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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac Symptoms In Teenager?
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3 posts in this topic

Hi! I am feeling so bad for my teenage daughter! She has been suffering with violent vomiting, abdominal pain and cramping and diarrhea (or urgency) for years. But it is getting worse! She was almost passing out today from the pain. I am wondering if it is related to gluten intolerance. She has a long history of waking up in the middle of the nite, vomiting and horribly nauseated. Also, migraines, fatigue, joint pain and swelling, malar rash. Her ANA is positive with 1:1280 titers. We just keep treating her symptoms, but I feel there must be an underlying problem. I, myself, have "weirdo" symptoms too. I have been gluten free now for 3 weeks and feel worlds better! Has anyone had a teenager with similar symptoms?

Thanks and happy tummy days to all!

Jill

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My son had these symptoms in high school (he had them during his freshman and sophomore years). I had the same symptoms and was more concerned with what was happening with me than with my son. I thought I was dying. When I had practically given up, I did a search on my symptoms and discovered that there was a disease with every single one of my symptoms: celiac disease. I immediately went gluten free and felt like a new person. Since I decided that I no longer needed to consult with bumbling, incompetent doctors at my HMO, I didn't seek any type of testing. However, because my son had the same symptoms that I did, I took him in to be tested. His pediatrician had NEVER tested a patient for celiac disease (believe it or not) and had to consult with a gastro-enterologist on the proper tests. Long story short, my son tested positive for celiac on the blood tests, and after he began to follow the diet, he felt like a new person. Only then did he divulge to me that that he had thought that he, too, was dying. In fact, he shared with me that he had considered suicide. I mention this because it is obvious that you need the same wake-up call that I did--PLEASE have your daughter tested. Even if she tests negative, place her on a gluten-free diet. Her life sounds as Hellish as my son's was....and how I wish I could turn back the clock and do right by him. Seriously--if you're receiving benefit from a gluten-free diet, your daughter needs to receive those benefits, too. It's understandable that your poor health has caused you to overlook the seriousness of your daughter's situation...but now you must stand up and help her. Someday, she'll thank you for it (after she's cried over not being able to go to fast food restaurants with her friends)....good luck!

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Has she been tested for Lupus? The malar rash and the high ANA make me suspicious as they are consistent with Lupus. A Rheumatologist could rule out Lupus. The rash, could also be Dermatitis Herpetiformis, the skin form of Celiac. All of her symptoms are consistent with Celaic.

I have been gluten free 4 months and have had resolution of all of the symptoms you are describing.

About two weeks into it, I started to suspect my teenage son's symptoms might be related to gluten. He has depression and anxiety that I attributed to my being sick all the time. He had bone and joint pain and severe asthma and was constantly sick with fatigue, colds, and flu-like symptoms. He has had a wonderful response to the gluten free diet. He is energetic and happy and feels really good. He tells me all the time how wonderful he feels. He had gotten to the point where he couldn't do any activities and just keeping up with daily life was a tremendous task. Things are so different now. He started jogging for the first time in his life and he has not needed to use his inhalers...they were a daily medication. He is friendly and social and has no problem keeping up in school now. All digestive problems are resolved. He only gets ill if he accidentally gets gluten. It has changed our lives, and very quickly.

I strongly encourage you to have her get tested or just go gluten free. We had such a strong positive result on the diet that we did not get tested and have no desire to do so. We had both been going to Dr.'s for years with no answers and no help, so for us, this has been a miracle.

The fatigue and depression associated with gluten lifted very quickly for my son.

My migraines immediately became less severe and then less frequent.

I do hope you will try a long term trial of gluten free.

I'm 4 months into this and am still finding things getting better and better every day.

Many strange symptoms I didn't even know were related to gluten have disappeared.

It is a great relief.

And very exciting to be able to finally stop being sick every day.

I hope you have the same results and you both get well quickly.

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    • Second Panel has come back...advice?
      Update!  I went to my follow up with my gastro. He's hesitant to diagnose celiac without an endo, but said he will redo the blood work after I'm several months gluten free. My DGP IGA should drop after being gluten free, right? This could confirm the suspicion? I know the TTG levels drop, but want to be sure the DGP also drops on the diet.  Thanks! I've already replaced all kitchen equipment and pantry/fridge items. Early on I didn't realize the potential for cross contamination in restaurants. Now I do, so eating out has been put on halt for a bit. 
    • does your diet have to be like a perfection?
      Yes.  You have to be 100% gluten abstinent when you have Celiac Disorder.  It gets easier to be gluten abstinent, not because you get used to it but because of the negative effects that ingesting gluten causes when you accidentally eat something with gluten.  Nothing tastes good enough to go through a glutening.  As your system heals it will become less tolerant of your occasional lapses into gluten consumption--accidental or otherwise. You have to take this seriously.  You get used to it and there are some wonderful gluten-free options out there.  But you can't go back to gluten and stay healthy.  It just doesn't work that way. Good luck.
    • does your diet have to be like a perfection?
      I  think you need to watch where you get your medical info!    Of course you can't introduce gluten back in. And  of course you have to be strictly gluten-free and not intentionally eat gluten.   "The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten. Depending on a person’s age at diagnosis, some problems, such as delayed growth and tooth discoloration, may not improve. The gluten-free diet requires a completely new approach to eating. You have to be extremely careful about what you buy for lunch at school or work, eat at cocktail parties, or grab from the refrigerator for a midnight snack. Eating out and traveling can be challenging as you learn to scrutinize menus for foods with gluten, question the waiter or chef about possible hidden sources of gluten, and search for safe options at airports or on the road. However, with practice, identifying potential sources of gluten becomes second nature and you’ll learn to recognize which foods are safe and which are off limits." http://www.cureceliacdisease.org/living-with-celiac/guide/treatment    
    • does your diet have to be like a perfection?
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    • does your diet have to be like a perfection?
      Not sure what you mean by perfecting your diet? Do you mean accidentally eating gluten?   As to re-introducing gluten again, if you have celiac disease, please DO NOT ever re-introduce gluten again. It's an auto-immune disease, not a food intolerance. It will damage your gut again if you do.  Hope this helps.
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