Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

For Those Of You With Soy Allergy...
0

11 posts in this topic

does soy lecithin and soybean oil bother you? I was pretty sure I had read somewhere that soybean oil and lecithin are NOT suppose to bother people with soy allergy, but I am sure both bothers me. Maybe I am wrong, and that soybean oil is also bad?

Thanks!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Soybean oil absolutely makes me dizzy within 10 minutes of ingestion. I do not have an allergy to soy, just intolerant because of the gluten/casein/soy connection.

0

Share this post


Link to post
Share on other sites

I can now handle the soy lecithin (in chocolate - maybe that's why :P ) but not the soy bean oil.

0

Share this post


Link to post
Share on other sites

huh, interesting. You know I think the thing I'v learned the most is: nothing is absolute. What works for one person doesn't always work with the next.

0

Share this post


Link to post
Share on other sites

Lecithin doesn't bother me, I can tolerate the oil once in a while but not too many times in a row.

0

Share this post


Link to post
Share on other sites




I can have the oil once in a while and not too much. I do my best to avoid it. I'm not sure if lecithin bothers me or not because I avoid it too. Chocolate gives me major heartburn and that's the only thing that I see soy lecithin in alone that I could try for an experiment.

0

Share this post


Link to post
Share on other sites

Soy oil bothers me and I avoid it like the plague, but I refuse to give up chocolate...so I say that I can tolerate lecithin!

I don't know for sure, but that's my story for now.

1

Share this post


Link to post
Share on other sites

Soy oil bothers me and I avoid it like the plague, but I refuse to give up chocolate...so I say that I can tolerate lecithin!

I don't know for sure, but that's my story for now.

HaHa!!!! You sound like me; wouldn't touch the oil but walk through fire for chocolate! :lol:

1

Share this post


Link to post
Share on other sites

I absolutely avoid the oil. Just a few Tostitos will give me that stabbing pain. I will occasionally allow small amounts of the lecithin, usually only for the sake of convenience. I drank those Boost protein shakes every day when I first went gluten-free but had to drop them because of the soy lecithin.

As for chocolate... Enjoy Life make allergen free bars called Boom Choca Boom. They make milk and dark. The dark tastes more like real chocolate... the milk tastes like a really cheap hollow Easter bunny :(

Ghiradelli is also an option: the higher the cocoa percentage, the lower the amount of other ingredients. I stick to 80+%.

0

Share this post


Link to post
Share on other sites

Ghiradelli is also an option: the higher the cocoa percentage, the lower the amount of other ingredients. I stick to 80+%.

I don't get Boom Choca Boom here but I do eat Lindt 70% which has no soy lecithin. Never eat anything under 70% because those are the ones that require the emulsifiers. But even some of the higher cocoa percentages do have soy lecithin and I have been known to indulge. However, there was a hug box of chocolates passed around several times at our opening night of bridge for the year last night, and I resisted!! ( :( cosI didn't know about the gluten, mainly). Looking forward to trying Boom Choca Boom in June, and getting back to Ghiradelli which I used to eat long before gluten free :D

0

Share this post


Link to post
Share on other sites

Mushroom, I love it when you like my jokes.

You laughed at My Grain Headaches :rolleyes:

and now about Chocolate! :D

That makes me happy cause like...um...I been in bed with this disease for 7 years and haven't made anybody smile, and I certainly wasn't smiling either. <_<

Thanks for making me smile.

And thanks everyone for the chocolate information!!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,351
    • Total Posts
      920,500
  • Topics

  • Posts

    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Would you review this on Find Me Gluten free?  You can  use the app or just go to it on line. If the restaurant isn't listed, there is a way to suggest it.  I have done that and it works.  Many of us look at that site/ app
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,415
    • Most Online
      1,763

    Newest Member
    Ails123
    Joined