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Am I Allergic To Something Else Also?
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2 posts in this topic

Ok so i was never officially *diagnosed* with celiac, because the tests, like a lot of others, kept coming back negative but i had all the symptoms and i felt so much better when i was off of gluten. plus it runs in my family. i wasnt back on gluten long enough to do the biopsy anyway thats probably why it came back negative. i had lesions, but they said not enough signs of damage to diagnose it. all of the doctors basically told me i have it and to get off gluten so i did. that was 3 years ago. im 15 now, and im feeling so much better and healthier. my appetite is back, i have grown 7 inches and gained 40 pounds (i was the same size for about 4 years, i completely stopped growing..) and the only thing the doctors could determine for me was the only thing that worked was no gluten. but ive been thinking. there has to be something else? my hair still falls out quite a bit, and a few of the other symptoms never went away. my tics (mild tourettes) still flare up when i eat cerain things i just havent figured out what triggers them though. the tics started like 5 years ago and when that started, its when everything else did. so im feeling better, but i was wondering how to determine if i am allergic to something else? it might be dairy? that kind of runs in my family too. my mom and brother are both intolerant to milk, and my dad had troubles with it when he was a kid. i have gas and stomach upset quite often still, so should i remove milk and see what happens? im all for trying it, but what about another blood test? will it be accurate this time do you think since its for dairy not gluten? and what would i be able to eat? im in high school, and its hard enough eliminating gluten, much less dairy too. i love dairy foods, i live off ice cream and cheese...

im sry this is so long, but i would appreciate every answer! i need to figure something out..

Thanks sooo much!

God bless :)

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Probably more than 50% of us here on the forum have additional intolerance(s) besides gluten. There are two ways of approaching trying to find out what else you may have problems with. Since it is possible that more than one other food bothers you, the surest way is an elimination diet, but being as you are in high school you may not want to take this approach as it is quite restrictive. Basically, you eliminate all but a few safe foods that do not bother you, say chicken, rice, steamed veggies of some kind, perhaps some nuts and seeds, things like perhaps applesauce. Then you add in a new food every three to four days while keeping a diary of what you eat and your symptoms. As I say, this is the surest way but as a teenager it may be the hardest way for you.

Another way is to take out of your diet the most common allergens. Dairy, is definitely one; soy is also a common one for celiacs, and corn bothers quite a few of us. So start with the dairy first. If that does not get rid of your symptoms add soy; then corn. If those three don't take care of it you will have to move on to other things, and perhaps over the summer do a full elimination test. But diary, soy and corn will get you started.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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