Has Anyone Decided Not To Have Kids Based On Your Celiac Diagnosis?
Posted 31 January 2011 - 04:24 PM
Honestly, it wasn't a factor because I know what to look for and if my kids start to have problems I know what to do about it. I know that's pretty much the only big genetic risk either me or my husband have and otherwise we have good genes.
Posted 07 March 2011 - 11:41 AM
Posted 08 March 2011 - 10:23 AM
Posted 08 March 2011 - 10:52 AM
i totally understand what you mean... when i first self dx and ONLY thought i had Celiac... i didnt think that pregnancy should be ruled out at all... no reason to consider yourself less than... then i was dx with Hashimoto's.... big deal i thought- plenty of people have babies with this- its a little more complicated- but it's totally do-able
I am thinking that if I have celiac I may decide to not have kids. Not bc I dont want to pass it on to them b/c living gluten-free is possible, but bc I am concerned about the effect of pregancy on my body. I hear it's considered "stress" and can trigger other autoimmune diseases? I already had graves (in remission), and am almost positive I have celiac (or some other autoimmune problem). i am terrified of triggering a third....is this weird?
then i got dx with Grave's on top of that- then i went thru a depression thinking... "man- maybe that's why ive had such crappy luck inlove- maybe God doesnt want me passing down my crappy genes"... it was awful..
anyways- kind of out of that now... but genes aside... having 1 or 2 thyroid conditions can make a pregnancy more complicated- i dont think you should rule it out- but yes- it will take a little more tweaking with the doc. altho i dont know what it would be like for you with only the Graves- and it being in remission. just bring all this up with your doc
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx
Posted 19 March 2011 - 09:43 PM
I've grown up with the thought that I would have kids one day, but sometimes life throws surprises. I still hope to have them, but I'm getting to a place where I need to consider that I may not.
I'm about to turn 35, and was diagnosed with Celiac two years ago. I'm very strictly gluten-free, but still sick. My particular case was very dire, and my body is still fighting to recover. I'm also underweight and have a very small frame. One of my Celiac issues has left me with severe back/hip issues and muscle/nerve issues. Because of this, I am not sure if I could put my health on the line for a pregnancy, even if I felt better in a couple of years.
My GI doctor, primary doc, acupuncturist all agree that I probably couldn't survive a pregnancy right now... but let's say I'm healthy in 3 years and able to get pregnant, I'll need to think about it again then. But, my guy is quite a few years older, already has two grown kids, and I'm concerned that I may have missed my prime time.
I have considered foster parenting or adoption - maybe even an older child. Who knows, there may be a child waiting for parents that has a wheat allergy, gluten intolerance or Celiac! The age of my guy plays into that, too - by the time I'm healthy he may be ready for retirement!
That being said, one of my Celiac friends has a 1yr old and has elected to include gluten in the baby's diet. She is now feeling Celiac symptoms and is frustrated about that because... well, you can imagine life with a little one with drooly-teething crackers everywhere.
Good luck with your thought process. Only you can decide what's right for you!
Negative blood tests (following gluten light diet)
Still healing with time, harmony, and good food.
Posted 21 March 2011 - 03:26 PM
I hear it's considered "stress" and can trigger other autoimmune diseases? I already had graves (in remission), and am almost positive I have celiac (or some other autoimmune problem). i am terrified of triggering a third....is this weird?
Its true that pregnancy puts stress on certain systems of the body. However, it is also 'what our bodies are designed for'. (I put quotes, because I don't intend to imply that everyone is "meant" to get pregnant and have kids...I believe we are "meant" to live diverse lives.) So really it is a stress that could be compared to the stress of rigorous excercise. Yes rigorous exercise can stress systems of our body. Like pregnancy, it can even cause injury or illness. But also *not* using our bodies that way, when they were designed for such activities also takes its toll in certain ways. There are health benefits to pregnancy, and for some people who have autoimmune diseases, their disease goes into remission during pregnancy and breastfeeding. (There are also people who have their disease triggered...)
So I would definitely not rule pregnancy out. Also, I have to say that in my own experience, having babies was such an incredibly cool experience in terms of trusting my own body and seeing what it is capable of. I think this could be an even more awesome experience if you have struggled with health challenges. (I had babies before I developed health problems.)
In any case, the choice to have children should be based on whether you really want to raise children. If you do, then even your physiology needn't stop you. If you can't become pregnant, you can make your family in a different way (adoption, etc.) and I would encourage you to. If its what you really desire, don't limit yourself. And if its not really what you desire, or if you desire it only for more trivial reasons like your ego thinks it would be good to pass on your lineage or whatever...meh. Forget it. Its so much work, and anyone can have a rich life and enjoy kids without having their own.
Best wishes in your discernment.
Posted 21 March 2011 - 03:40 PM
Posted 21 March 2011 - 04:04 PM
Posted 21 March 2011 - 06:23 PM
A friend asked me if I'd have had kids if I'd known about all these health issues that might crop up. She's recently married a man w/ familial polycystic kidney disease and is wondering if having kids is a good idea? I told her that the whole thing is a crap shoot and would I have not had kids knowing what I know now? Yeah... I'd have had them anyhow. The bipolar and breast cancer are fairly random... and the celiac disease is pretty much managed w/ a completely gluten free diet.
Living in the beautiful Ozark mountains in Arkansas
positive blood tests and later, positive biopsy
diagnosed 8/5/02, gluten-free (after lots of mistakes!) since that day
Dairy free since July 2010 and NOT happy about it!!
Posted 12 April 2011 - 07:59 PM
I still get glutened so easily that I would be very worried I would not be able to have a healthy pregnancy, now. I had hyperemesis that I would speculate now was my body trying to avoid gluten desperately - looking back, anything with gluten in it made me sicker than everything else. I react to gluten so much worse now than I did when I was eating it regularly, it makes me cringe to think how sick I might get now. And it wasn't a small thing. Most of both my pregnancies was spent focusing on not vomiting for long enough to get some fluids/calories to digest.
And if there are vitamin deficiencies that aren't taken care of yet, that's a legitimate issue. My sister-in-law is very low in iron and her doctor has warned her that getting pregnant might very well kill her, because some of her vitamin levels are so low that the pregnancy could be too much for her. Depending on the vitamin, it can be a really, really serious problem.
Don't get me wrong, even with all that nausea and vomiting and all... I still loved pregnancy. I'm not even sure how I did, but I really did. I rubbed my belly constantly, I thought it was awesome getting big and round and fat, because it felt like this was the shape I was supposed to be, and that was wonderful. I loved feeling my little ones move inside me. I talked to my baby from the second I knew there was one in there. Giving birth felt a bit like meeting a person I'd been getting to know in my womb for the past months. It really can be a beautiful thing.
But it was also one of the most miserable, horrible times in my life, at the same time, because I did not have an easy pregnancy or an easy birth, and definitely not an easy time with the last baby. Not the worst or the scariest by any means, but pretty darn awful. And no offense to everyone who had really lovely births and pregnancies, but honestly? That makes a huge difference, and you do NOT know what you're going to get. Celiac or not, healthy or not, you just don't know. It's something everyone should honestly consider, IMO, before they get pregnant.
I still remember crying when my second child was a few months old. We'd bought all these books for 'big sisters' about the new baby in the family, and it had all these lovely stories and pictures of the new baby, and holding them, and feeding them, and what it would be like, and what they would do, and my daughter looked at me and asked why none of the books talked about OUR baby?
Because with our baby, I was supposed to be on bedrest for weeks due to blood loss, but couldn't because my son was reacting to my milk because of foods that I ate, and he screamed 20 hours a day, sleeping in 5 minute snatches, for his first weeks of life. My husband actually timed him a few days, because he couldn't believe we were figuring out the amount of screaming correctly. Even when we figured out some of the food, he cried and fussed for months, for hours and hours every day. It was a nightmare. I was so depressed my husband was scared to death. I can't even REMEMBER one single thing about my older child during that whole first year of her younger brother's life, let alone time with my husband.
You don't know what a pregnancy is going to be like, or a birth, and if you have concerns - well, i guess I'd investigate them. See if you can find an OB/GYN who is willing to talk with a GI doctor about possible issues, see if anything will be a problem. Do you take vitamin supplements? And can they be absorbed differently by a fetus than by you? Are you vitamin deficient? What other auto-immune diseases ARE in your family, because yea, I think worrying about triggering one might be a risk. I don't know how high of one, and I don't think docs necessarily know either, but...I believe I'd be thinking about it now, after what I've learned.
And re: any child could have a problem, adopted or not? That's true, but it's a choice between bringing a child into this world with a challenging condition, or giving love to a child who already IS in this world with a challenging condition. Really different thing.
I would never say 'don't have a child' lightly, because it's a huge, huge deal. Very personal, always something to think about carefully, and when we know we're not in an emotional place. But sometimes it might be the right one for you, too.
It's something I am experiencing vicariously, as some very good friends of ours have a little one who is severely mentally handicapped, just a year old now, and it's been so heartbreaking. They've been doing genetic testing and every other type of testing you can think of as part of a 'should we try for other children ever' process, so I've seen how deeply painful the thought is to even contemplate.
I wish you the best of luck in making your decision.
Gluten free since August 10, 2009.
21 years with undiagnosed Celiac Disease.
Father, brother, and daughter: celiac positive
Son: celiac negative, but symptoms resolved on gluten free diet
Posted 13 April 2011 - 10:27 AM
I've been on the fence with having kids anyway and now that I was diagnosed with celiac in Sept I am really leaning towards not having them. Anyone else?
Type I diabetes and other autoimmune diseases run in my husband's family too. 2 of his first cousin's and his sister have Type I diabetes and his sister was just dx'd with Sjogren's also. My side has MS and RA and now celiac. RA is on his side too.
I think you are a very wise lady to take having kids so seriously and are considering different angles. I am 51 and made the decision not to have kids long before my diagnosis. However, I think it played into it on a subconscious level because I did not feel well for so many years. Honestly, I doubt I would have carried to term or would have had a messed up baby from the lack of nutrients.....scary!
Having said that, I don't think you should have kids right now. If you are on the fence about it, and are willing to admit you are and vocalize it (which you have), then you are not ready to have any. If you decide never to have any, that's fine and your life will not be any less for not having them. I have never regretted my decision and my husband and I live a very full life and are happy. We have fur children instead! Pets can really satisfy that maternal instinct. Above all else, do not have children for any other reason than the fact that you really want to be parents. Good luck with whatever you choose!
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