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Self-diagnosis - Is It Cd? Please Help
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I stumbled onto this forum and was hoping someone might be able to help me self-diagnose. I have been to a couple of different holistic Docs who tested me and said I was allergic to wheat, barley, corn, etc etc. Anyway, I suffered through a 2 year long bout of gas, gurling tummy, stomach pains and loose bm's... it cleared up for a while once I went ot an allergist who told me to avoid the wheat and stuff... anyway in November my stomach problems came back with a vengence... and it has been constant since then - just terrible. I do not want a diagnosis mentioning any "disease" on my medical records as we are really close to completing an international adoption and that would look bad on our medical reports... so I picked up a magazine in Sprouts on Saturday and it described exactly what I was going through.... so I guess what I am looking for is confirmation of sorts that this could be the answer to my problems.... any advice, information etc would be great.. thanks

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This website along with the message board has a plethora of information. You might want to try looking on the site and searching the message board for the great information.

-Jessica :rolleyes:

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What sorts of things are you allergic to?

I too am allergic to corn, wheat, dairy, soy, nuts, eggs.. you name it its probably on my forbidden list.

Were all here to help... The site is wonderful and can help you learn a LOT about Celiac. Good luck. and congrats on the new soon to be kiddo in your lives!

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SadiesMomma - I sound like you.... I am allergic to bananas, potatoes, corn (in any form) pectin, brocolli, cauliflower, buckwheat, wheat, soy, dairy, and the list goes on...... in reality I seriously think I have celiac disease, apparently my Mother said we were all allergic to milk when we were kids (all 6 of her kids) grrr she only told me this on Sunday.... I still eat bannana's and some of the veggies, even though the allergist told me that I am allergic to them, its just that there is a limit to not eating... lol... I am going to avoid gluten from now on, and dairy of course.. "rice milk is my friend" I will see how it goes.... I am fairly certain that I can control my "IBS" like symptoms this way....

Thanks for the congrats on the kiddies...

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Would you review this on Find Me Gluten free?  You can  use the app or just go to it on line. If the restaurant isn't listed, there is a way to suggest it.  I have done that and it works.  Many of us look at that site/ app
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