Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Too Much At Once!
0

3 posts in this topic

OK, here’s a fun one for you. I just went gluten-free two weeks ago after being diagnosed as a celiac, and I’ve had a couple of “accidents” while learning the ropes. My immune system hasn’t really had a chance to recover yet, so I keep coming down with things.

The latest is laryngitis, picked up after flying to Chicago. I’m now under doctor’s orders not to talk for at least a week, maybe two. I just started learning how to explain my diet to people, and now I can’t talk at all! My partner is speaking for me, calling manufacturers, etc. He’s being wonderful and patient, but he’s not great at playing charades all day and it’s hard to get I’m just really frustrated—can’t talk, can’t eat, might not even be able to work.

If they send me home from work, I’ve already used up my sick days (dealing with celiac symptoms) so it would be unpaid. I’ve got a stack of medical bills, prescriptions to fill, gluten-free food to buy, student loan payments, a recently laid-off partner and NYC rent to pay! And I don’t even know how long it will be before I start feeling better. Can’t do much to bring in extra income without talking to anyone, either.

This also comes on top of getting some bad news about loved ones dying of cancer. I’m afraid I’m just going to go crazy. I’m seeing a therapist (had to type my half of my session last night!) so I have help, but I’m still having trouble coping. Any advice?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Speaking as someone who has gone through life with similar problematic circumstances including deaths, layoffs, relationship/living arrangement breakups, multiple health problems and other bad situations, I can only advise you to take things one step at a time, and try to cultivate patience. If you do this you will get through it all. You may want to try something to take your mind off these problems; it could be by doing something that you already enjoy, or something new. Get out and take in a museum, concert, lecture, etc. - New York has a lot to offer - much of it is FREE. Exercise works wonders, and is also free. I’d strongly recommend focusing your thoughts on how much BETTER you’re going to feel after being gluten-free for a long stretch.

Good Luck

0

Share this post


Link to post
Share on other sites

The first few weeks/months can be rough, but you will slowing start noticing improvements in your health. You also shouldn't get as sick so often once your body heals. Just be patient and try to get through this. I know what it is like and it can be discouraging, but things will be better before you know it. In the meanime, I would take celiachaps' advice and do things that you really like to do. Walking, running, sports, biking, sight-seeing, movies, music, ect. Personally, I love to get outside for a walk, listen to my favorite music, and watch a good movie. These things should help to get your mind of things for the moment.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,144
    • Total Posts
      919,566
  • Topics

  • Posts

    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
    • Thanks cyclinglady & manasota! I appreciate it. I came to give an update...... I'm still 99% itch free. I get a "place" like a bug bite once in a while that itches and I just use the prescription steroid cream on it & that takes care of the itch. My rash is healing up rapidly everywhere. Almost clear skin now! Yaaaaayyyyyyyyyy! Now for a rundown of the "treatment". For 20 days I took a 100mg doxycycline twice a day. Then we upped it to two 100mg doxy twice per day. I took those for 5 days & made rapid progress and the itching stopped. The doxy was getting my tummy though. It was getting really rough despite my eating yogurt. So on day 6 and day 7, I took two 100mg doxy in the am but in the pm I just took 1 of them. On day 7, I was nauseous for hours on end. So since I was still doing well without itching and the rash was healing everywhere, I decided to cut back some more. On days 8, 9, & 10 I have only taken two 100mg doxy in the am and none at night. I'm doing good and my tummy is much, much happier! No more nausea!  I'll update as things go along.
    • Many things can damage the small intestine besides celiac disease: http://www.cureceliacdisease.org/faq/what-else-can-cause-damage-to-the-small-intestine-other-than-celiac-disease/ Happily, I can share that I became a Great-Aunt this week for the first time  to a charming little boy. Sadly, my lovely 19 year old niece was diagnosed yesterday with Crohn's.  She had so many symptoms of celiac disease, I was sure she had it.  Actually, I was hoping that she'd have it, because Crohn's can be much worse.  At least there is a "cure" or known trigger for it -- gluten!   Anyway, your daughter might be suffering from something other than celiac disease.  It is possible.  It could be a food intolerance (e.g. milk).  My niece has suffered for years with periodic episodes of abdominal pain, vomiting, etc.  She doesn't have all the "classic" Crohn's Disease symptoms either, yet a recent pill cam revealed a lot!  Her endoscopy was normal.  Celiac panel normal.  Gallbladder scan normal (non-functioning gallbladder is a family curse).  My heart goes out to her, but at least we know what we are dealing with.  Will she ever get celiac disease?  It could happen. Keep advocating, Mom.  That's what I kept telling my SIL.  I also provided my SIL  a family health history tree that each GI was happy to receive.  Unfortunately, no one has had Crohn's in the family.  But, at least it allowed him to test my nieces gallbladder and for celiac disease (a full panel,  mind you).   It would not hurt to get a second opinion.  
    • That uncle bens 10minute brown rice with the gluten free table on the box, i been going through hell these last few days, this shit is Not gluten free its contaminated 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,176
    • Most Online
      1,763

    Newest Member
    Red Butt in hemet
    Joined