Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Severe Gluten Withdrawals
0

6 posts in this topic

Hi there everyone. I'm new to the forum and also new to the gluten-free diet. I have been gluten and casein free for the past 3 weeks, with a few minor accidents; however, I have been having extreme withdrawal symptoms. I've always had anxiety disroders, but it has dramatically increased since going on a gluten-free diet. I have been nervous with almost no provocation and had multiple panic attacks while just trying to fall asleep! I'be woken up in the middle of the night with the "shakes" and also have been feeling extremely fatigued. My gastrointestinal problems are essentially how they were before I started the diet and I think the fatigue is improving. I was just wondering if these symptoms are normal? And if eating a small amount of teriaki sauce last night by accident(one small sliver of meat basted with it), and accidentally ingesting soy sauce over a week ago will prolong my withdrawals? Thank you.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi there everyone. I'm new to the forum and also new to the gluten-free diet. I have been gluten and casein free for the past 3 weeks, with a few minor accidents; however, I have been having extreme withdrawal symptoms. I've always had anxiety disroders, but it has dramatically increased since going on a gluten-free diet. I have been nervous with almost no provocation and had multiple panic attacks while just trying to fall asleep! I'be woken up in the middle of the night with the "shakes" and also have been feeling extremely fatigued. My gastrointestinal problems are essentially how they were before I started the diet and I think the fatigue is improving. I was just wondering if these symptoms are normal? And if eating a small amount of teriaki sauce last night by accident(one small sliver of meat basted with it), and accidentally ingesting soy sauce over a week ago will prolong my withdrawals? Thank you.

Hi!

I've been glutenfree for almost three months now and I had similar withdrawal symptoms to your symptoms the first month. I had a lot of panic attacks,freaked out on an airpane and stuff and a burning sensation in my tummy and throat. I've been having the burning sensations on and off since but not very often.I've been very hungry all the time and bloated but its getting better. My heart acted really weird also the first weeks and I even called the hospital on two occasions.

I can't believe how strong the power of gluten is!

Are you extremely hungry too?

0

Share this post


Link to post
Share on other sites

Part of it may be a reaction to the gluten you accidently injested. After we go gluten free our reaction to small amounts can be intensified. That is normal as it is your bodies way of telling you that you are doing the right thing and it really doesn't want gluten. If you can go with mostly unprocessed whole naturally gluten free foods that is best for now as it will bring down your chances of accidently getting gluten.

Make sure you have done the things you need to do to degluten your home, a new dedicated toaster, replacing scratched pans, new colander and cutting board and don't bake with flour for others.

It can take a couple of weeks for the withdrawl to be over, take it easy on yourself during this time. A nice hot bath right before bed may help. If you are suffering greatly from lack of sleep perhaps contact your doctor and ask for advice or a short term prescription for something to help. If you do use any OTC or script drugs or supplements do make sure that they are gluten free.

0

Share this post


Link to post
Share on other sites

Hi!

I've been glutenfree for almost three months now and I had similar withdrawal symptoms to your symptoms the first month. I had a lot of panic attacks,freaked out on an airpane and stuff and a burning sensation in my tummy and throat. I've been having the burning sensations on and off since but not very often.I've been very hungry all the time and bloated but its getting better. My heart acted really weird also the first weeks and I even called the hospital on two occasions.

I can't believe how strong the power of gluten is!

Are you extremely hungry too?

Hi guys!

I had the SAME symptoms the first few weeks---accelerated anxiety, difficulty sleeping, tummy and throat burning, feeling out of sorts, bloated, heart palps and yes! very hungry!! (which is good, I guess as I could not/did not want to eat much for a long time)....but lots of people on here told me this happens and it will pass. That made me feel a whole lot better.

It is pretty weird, but just proof that the gluten has got to go!

Hang in there. I will too!!:>)

Ginny

0

Share this post


Link to post
Share on other sites

multiple panic attacks while just trying to fall asleep! I'be woken up in the middle of the night with the "shakes"

You're describing my exact symptoms during "withdrawal", and that lasted about 3 weeks for me. I know it makes you feel badly and it was definitely a little frightening at times, but it was great comfort to come to this forum and find MANY people who knew exactly what I was going through, and that it was absolutely normal for my body to be reacting that way. Not sure why, but hot showers helped me (perhaps aided in detox, unsure). Just hang on, let your body do its thing, and know that you're not alone.

0

Share this post


Link to post
Share on other sites




Wow, thank you so much all of you for the positive and uplifting responses! I hope you're all feeling better from your individual experiences. In addition to my other symptoms, yes, I have been extremely hungry! I'm trying to stay away from processed foods as much as possible it's just very hard when constantly on the go; however, I have been pretty ardent about checking labels and doing research for hidden gluten. I've also been having headaches and weird pupil dilations which I assume is also related tot he fatigue and withdrawals. It helps a lot knowing that I'm not alone. Thanks, hopefully it'll be over soon.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,648
    • Total Posts
      921,601
  • Topics

  • Posts

    • I think the gene tests are accurate.  Not sure if thier interpretation of them is.   If you actually think have Celiac, you need to know that.  You  need to know how careful you must be.  You need a diagnosis to get gluten-free food in hospitals or nursing homes (if you can find one that does gluten-free food).  Because thsese "stool tests" are not medically accepted, it is unlikely that a real medical facility will consider you to have Celiac.   http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/
    • Why would your doctor order an endoscopy and check for celiac disease, but not order a celiac panel?  Had you been gluten free already?  
    • Thanks cyclinglady ... just wondering, do most of the people on this forum believe the Enterolab stool / gene testing to be non-trustworthy? Or are you just recommending a diagnosis from my MD so that she is also treating me with full belief/knowledge of my condition? I've been gluten free now for 2 weeks - by the time I get in to my doctor, she orders the bloodwork and I get to a lab it could be another 2 weeks before the bloodwork is done. From what I understand, just a month of gluten free eating could skew the results of the blood test. Supposedly, the stool tests are much more accurate. I hate to go backwards and start eating gluten again just so I can have a blood test done that may or may not substantiate the results of the stool / gene testing. I'm so confused ...
    • Try to stick to a whole foods diet.  Things like unseasoned stew, soup, etc.  Things easy-to digest, preferably not processed by a anyone except you.  Too often new celiacs start using gluten-free foods (cookies, bread, crackers).  Your body is not used to these grains and they often contain lots of junk.  For example, I react to Xantham gum.  It does not bother my gluten-free hubby, but it gets me every single time!   Did you read our Newbie 101 thread under "Coping"?   It contains lots of valuable tips.  Make sure those meds are gluten free.  Supplements too.   I hope you feel better soon!    
    • Here are the actual tests.   http://www.cureceliacdisease.org/screening/ Insist on the complete panel.  Let them know (your doctor) that your father had celiac disease.   Document in writing!  If you have celiac disease, your life can be improved.  All the things I attributed to aging were actually related to celiac disease.  It is never too late to feel well!  I am in my 50's but my Aunt iis 81.  We celebrate a Gluten free Thanksgiving every year!   Oh, my kid does not have celiac disease, but she is tested every few years even though she is symptom free!  There are silent celiacs.  My symptom?  Anemia.  No tummy issues.   Please advocate for your health.  Keep all records.  Doctors can not ignore written facts and requests.    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,653
    • Most Online
      3,093

    Newest Member
    KerryO
    Joined