Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

Here Is My Story... Would Love Some Help!

5 posts in this topic

Here is what I got....

My son is currently 23 months old. He was born with jaundice but wasn't sever enough for anything and went away after a few days. That was the only problem we had at birth. When he was about a year old some test showed he was anemic and we put iron in his milk. We have never had really serious happen except the occasional trips to the er or doctor's office with 105 temps, which they now say is ok. Totally freaked me out still. We have been very fortunate until about 3months ago.

In late October he got really ill with one of those 105 fevers I told you about. We waited it out and just gave him medicine. He seemed to get better with the fever but you could just tell he was really sick. Took him to the ped and they did a blood count and determined his white blood cells to be abnormally high. they were at 22.5. Crazy high. The doctors just treated it as a bacteria infection and we moved on. My son has always drank excessive fluids no matter what it is. It is pretty crazy looking but this is what always kept us out of the hospital from dehydration with those high fevers. He can literally drink a full capri sun in one breath!!

December 22 he threw up one night after drinking milk. He had no fever or anything, he just could not drink milk. Then the diarrhea started. I had never seen anything like this before. It was horrible. Just pure fluid. This lasted for about 2 weeks. In the mean time I knew that dairy was not good with an upset tummy so he was drinking my soy mild instead. The diarrhea lasted for a month in this form. It was happening 3 or 4 times a day. Not Good! Took him to the doc and they put him on an antibiotic. It helped for like one diaper change. Oh and his stool is the worst smell ever. I mean it really stinks. He had two hard stools finally so I slowly started hiving him dairy back and now his stool is super soft (like thick runny, if that makes sense) and smells really bad still.

Yesterday I noticed he had a few more bruises than normal. Yes he is a typical boy jumping and flying off everything but these bruises are really bad! They are covering his legs three on his back, one big on on his hip, little ones on his arms, and 4 bruises on the front of his head. I am afraid for any body to see him!! First thing in the morning I am taking him to his pediatrician with my list of symptoms from the time he was born. I am worried that there is a link between all of it... Can someone let me know what they think! I am a worried mommy!

Symptom recap...

born with jaundice

Anemia at 9 month old check up

Excessively drinks fluids

At 18 months had white blood count of 22,000

Dec 22 threw up once

Dec 23 Started having very foul smelling diarrhea and has lasted 1 month now

Lost 1 lb in the last month (25lbs to 24lbs)

Red, tired eyes

Loss of appetite

more irritable than usual (expected in a 23 month old... terrible twos!)

Just recently excessive bruising all over

I really need some input. The weird thing about this list of symptoms is that I have most of symptoms as well. This is why I started on soy milk.


Share this post

Link to post
Share on other sites

Ads by Google:

You must be suspecting Celiac for both of you.

Talk to the Dr. about testing, or go gluten free and see if it helps. All of the symptoms appear to be consistent with Celiac from what I have read and experienced. You are right to be concerned.


Share this post

Link to post
Share on other sites

Ask to be reffered to a ped. gastro. It is not an easy dx for Celiac and you should work with a specialist. (I would lie and say a close relative was just dx. and you need to be screened for it.) Remember tests for patients under 24 months are notoriously false negative. Do NOT start the diet, until all testing is completed!


Share this post

Link to post
Share on other sites

Your story sounds like I wrote it. I have twins that are 26 mon and we had one dx at 23 mon. All the things you said happened to us. I have the same issues myself and also am anemic. We have noticed night and day diffrences since changing her diet. To dx her we had taken her to get a second opinion with another ped dr after frequent trips to the hospital and the last 6 months of dealing with nonstop issues. who then sent us to a ped allergist who blood tested her. We started the celiac diet a few weeks before she was tested and noticed big changes within around 2 wks of the diet. Have you tried the diet? It's a tough diet to follow at thier age, especially having a twin with no celiac problems but you will notice the change if thats the problem.

we had a possitive result even on the gluten free diet.

Good luck to you both. Hope you let us know how you're doing


Share this post

Link to post
Share on other sites

Just another question here, don't mean to hijack your post :P Is jaundice typical for babies with celiac? Both my girls had jaundice. Our youngest was sent home with light therapy for it. Just curious.


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • The Gluten Free Expo is the only certified international fair 
      dedicated to gluten free market and products.
      The fifth edition will be held in Rimini Fiera 
      from 19th to 22th November 2016. [] View the full article
    • 300 year old Charleston, South Carolina is internationally renowned for it's historic significance, unique architecture, Southern charm, coastal beauty and Low Country foods.  From Fort Moultrie during the American Revolution to Fort Sumter the scene of the first shots of the Civil War, this city has been involved historically. Rainbow Row, a colorful collection of houses and the mansions along the Battery offer the best examples of this glorious age. Area plantations and gardens offer a fascinating glimpse into the history and natural beauty of the Low Country.   We've put together a five (5) day Mini Getaway to give you a taste for the city and its many charms. Each of the Chefs have taken on my challenge to create delicious and memorable gluten-free meals. We will be eating at a variety of great restaurants offering us specially prepared foods of the area and more - gluten-free, of course.
      Staying at the beautiful and historic Mills House Wyndham House Wyndham Grand Hotel in the middle of the historic district we will explore in and around the city so that you can better appreciate a wide variety of the so many things to see and do.

      We have arranged a Walking Tour of the Historic district; a Low Country Cooking Demonstration by the Executive Chef at the hotel; an all-day tour of the World Famous Magnolia Plantation & Gardens: Boat tour and visit to Fort Sumter.  And of course Gluten-free Dinners at a variety of great Charleston restaurants.
        We have left you free time for you to select other places you may want to visit, such as the USS Yorktown Carrier; Straw Market; Romantic Carriage rides: and so much more - like shopping.  You may even want to spend more time than we've arranged, but no worry - we can provide you with additional days at great rates.

      We would love to have you join us in one of America's oldest cities with so much Southern Charm, history and things to see and enjoy.  Bring your family and friends - they don't have to be Gluten-free to enjoy this Getaway.   MAKE YOUR RESERVATIONS by   JUNE 3, 2016  And receive an  EARLY BIRD SPECIAL  DISCOUNT  $25/PERSON
    • [] View the full article
    • The 2nd Annual Gluten-Free Oktoberfest in New York City is the first gluten-free event of its kind on the East Coast. gluten-free Oktoberfest was created so that people with gluten intolerance or celiac disease could safely come together and mingle while enjoying a selection of over 45 gluten-free ciders and beers and an unlimited amount of gluten free food. To add to the fun, meet some of the cider makers and brand ambassadors! Feast on a full gluten-free Oktoberfest menu with traditionally mouthwatering sausages, meatballs, pizza, pretzels, desserts, and much more.There will be vegetarian options too!  gluten-free Oktoberfest was founded by Jeffrey Reiss, founder and owner of Pie by the Pound, a New York City restaurant that specializes in the gluten ­free pizza. In 2004, Jeffrey discovered his own gluten intolerance and adopted a gluten ­free lifestyle. At his restaurant, Reiss prepares gluten ­free pizza, sandwiches, desserts and sells a wide variety of gluten ­free beer and cider, making Pie a food haven for the gluten­ free community. Reiss says he strives “to maintain one of the biggest menus of gluten free beer and cider on the East Coast with a rotating list of favorites. This will like be a sold out event and the tickets are non refundable. Rain or shine the event will still be taking place. Thanks so much. We look forward to seeing you there! Purchase tickets via secure eventbrite link below..   GFOKTOBERFEST.COM   PIEBYTHEPOUND.COM View the full article
    • I am going to go get the endoscopy done in a couple weeks so hopefully that will give me more answers. I just wanted to hear some input from people with Celiacs so this helps a lot. Thank you so much!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member