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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

A Virus? Cc? Hormonal?
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6 posts in this topic

Since around mid-last week, I've been getting my typical lower-left abdominal pain which tells me I need to back off and return to the simple recovery diet. I went back to rice, eggs, bananas, rice cakes, applesauce and toast (usually with butter and occasionally some brown sugar). Yesterday I ate turkey sandwiches for lunch and dinner (I had to work and needed to pack something more filling that rice cakes and applesauce). I was planning to back off this week anyway in preparation for those lovely hormonal fluctuations which tend to knock me flat.

Well, since Saturday or Sunday I've been getting that crampy, bloated pain and had abnormal BMs after eating anything- not D but not quite right. I cut back on the butter, sugar and applesauce in case it was a fat or fructose reaction, but it didn't seem to make much of a difference.

The cramping/bloating was worse yesterday and woke me up early this morning necessitating several trips to the bathroom. Then I started feeling nauseous; slugged down some Pepto and water, fell asleep for about half an hour and then woke up to grab the garbage can. This happened about every 20 minutes for 2 hours. Finally fell asleep around 8 and didn't wake up until 10:30. I've been emailing professors and supervisors for the last hour and have not had to get up again, but I haven't even had any water since I woke up.

Noro-virus has been going around school, along with other flu-like bugs and a number of my friends/classmates have been sick. This feels a bit different from my usual food/hormone episodes in that I'm not achy all over or in a brain fog. My mom told me that the cramping BMs and nausea/vomiting are the signs of noro-virus, but the fact that the pain is in the same exact lower-left area as it is when I have the food reactions has me confused. I am doubtful of CC--I've been prepping my own food and haven't had any problems with these foods in the past (although I've heard from some of you that the Ener-G bread I've been using can cause some symptoms).

I am skipping class and work today in case I am contagious. Whether it's a virus or hormones or food it will be better in a day or two, but each dictates slightly different precautions... How do you narrow it down???

Thanks for the vent-session.

Bridget

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It sounds like stomach flu (norovirus) to me. The pain can be in the same place as celiac pain (it isn't always, but it can be). The vomiting you describe sounds more like a virus than gluten. I hope you feel better soon!

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It sounds like stomach flu (norovirus) to me. The pain can be in the same place as celiac pain (it isn't always, but it can be). The vomiting you describe sounds more like a virus than gluten. I hope you feel better soon!

Thank you. I did read that pre-existent digestive disorders can actually exasperate flu and other viral symptoms. Considering the number of absences in so many of my classes, I guess it was only a matter of time.

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Thank you. I did read that pre-existent digestive disorders can actually exasperate flu and other viral symptoms. Considering the number of absences in so many of my classes, I guess it was only a matter of time.

That is interesting about exacerbating it. I have wondered that, because I feel like everyone else in my family tends to get over stomach bugs more quickly and easily than me.

If you find yourself not fully getting over this episode, try probiotics. WHen I had a stomach bug over Christmas they really helped.

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That is interesting about exacerbating it. I have wondered that, because I feel like everyone else in my family tends to get over stomach bugs more quickly and easily than me.

If you find yourself not fully getting over this episode, try probiotics. WHen I had a stomach bug over Christmas they really helped.

I've heard a lot of good things about probiotics, but haven't really looked into it for myself. What do you use?

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I've heard a lot of good things about probiotics, but haven't really looked into it for myself. What do you use?

I use New Roots Acidophilus Ultra. If you do decide to try some, if you can get them from a health food store rather than a drug store, that is better. They should be refridgerated and the drug store ones are not. I think any brand is fine, or just ask the staff to help you--they usually know a lot. Hope you're better soon.

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    • Weird Reaction
      Thank  you Flowerqueen and Cristiana for your replies. I'm actually feeling much better today. I got my appetite back yesterday lunchtime (a few hours after I typed the original post) and managed to keep in/hold down some chicken and lettuce!!! I also had a "fat" coffee (as I call it) before work with MCT Oil and butter (your probably going "yuk" right now but it's really nice...really haha) and started feeling a bit better after that. The nausea went away almost immediately after that although just the thought of having all that fat nearly made me sick but I just wanted to get back to normal asap. I usually have a lot of fat in my diet anyway which is normal for me so the coffee choice isn't unusual. Plus it was also the third day which was when I started feeling better after the first time. I didn't eat til lunchtime and I was good and hungry by then so I knew I was coming out of it. That nausea and trembling feeling is something I don't want ever again. I think after the workout and tearing down muscle tissue (which is a form of stress) and then not being able to hold the nutrients in for repair affected my nervous system. My theory only but to me it makes sense. Although Vitargo also comes in flavors I always get the Natural / Unflavored one so the barley is the only ingredient. As for there being something wrong with that particular batch, well, you be on to something there. Also I'm not knocking the product because as I said, I have used it before and it did exactly what it was supposed to do. But, I will never have it again. Cristiana, my last blood test revealed I had slight anaemia which really surprised me with the amount of red meat I've eaten during my life and the anxiety thing is also new as I'm usually a happy, positive person. Life is good but after this recent reaction I think it is an indirect cause of the glutening. I'm also surprised at how sensitive I've become to it and how quickly. Also what is DX? I also follow a FODMAP eating plan (I can give you more info if you haven't heard of it) which also eliminates certain foods. It's a plan directed mostly at IBS but is well worth looking into if you are suffering any gut health, digestion issues or any ailment you may have which you can't get to the bottom of. Broccoli was one of the foods which I have cut back on and I've eaten HUGE amounts of broccoli so it is a superfood for some but apparently not for others. (I even think I read somewhere it has MSG naturally in it) It's hard to find any bad articles on broccoli so this also really surprised me. It also answered a few other questions I had. Many, many thanks again to you both for your replies. It actually settled me just reading them. I'm glad I found these forums so I don't think i'll be a stranger around here for long.   Richard
    • Confused
      Okay, I get that you are not going to follow the advice from some stranger on the internet, but please read the links that I gave you.  Your doctor is not following the standard level of care.  I am dead serious.  I have Kaiser.  My own GP doesn't have a clue about celiac disease, but my Kaiser GI does.  Please, I urge you to get properly diagnosed.  All celiac testing requires you to be on a gluten diet.  If you go gluten free even for two weeks (it will take time to get the referral and appointment), it will mess up the tests.  Your GI will put you back on a gluten diet (called a gluten challenge) for 8 to 12 weeks.    Chances are (almost 100%) you will feel more miserable!  That will just delay your diagnosis.   Symptoms not bad you say?  I had pretty severe anemia, but no tummy issues.  Two months after my diagnosis, I fractured my back DOING NOTHING!  Yep, I have osteoporosis from undiagnosed celiac disease and I am an athlete!   Please take this seriously!    
    • Silent Celiac or Non-digestive symptoms
      Oh, you might learn how to tell if you had been glutened.  I just had anemia as my main symptom.  I did not have any tummy issues at all.  I was in shock when my doctor even suggested testing me for celiac disease!   Glutenings can vary as we are all different.  For some it is just a few days, others a few weeks and others months (that would be me).  My last official glutening as supported by follow-up antibody testing lasted for three months.  Guess what?  I had vomiting, abdominal pain, the works!  Funny how celiac disease can change and evolve over time.   Welcome to the forum!  Have some patience and learn all that you can.  The good news is that you can feel better and no medications are required!  
    • Confused
      Thank you for the information. I've been not sure if I should eat gluten or not right now. Dr. said I should watch what I eat when I emailed him the question. My symptoms aren't very bad (I understand that doesn't matter for celiac disease), so I can definitley tolerate the food. But I have been starving myself the last few days due to not knowing what the heck is going on. Thanks again.
    • Could this possibly be related to celiac or a gluten intolerance?
      If you did actually have celiac disease, it can take weeks, months and years to recover from some of your symptoms, especially neurological ones.   Best to get screened for celiac disease.  It's a simple blood test.  Any medical doctor can do it.  But a GI doctor is needed for a diagnosis, since an endoscopy is part of the diagnostic procedure.  BUT you have to be consuming gluten to get accurate results! http://www.cureceliacdisease.org/screening/ http://gi.org/guideline/diagnosis-and-management-of-celiac-disease/ Keep on researching.  I wish you well!    
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