Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gluten Reintroduction ... Your Personal Story Or Advice?
0

8 posts in this topic

We did a gluten reintroduction yesterday for my 2.5 year old. She's been gluten free for about a month. All she ate was less than 1/4 of a Cinnabon cinnamon roll.

All her life, she's had very loose stools with undigested food in them. It's NEVER been a nice brown color, more like tan or yellow. It's always had a kind of "acidic" smell to it, if that makes sense to anyone. She's never been failure to thrive or anything, and other than being a bit irritable, hasn't been an overly fussy child. I've always been worried about her bm's, and one day I accidentally stumbled across gluten intolerance and thought we'd give that a try for my husband (who has all the typical D & C, bloating, etc.) then figured we'd give it a try for my little girl too. Within a week, her bm's had normalized enough to actually make it to the potty on time. Within two weeks, they were a fairly normal brown color, still a little loose though. I took out dairy products, and then it normalized even further. She has frequently (and randomly) thrown up for no good reason in the middle of the night. She did that the night before our planned reintroduction day. But then she was fine again in the morning. She ate a whole banana and drank some water and was bopping around our playroom with my 4 year old.

Then came "brunch". Cinnamon rolls. She only ate about half of what I gave her before she stopped eating and looked ill (in the past she has always loved cinnamon rolls). She went outside to play anyway, and then started looking very red-cheeked (no fever) and sleepy. I put her down for a nap. When she woke up it was time for lunch. Her favorite food was on the menu. She wouldn't eat ANY. Then about 10 minutes later, she threw up bits of cinnamon roll, but no banana. She felt visibly better after that, and has not thrown up since. She has eaten bland foods like gluten-free crackers and bananas since then. She had a bit of yellowy diarrhea yesterday evening. She had gas pains and frequent waking throughout the night. Got in our bed at 6:30am and slept until 11am! This kid normally wakes up by 7am on the dot, every day - definitely a morning person. She looks and smells "sick". She wouldn't eat at first, but was drinking lots of water, and now has had a banana and some more gluten-free stuff. She says that her tummy hurts, and that "her food keeps coming back in her mouth" and that it hurts in her neck, so I'm assuming heartburn or reflux or something? Now she's had a bm, and it was very pale in color, but good consistency, not diarrhea. She's just now starting to perk up enough to want to get out of my bed and move around a bit - and it's 1:30pm.

My husband is skeptical that her reaction was to gluten, and that maybe she's got a virus or something instead. (His own reaction to gluten yesterday was just being really tired, bloated, and gassy, but he wasn't miserable or anything.) He's been skeptical all along, even though I feel in my heart that gluten is the issue for her. "Maybe it's not gluten, honey, maybe it's just a bug and she's fine with gluten."

Can y'all out there help me? Do all of her symptoms sound like a virus, or a glutening, or what? Any personal stories to share about you or your child's reintroduction to gluten?

0

Share this post


Link to post
Share on other sites


Ads by Google:

It's really hard to say if its a flu bug or gluten. I will suggest that you put the child back on wheat products & do the proper testing so you know....the reason I say this is that in the near future the child will be attending school.For the school to be permitted or willing to feed the child gluten-free under the disabilities act they will need the illness documented....Our kid had an endo at age 2 1/2 so she can be tested....this way you know for sure.

0

Share this post


Link to post
Share on other sites

You can't really be sure. You can try going back on gluten to have her tested. You can also take her gluten free again, see if things clear, and try another challenge. One time might be a coincidence; twice is much less likely.

0

Share this post


Link to post
Share on other sites

Since I originally posted this question, she went from bad to worse. Yellow diarrhea, undigested food, gas pains, and horrible reflux. It's EXACTLY like she was before we went gluten-free. No one else in the family is ill in the slightest, and she has no other symptoms of a cold/virus. In addition, I checked her food journal, and the three times she's thrown up randomly overnight since going gluten-free are when she's had a decent amount of dairy in the afternoon/evening. (She had dairy the night before our gluten reintroduction.) I am absolutely, positively SURE that it's all a reaction to gluten.

But I would still really like to hear anyone else's reintroduction stories!!

0

Share this post


Link to post
Share on other sites

Since I originally posted this question, she went from bad to worse. Yellow diarrhea, undigested food, gas pains, and horrible reflux. It's EXACTLY like she was before we went gluten-free. No one else in the family is ill in the slightest, and she has no other symptoms of a cold/virus. In addition, I checked her food journal, and the three times she's thrown up randomly overnight since going gluten-free are when she's had a decent amount of dairy in the afternoon/evening. (She had dairy the night before our gluten reintroduction.) I am absolutely, positively SURE that it's all a reaction to gluten.

But I would still really like to hear anyone else's reintroduction stories!!

My dd was diagnosed with a blood test and biopsy as I am sure many others here so there is no reason we'd ever do a reintroduction. I would get the blood test done while she is on gluten and get a formal diagnosis. If she doesn't wind up testing positive for celiac then you can always put her back to gluten free and go with your own findings of gluten sensitivity, but to me it would be really important to get that diagnosis done. For us there were a lot of reasons to wanting to get the testing done formally including the risk for other siblings and also the risk of CC in our household. Because my dd is so sensitive to gluten we have had to get the whole family gluten free. If your dd actually has celiac it may not be enough to just eliminate gluten out of her diet. She may need accommodations at school and your whole family may need to go gluten free. Also, with a formal diagnosis you can have repeat tests to help judge whether she is being contaminated or exposed to gluten. It may seem like a pain to get her tested, but I would strongly encourage getting it done.

0

Share this post


Link to post
Share on other sites




It sounds like gluten intolerance to me. The best test is the reaction. My son is 7 and thrives on a gluten-free diet. With myself, I noticed that I could not tolerate dairy if I was consuming any gluten, but after I was gluten-free for awhile, dairy products were tolerable again.

With many celiacs, the intestinal bacteria gets off balanced as well, so it may be helful to give her some gluten-free yogurt for awhile to help balance this out. Every time my son and I accidentally ingest gluten, we have to take a "gluten-free" probiotic for a few days following the incident to keep the intestinal tract in balance.

Many studies show that it can take as long as a year to completely get a body stop showing signs of the gluten intolerance, even after going gluten-free. I suggest keeping your daughter and husband on a gluten-free diet.

As long as they are better without the gluten, that is all the testing one really needs.

My son's doctor didn't feel that it was necessary to test him. He said if he isn't sick on the gluten-free diet, than keep him on it. Since I pack his lunch every day, I don't have to worry. I even signed up to help with all of his classroom parties so I could ensure that he had a gluten-free option. When I wasn't able to do this, the school would keep a gluten-free cupcake around (that I would send) in the event they had an unannouced party.

Being gluten-free isn't easy, but it does get easier with time.

0

Share this post


Link to post
Share on other sites

When my son turned two (and had been gluten free for the MOST part) I was trialing a few foods and gluten was one that I suspected to be an issue. He tested positive for delayed wheat allergy as well as dairy. So I gave him baby barley cereal and his next bowel movement was PURE black! The next few went from battleship gray to poo marbled with red blood before going back to the normal brownish. Occasionally he'd have yellow, acidic, "fluffy" poo with lots of undigested food in it. He tested negative with the blood tests, which I figured would happen since he has been MOSTLY gluten free since birth and the biopsy/scope was negative but with damage in the intestines from, what the GI says, food allergies. What the difference is I don't know but she is the expert. I do know that gluten does cause bleeding and other GI issues with my little guy.

0

Share this post


Link to post
Share on other sites

A test may not necessarily catch what she has, either.

This is a good link to an article about a recent study on non-celiac gluten intolerance.

http://online.wsj.com/article/SB10001424052748704893604576200393522456636.html

There are not tests for this other than food journal and gluten challenge, I'm afraid. Considering her reaction, I'd keep her off the gluten for a few more months and challenge again at maybe 6 months or a year.

My friend's son has never been diagnosed - he's 2 - but after what my family went through, and the similarity with her son's symptoms, she tried him on the gluten free diet. Accidentally, they did a 'gluten' trial when he got in the dog food, LOL.

He had similar reaction, bowel-wise. Bowel movements were very affected. He gets red cheeked, sometimes red rash on his bottom. He gets the opposite - he goes into this manic-hyper craziness that lasts for a day or two and drives everyone insane.

My daughter has severe stomach pain very quickly, usually less than 20 minutes after ingestion (she's a diagnosed celiac, and this is just with cc, not even eating actually gluten on purpose), with lingering lethargy, lack of appetite, stomach pain, and we think this last time she had vomiting as well.

It could have been a stomach flu, yeah, but the only way to tell is to keep her off of it again and try later. Because if just this set her off into vomiting, then actually putting her back on gluten seems like a bad, bad idea.

I'm a celiac, and so is my father. My father reacts like it sounds like your husband does - with just a little gastro distress maybe the next day. He was pretty skeptical of the kids' reactions happening so rapidly and violently, but having been here now for a few 'glutenings,' he's a believer.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,367
    • Total Posts
      920,556
  • Topics

  • Posts

    • This easy to make bean dip makes a great addisiton to any good munching session. Goes gret with salsa and gluten-free beer. View the full article
    • Good grief!  :o. I'm so sorry, I wish there was something I could do or say to help you.  I agree with the NP, your primary needs to be requesting copies of your records from the other doctors, as well as the records and lab reports from your hospital stay.  They are supposed to work together as a team, not just individually out in left field.
    • Just a quick one to say I got a diagnosis of celiac disease today. I know in the past it's been helpful for me to know the outcome for other folk, so thought I would update. The moral of this story is even with a VERY borderline blood test it's worth persisting. thanks for all the help Sue 
    • Our own resident gluten-free expert is Suzie Davies. Suzie has been dedicated to gluten-free products since she was diagnosed with celiac disease ... View the full article
    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,443
    • Most Online
      1,763

    Newest Member
    Richard Green
    Joined