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Ended Up In Hospital Last Night Due To Eating Gluten After Being Gluten Free For 4 Weeks


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#1 beebs

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Posted 06 February 2011 - 01:05 AM

I am not diagnosed with anything at this point and I am 24 weeks pregnant and after talking to some of the wonderful people on this site I decided to go gluten free so that I didn't harm the baby. I have a history of connective tissue disorder (not sure which one)GORD, I have dramatic weight loss, my mother is Celiac my grandfather was diagnosed with bowel cancer at 48yrs and both my kids have bad GI issues but noone can figure our what is wrong.

I planned on doing a gluten challenge after the baby was born and then getting the Endoscopy.

Anyhow - last night I went out to a lovely restuarant and after being gluten free for about a month I ate gluten. About 30 minutes after I finished eating my meal I felt awful. I basically ended up vomiting my guts up and then this agonising pain that comes and goes and feels colicky in my stomach started -above the belly button in the middle. Its similar to labour in a way as in the pain builds and then peaks and then subsides over and over. It feels like a vice has got my intestines and is squeezing them. Anyhow - I rang labour ward and told them and they told me to come in to be checked that it wasn't pregnancy related.

The pain is so intense that I can't breath and am curled up in the fetal position crying. It lasts for around 2 hours. Does that sound like it could be gluten - it just seems so full on.

If that is gluten then there is no way in hell I can every go through a gluten challenge and feel like that again. I have had it about 4 times in 18 months.

Does anyone else have similar symptoms.
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#2 ravenwoodglass

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Posted 06 February 2011 - 04:21 AM

Sure can relate. Although I don't vomit the pain you describe is quite familiar with a glutening. It comes for me in intesifying waves that are strong enough to break me out in a sweat and make me feel like I am going to faint. When the D hits me it last painfully for hours, usually about 5 to 7, and is accompanied by bleeding that continues for another 3 days, mildly. What you did was an accidental challenge, be sure to report the results to your doctor if they want you to do one on purpose for any reason. You now know you definately don't want to have gluten in your system. I hope you are feeling better today. Eat very blandly when you feel up to eating. For me Cream of Buckwheat cereal helps soothe my stomach and it has a fairly good amount of easily digestable protein as well as some carbs.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 CarolinaKip

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Posted 06 February 2011 - 05:03 AM

I am not diagnosed with anything at this point and I am 24 weeks pregnant and after talking to some of the wonderful people on this site I decided to go gluten free so that I didn't harm the baby. I have a history of connective tissue disorder (not sure which one)GORD, I have dramatic weight loss, my mother is Celiac my grandfather was diagnosed with bowel cancer at 48yrs and both my kids have bad GI issues but noone can figure our what is wrong.

I planned on doing a gluten challenge after the baby was born and then getting the Endoscopy.

Anyhow - last night I went out to a lovely restuarant and after being gluten free for about a month I ate gluten. About 30 minutes after I finished eating my meal I felt awful. I basically ended up vomiting my guts up and then this agonising pain that comes and goes and feels colicky in my stomach started -above the belly button in the middle. Its similar to labour in a way as in the pain builds and then peaks and then subsides over and over. It feels like a vice has got my intestines and is squeezing them. Anyhow - I rang labour ward and told them and they told me to come in to be checked that it wasn't pregnancy related.

The pain is so intense that I can't breath and am curled up in the fetal position crying. It lasts for around 2 hours. Does that sound like it could be gluten - it just seems so full on.

If that is gluten then there is no way in hell I can every go through a gluten challenge and feel like that again. I have had it about 4 times in 18 months.

Does anyone else have similar symptoms.



I don't vomit, but I do get the intense waves of pain. It feels as you discribed " a vice has got my intestines and is squeezing" depending on how much I was CC or glutened, it last for two-three days for me. Yes, I can end up in a fetal position crying too! I also have brain fog and a headache. I don't get D until it's almost over.
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How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving and tolerant of the weak and strong. Because someday in your life you will have been all of these.
George Washington Carver


Blood work positive 4/10
Endo biopsy positive 5/10
Gluten free 5/10

#4 tarnalberry

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Posted 06 February 2011 - 08:13 AM

While that can certainly be a celiac response, since you are pregnant, it REALLY is important to rule out that it is not preterm labor. Please do go in to your doctor (or the ER, whichever is more appropriate now), and get evaluated. I'm not a fan of a lot of intereference in a pregnancy, but this is a good case for some!
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
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Bellevue, WA

#5 JBaby

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Posted 06 February 2011 - 09:08 AM

Yes...to a "T". Had it last night. I get nauseated but dont vomit. Last time a few months ago i almost ended in ER. It was coming out both ends, my body temp escalated to the point i had to take my clothes off, the pain was riveting, couldnt breath. I seriusly thought I was going to die. My chest hurt like nothing else as if i was in a full body vice being squeezed. This was after I ate a new product that states gluten free but is processed in a facility that also produces products with wheat...Thai Kitchen Rice.
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#6 beebs

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Posted 06 February 2011 - 02:50 PM

Oh yeah - I went straight to the hospital to make sure it wasn't pre term labour. They said whatever it was it was not that.

Please don't take this the wrong way- but I am glad I am not the only one. This gluten stuff is so full on confusing and hard to diagnose. Drives me insane!

Thanks for your replies.
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HLA DQ8, gluten-free since January 2011

#7 ravenwoodglass

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Posted 06 February 2011 - 04:14 PM

Oh yeah - I went straight to the hospital to make sure it wasn't pre term labour. They said whatever it was it was not that.

Please don't take this the wrong way- but I am glad I am not the only one. This gluten stuff is so full on confusing and hard to diagnose. Drives me insane!

Thanks for your replies.


Glad to hear you got checked out and I hope your feeling better today.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#8 Marlie

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Posted 06 February 2011 - 08:04 PM

My daughter's stomach pain is intense and she'll have her knees to her tummy. Glad it wasn't pregnancy related however feeling terrible on top of being pregnant is surely no fun. Hope you feel better soon.
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#9 beebs

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Posted 07 February 2011 - 02:08 AM

Sure can relate. Although I don't vomit the pain you describe is quite familiar with a glutening. It comes for me in intesifying waves that are strong enough to break me out in a sweat and make me feel like I am going to faint. When the D hits me it last painfully for hours, usually about 5 to 7, and is accompanied by bleeding that continues for another 3 days, mildly. What you did was an accidental challenge, be sure to report the results to your doctor if they want you to do one on purpose for any reason. You now know you definately don't want to have gluten in your system. I hope you are feeling better today. Eat very blandly when you feel up to eating. For me Cream of Buckwheat cereal helps soothe my stomach and it has a fairly good amount of easily digestable protein as well as some carbs.


Okay - I am in a big dilemma here. Because they do want to do an endo. It was put off because of my pregnancy - but by the time I give birth and am well enough I will have been gluten free for 6 months - thats long enough for a negative to show even if there was damage isn't it?

There are a couple of reasons they want to do it - they think that my esophagus may be damaged due to my Severe GERD, I get ulcers alot, Obviously the celiac thing as well, also my two kids are sick - they both handendoscopies recently my 4 year old has gastritis with no obvious cause, he also has malabsorption symptoms for over a year - he was neg for celiac. My 18 month old has GERD, Eosophagus ulcers, Gastritis, Duedonitis, haven't recieved the rest of the results yet (get them tomorrow) though I wouldn't be surprised if he was neg for celiac. Anyhow their Paed GI wants to see if anything shows up on my endo - because basically he has no idea what is going on with my boys - and he is one of the top celiac specialists in the city.

So this is my dilemma - I know I cannot go through a gluten challenge if I get that sick - I will have 4 kids to look after soon - so,should I
a) Get an endo now - whilst pregnant (it has been mentioned) before I have a chance to heal (assuming that it could be celiac)

b)or get one after the baby comes- without a gluten challenge - but then - whats the point you know?

Arrghhh!!
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#10 ravenwoodglass

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Posted 07 February 2011 - 04:38 AM

Your in a tough spot. How are you feeling on the diet? Is it helping? Blood work and biopsies both have high rates of false negatives so you need to keep that in mind. If you stay on the diet and it takes care of the problems you are having that is really an answer in itself. Kids have an even higher rate of false negatives than adults, when you are done with all testing for them that is celiac related there is no reason not to try the diet with them and see if it helps.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#11 beebs

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Posted 08 February 2011 - 12:08 AM

Yeah - there is absolutely a difference on the diet.

I think I am just going to go gluten free and forget about the endo- gluten hurts too much!
Thanks for your help!

Your in a tough spot. How are you feeling on the diet? Is it helping? Blood work and biopsies both have high rates of false negatives so you need to keep that in mind. If you stay on the diet and it takes care of the problems you are having that is really an answer in itself. Kids have an even higher rate of false negatives than adults, when you are done with all testing for them that is celiac related there is no reason not to try the diet with them and see if it helps.


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#12 mushroom

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Posted 08 February 2011 - 01:52 AM

:D Your tummy is not going to know whether you have that piece of paper or not.
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#13 beebs

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Posted 08 February 2011 - 02:24 AM

:D Your tummy is not going to know whether you have that piece of paper or not.


I know :lol:
I guess I just thought it might help my kids get a diag of something.
I had my 18 month old results back today. Non diagnostic from a celiac point of view - but he does have increased
lymphoplasmacytic lamina propria inflammation in the villi - which the Paed GI said can happen in Celiac before the Villi gets damaged? He also had GERD, Eosophagitis, Gastritis and duedonitis plus ulcers in is Esophagus. Poor little man - GI dr suggested going gluten free for him as we have nothing to lose at this point!
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#14 Ada_B

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Posted 08 February 2011 - 04:33 PM

If I were you, I'd stay gluten-free until the baby is born. Then you can talk to your doctor about a gluten-challenge when your body isn't under quite so much stress, and you can do it with everyone knowing what you're up to and what you're doing, just in case things go horrible bad.

Provided you're gluten-free, I don't see that there is a hurry to diagnose celiacs just yet. Just my take on things, but that's what I'd do. FWIW I broke my foot in pregnancy and had to hobble around until the baby was born so I could have an x-ray! The things we mothers do for our kids!
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#15 beebs

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Posted 08 February 2011 - 11:06 PM

I won't be doing a gluten challenge - I am too scared to eat gluten agian ;)
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