Here Is My Story... Would Love Some Help!
Posted 23 January 2011 - 12:40 PM
My son is currently 23 months old. He was born with jaundice but wasn't sever enough for anything and went away after a few days. That was the only problem we had at birth. When he was about a year old some test showed he was anemic and we put iron in his milk. We have never had really serious happen except the occasional trips to the er or doctor's office with 105 temps, which they now say is ok. Totally freaked me out still. We have been very fortunate until about 3months ago.
In late October he got really ill with one of those 105 fevers I told you about. We waited it out and just gave him medicine. He seemed to get better with the fever but you could just tell he was really sick. Took him to the ped and they did a blood count and determined his white blood cells to be abnormally high. they were at 22.5. Crazy high. The doctors just treated it as a bacteria infection and we moved on. My son has always drank excessive fluids no matter what it is. It is pretty crazy looking but this is what always kept us out of the hospital from dehydration with those high fevers. He can literally drink a full capri sun in one breath!!
December 22 he threw up one night after drinking milk. He had no fever or anything, he just could not drink milk. Then the diarrhea started. I had never seen anything like this before. It was horrible. Just pure fluid. This lasted for about 2 weeks. In the mean time I knew that dairy was not good with an upset tummy so he was drinking my soy mild instead. The diarrhea lasted for a month in this form. It was happening 3 or 4 times a day. Not Good! Took him to the doc and they put him on an antibiotic. It helped for like one diaper change. Oh and his stool is the worst smell ever. I mean it really stinks. He had two hard stools finally so I slowly started hiving him dairy back and now his stool is super soft (like thick runny, if that makes sense) and smells really bad still.
Yesterday I noticed he had a few more bruises than normal. Yes he is a typical boy jumping and flying off everything but these bruises are really bad! They are covering his legs three on his back, one big on on his hip, little ones on his arms, and 4 bruises on the front of his head. I am afraid for any body to see him!! First thing in the morning I am taking him to his pediatrician with my list of symptoms from the time he was born. I am worried that there is a link between all of it... Can someone let me know what they think! I am a worried mommy!
born with jaundice
Anemia at 9 month old check up
Excessively drinks fluids
At 18 months had white blood count of 22,000
Dec 22 threw up once
Dec 23 Started having very foul smelling diarrhea and has lasted 1 month now
Lost 1 lb in the last month (25lbs to 24lbs)
Red, tired eyes
Loss of appetite
more irritable than usual (expected in a 23 month old... terrible twos!)
Just recently excessive bruising all over
I really need some input. The weird thing about this list of symptoms is that I have most of symptoms as well. This is why I started on soy milk.
Posted 23 January 2011 - 01:41 PM
Talk to the Dr. about testing, or go gluten free and see if it helps. All of the symptoms appear to be consistent with Celiac from what I have read and experienced. You are right to be concerned.
Posted 24 January 2011 - 02:00 PM
Posted 25 January 2011 - 02:25 PM
we had a possitive result even on the gluten free diet.
Good luck to you both. Hope you let us know how you're doing
celiac daughter 2 yrs old
dx 10-2010 Gluten free since
in the process of having the whole family Gluten Free
Posted 25 January 2011 - 05:54 PM
ODD 3 1/2, positive for DQ8 and DQ6, negative celiac panel after 3 month gluten challenge. Gluten free as of 3/10/2011
YDD 2, no testing. Positive for DQ8 and DQ6. Possible DH. Gluten free as of 3/10/2011
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