Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Biopsy Questions!
0

9 posts in this topic

My doctor called me today saying that they need to schedule me for a biopsy to check for the damage that celiac may have done. They said its not manditory but strongly encourages it. Has anyone had one? What do they do? Does it hurt? Are you awake or asleep? About how long does the whole process take? Any risks involved? Can someone be there in the room with me when they do it? I HATE it when they have to have blood taken every appointment so am very fearful of how I'm gonna handle it if I have to have one. Any pro's or con's if I decide to or not to have one?

0

Share this post


Link to post
Share on other sites


Ads by Google:

My daughter had biopsy/scope last week. The whole process took about 10 minutes. She was given IV sedation and fell asleep very quickly. They put a camera down the throat and look for damage. They also will take samples of the tissue to look for damage. Sometimes the damage can be seen by the scope itself but often it is only visible under microscope. She was a bit tired when she woke up but could eat and drink. She also had a bit of a sore throat for a few hours after. Most doctors will not confirm celiac without a biopsy.

0

Share this post


Link to post
Share on other sites

It doesn't hurt a bit. They give you cold medication like drugs that make you sleepy

0

Share this post


Link to post
Share on other sites

I have my endoscopy (and colonoscopy) tomorrow so I will let you know how it goes! : )

0

Share this post


Link to post
Share on other sites

They gave me some Benadryl, sprayed some nasty stuff down my throat, then whatever drug they put in my IV put me to sleep. I don't remember anything about the rest of the day except riding in a wheelchair in the elevator, and waking up in my recliner at home. I felt no pain or discomfort, other than that nasty spray.

0

Share this post


Link to post
Share on other sites




The spray numbs your throat. My doctor was going to skip it with me but I have such a ridiculous gag reflex — yawning sets it off — that I asked for it. It tastes a little like rotten bananas and goes away quickly.

But I realize now that I was so out of it, I wasn't about to be gagging on the tube anyway. :)

0

Share this post


Link to post
Share on other sites

I have been on a gluten-free diet & have gotten a blood test. I still have to wait a week for the results though... The doctor said something about if this one thing is high enough I won't need a biopsydone but I can't remember what it was called does anybody know? I was wondering though can they put you to sleep before you get the iv done because I already get freaked out just with needles any thoughts? Sorry if my spelling is bad. I would appreciate some replies. Thank you! :)

0

Share this post


Link to post
Share on other sites

Had mine yesterday and the actual procedure was a breeze! It was the prep that was the worst part.

They do not put you to sleep before the iv, that's how they give you the stuff that puts you to sleep.

They did put me to sleep before they numbed my throat and did everything else though.

Honestly except for being sleepy afterwards I felt great and didn't remember anything. I felt so good I actually wondered if they had done anything to me, LOL.

0

Share this post


Link to post
Share on other sites

It doesn't hurt, and barely felt putting in the IV and whammo, you're out. You most likely won't even know it's been done! You'll be on your way out before you think they even started.

My primary care doc said I didn't need an endoscopy because my blood work was positive for celiac.

However, my GI doc strongly disagreed. She said there are many reasons celiacs should have the endoscopy -- not just to confirm what blood tests indicate.

We (celiacs) often have had years of stomach upset, vomiting, reflux, etc. and during endoscopy they also examine the esophagus for damage or changes from stomach acid, and look for damage in the stomach, test for h-pylori, and look for certain markers, etc.

It's like getting the whole picture of your disease. Personally, I think it's a very worthwhile procedure to have done.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,651
    • Total Posts
      921,611
  • Topics

  • Posts

    • How about reaching out to your local celiac disease support group? http://www.houstonceliacs.org
    • Yes, I am in Houston, TX. Can anyone recommend a good GI in Houston, lots of experience with celiac?  
    • I am sorry to hear about your mother.   It is not so hard to get a medical doctor to order a celiac panel -- especially if your father was diagnosed with celiac disease.  Our family GP did not blink an eye when I first asked my daughter to be tested.    If you think your doctor will disregard your legitimate request, you can either fire him or put the request in writing and send it certified (attorneys love documentation!)  I agree that our doctors should support us.  I have a great GI, but my GP  is pretty clueless when it comes to celiac disease, but she admits it.    She does always order all the lab tests I request.  Perhaps it is because I come in with supporting medical documentation and evidence.  If she was not supportive to my satisfaction, I would find a new doctor.   Again, you can go gluten free in your own.   Chance are you have celiac disease.    But it is hard.  Really hard if you do not have the support of your family.  That is my concern.   Are you in the US?  
    • I've just read SO MUCH about the long, arduous process of getting a positive diagnosis through traditional medicine - I'm not sure I want to put myself through all that. Since my father WAS positively diagnosed - I carry the celiac gene and another gene that predisposes me to gluten sensitivity - and my fecal tests for gliadin were SO elevated - there are enough reasons for me to go to a gluten free diet. The true medical diagnosis would just make it easier for my family/friends to believe the necessity of it. My children are adults and not particularly health care nuts. I doubt they would take their own risk seriously without a medical diagnosis. I'm afraid my husband, while he is trying to be supportive at this point, will grow weary of all the things I no longer serve at meals and all the places we will no longer go to because there are not gluten free alternatives on the menu. A medical diagnosis would make it easier for him, long term, I think.  I don't have much faith in general in our western health care system. My mother died 6 months ago at age 82 after 4-5 years of many different health issues. She had given up the keys to her car in her late 70's after getting lost several times. I became her designated driver to all doctor appointments, procedures, hospital stays, etc. The incompetence and disregard I saw blew me away. I'm surprised any elderly people survive our health care system once they get on that revolving door. The reason I started seeing a naturopath is that I am looking for an alternative to medical doctors for most of my health issues as I age. I know there are some things I still have to see them for - and of course, they are essential in trauma and emergency situations. But I am on a quest to follow a more holistic approach to my health care. If this is the path I am choosing, then I have to follow my gut (no pun intended) in situations like this. I think the only reason I would go through the medical testing would be for other people - not me. It seems to me, that with so many people being gluten intolerant these days, a decent M.D. would listen to a patient that was adamant about their intent to live gluten free - positive celiac diagnosis or not (and especially with the gene and stool test results). I mean, they don't tell vegetarians they have to eat meat ... and vegetarianism is a personal choice. Sorry if I seem to be rambling ... this is all so new, and I'm trying to find my way.    
    • This subject is often raised on this site, especially by women.  I am prompted to raise it again today, having spoken to my doctor who has said that she has noticed that celiacs often have thin hair, especially in later years.   Rather than just accept what she thinks is just the inevitable I would really like to hear from anyone who really has seen great improvement in their own hair and what they did. There are lots of tips on line but I am particularly interested in hearing from someone who has actually been there, done that, and now has better hair!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,653
    • Most Online
      3,093

    Newest Member
    KerryO
    Joined