.

Particularly, I'm concerned that I may have to give up soy products which I consume a great deal of as a vegetarian (almost vegan) but which I have now found lower thyroid activity and are goitrogenic. I suspect this may be harder for me than giving up gluten. I may have to get used to this first before going gluten-free.

I am now going to wait to see what the test results were and then decide whether to see a gastro for a second opinion. Does this make sense?

Link to comment
Share on other sites
lushgreen Apprentice
lushgreen
  • Author
Posted

Hi, I thought I would also add that my doctor had me tested through Quest which I know some people here have found unreliable as far as celiac testing goes. I was wondering if it made any sense to

1) get tested through another lab

2) take my results to a celiac disease specialist and see what she has to say

3) get an endoscopy done

4) or just skip ahead to Enterolab for stool/gene testing

Any thoughts?

Link to comment
Share on other sites
Matilda Enthusiast
Matilda
Posted

..

Link to comment
Share on other sites
lushgreen Apprentice
lushgreen
  • Author
Posted

hi matilda,

thanks for responding. i am now getting tested for vitamin A deficiency to see if that is present in addition to the vit D deficiency. if both are, it could point to a fat malabsorption syndrome. once that is taken care, i will think about enterolab.

thanks so much for your wishes and your expressions of support and concern through the past couple of weeks - i much appreciate it!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,205
    • Most Online (within 30 mins)
      7,748
    Laurie Brizuela
    Newest Member
    Laurie Brizuela
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Aussienae
      Constant low back, abdominal and pelvic pain!

      By Aussienae · Posted

      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
    • ButWhatCanIEat
      Constant low back, abdominal and pelvic pain!

      By ButWhatCanIEat · Posted

      Good morning,   I got an email about replies to this post. Some of my doctors had blamed a slipped disc for the pain I had and that contributes, but after meeting with a gastroenterologist AGAIN and trying some lifestyle modifications, I found out I have IBS and can't tolerate corn or excessive fructose to any degree. Cutting out corn AFTER having cut out all gluten containing products was a real pain but I feel much better now!
    • trents
      Isolated DPG-Iga

      By trents · Posted

      So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the tTG-IGA antibody test.
    • knitty kitty
      Dehydration, dry skin and full body tingling when overheating

      By knitty kitty · Posted

      Here's a link... Thiamine Deficiency Causes Intracellular Potassium Wasting https://www.hormonesmatter.com/thiamine-deficiency-causes-intracellular-potassium-wasting/
    • Soleihey
      Lymph nodes

      By Soleihey · Posted

      Has anyone experimenced enlarged lymph nodes with celiac? Both in the neck and groin area. Imaging of both areas have said that lymph nodes are reactive in nature. However, they have been present for months and just wondering how long this may take to go down. Been gluten-free for about two months. Blood counts are normal.
×
×
  • Create New...