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Celiac Symptoms In Teenager?
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Hi! I am feeling so bad for my teenage daughter! She has been suffering with violent vomiting, abdominal pain and cramping and diarrhea (or urgency) for years. But it is getting worse! She was almost passing out today from the pain. I am wondering if it is related to gluten intolerance. She has a long history of waking up in the middle of the nite, vomiting and horribly nauseated. Also, migraines, fatigue, joint pain and swelling, malar rash. Her ANA is positive with 1:1280 titers. We just keep treating her symptoms, but I feel there must be an underlying problem. I, myself, have "weirdo" symptoms too. I have been gluten free now for 3 weeks and feel worlds better! Has anyone had a teenager with similar symptoms?

Thanks and happy tummy days to all!

Jill

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My son had these symptoms in high school (he had them during his freshman and sophomore years). I had the same symptoms and was more concerned with what was happening with me than with my son. I thought I was dying. When I had practically given up, I did a search on my symptoms and discovered that there was a disease with every single one of my symptoms: celiac disease. I immediately went gluten free and felt like a new person. Since I decided that I no longer needed to consult with bumbling, incompetent doctors at my HMO, I didn't seek any type of testing. However, because my son had the same symptoms that I did, I took him in to be tested. His pediatrician had NEVER tested a patient for celiac disease (believe it or not) and had to consult with a gastro-enterologist on the proper tests. Long story short, my son tested positive for celiac on the blood tests, and after he began to follow the diet, he felt like a new person. Only then did he divulge to me that that he had thought that he, too, was dying. In fact, he shared with me that he had considered suicide. I mention this because it is obvious that you need the same wake-up call that I did--PLEASE have your daughter tested. Even if she tests negative, place her on a gluten-free diet. Her life sounds as Hellish as my son's was....and how I wish I could turn back the clock and do right by him. Seriously--if you're receiving benefit from a gluten-free diet, your daughter needs to receive those benefits, too. It's understandable that your poor health has caused you to overlook the seriousness of your daughter's situation...but now you must stand up and help her. Someday, she'll thank you for it (after she's cried over not being able to go to fast food restaurants with her friends)....good luck!

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Has she been tested for Lupus? The malar rash and the high ANA make me suspicious as they are consistent with Lupus. A Rheumatologist could rule out Lupus. The rash, could also be Dermatitis Herpetiformis, the skin form of Celiac. All of her symptoms are consistent with Celaic.

I have been gluten free 4 months and have had resolution of all of the symptoms you are describing.

About two weeks into it, I started to suspect my teenage son's symptoms might be related to gluten. He has depression and anxiety that I attributed to my being sick all the time. He had bone and joint pain and severe asthma and was constantly sick with fatigue, colds, and flu-like symptoms. He has had a wonderful response to the gluten free diet. He is energetic and happy and feels really good. He tells me all the time how wonderful he feels. He had gotten to the point where he couldn't do any activities and just keeping up with daily life was a tremendous task. Things are so different now. He started jogging for the first time in his life and he has not needed to use his inhalers...they were a daily medication. He is friendly and social and has no problem keeping up in school now. All digestive problems are resolved. He only gets ill if he accidentally gets gluten. It has changed our lives, and very quickly.

I strongly encourage you to have her get tested or just go gluten free. We had such a strong positive result on the diet that we did not get tested and have no desire to do so. We had both been going to Dr.'s for years with no answers and no help, so for us, this has been a miracle.

The fatigue and depression associated with gluten lifted very quickly for my son.

My migraines immediately became less severe and then less frequent.

I do hope you will try a long term trial of gluten free.

I'm 4 months into this and am still finding things getting better and better every day.

Many strange symptoms I didn't even know were related to gluten have disappeared.

It is a great relief.

And very exciting to be able to finally stop being sick every day.

I hope you have the same results and you both get well quickly.

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    • by the way, I do find the lab who does the gluten sensitive test Gluten Allergy IgE Test This test is used to determine if a person has an allergic reaction to gluten, a protein found in wheat, barley, and rye.  Roughly 1 in 30 adults and 1 in 40 children suffer from a Gluten Allergy.  An IgE test looks for antibodies which develop in a person who has a particular allergy.  Gluten Allergy can display symptoms similar to other conditions such as Celiac Disease.  Unlike an allergy, Celiac Disease can do permanent harm to the body if left untreated.  Allergy testing when a person is experiencing symptoms can help identify or rule out an allergy as the cause.

      Gluten Allergy is typically less severe than other Gluten related conditions like Celiac Disease.  People with Gluten Allergy will often experience abdominal discomfort, bloating, gas, constipation, or diarrhea when they eat products containing gluten.  These symptoms usually stop when a person cuts gluten out of their diet.

      A Gluten Allergy IgE test can be ordered to help determine if someone allergic to gluten.  This test can also be ordered when a person is testing for Celiac Disease and has had negative results on Celiac specific antibody tests.  An allergy test can also be ordered prior to Celiac testing to rule out Gluten Allergy as a likely cause for a person’s symptoms.
    • so does it mean a person who carry dq2 or dq8 gene will have high chance to develp celiac disease if they continue to eat gluten or some other stuff trigger it??      
    • I just wanted to share my experience. I started with the endoscopy because I was having symptoms of a hernia + I had a colonoscopy at the same time to test for Chron's. While getting the scope the doctor noticed damage of the small intestine and did biopsies and they came back positive for Celiac disease. We followed up with the necessary blood work to confirm and those all came back like yours, negative, however my genetic testing was positive. So although rare, it is possible to test negative on the blood work and still have damage and be a positive. I don't know why my blood work was off, but I am glad I had the scope first because I would have never known the damage I was doing if I relied solely on the blood work. 
    • You're welcome. Good that you're having the gene test as well. If you DO have the gene(s) then you realize one can present with celiac at any point in life -- any age -- so you would need to be tested like you were, every 2 years in the absence of symptoms. If one develops symptoms then they need to be tested right away instead of waiting for the 2 yr. mark. It's not common, but is possible to test negative on the blood and still have villi damage on endoscopic biopsy. So depending on the results of the gene test....... you might see if your doc will do a endoscopy for you OR you might be what they refer to as something like a pre-celiac where you're not testing positive yet but most likely will soon.
    • Just don't give up.  Good luck and best wishes to you.  Let me know how it's going for you.  Been there, done this.  It ain't fun.
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