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Are Sympoms Worse After Not Ingesting Gluten And Then Ingesting It?


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22 replies to this topic

#1 littlekimmie

 
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Posted 09 February 2011 - 07:47 PM

I've been a celiac for almost a year now and have been scared to ingest any gluten . Not only because of the symptoms but also because of the long term effects. I havent intentionally ingested gluten this whole time. I think I have experienced the cross contamination tho. But never intentionally ate gluten . What will happen if I do eat a fair amount ? Will my symptoms freak out ?
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went undiagnosed for one year and was latter diagnosed in October of 10.

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#2 hnybny91

 
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Posted 10 February 2011 - 07:53 AM

I had 100's of symptoms when I was ingesting gluten but one of them was NOT vomiting. I got glutened off of a supposidly gluten free menu at a restaurant and half way through the meal I had to run to the bathroom to throw up. I have heard others say the symptoms are worse once you rid your body of gluten too.
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#3 ravenwoodglass

 
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Posted 10 February 2011 - 09:23 AM

For me the effects are much worse with heavy accidental injestion than before I went gluten free. My intestines never bled before I went gluten free but now if I accidentally get a good dose of it I bleed for days. I am very careful with my diet for that reason.
Is something tempting you to 'cheat'? If so please post what you are craving in either the coping or food section and chances are someone can give you a good gluten free alternative.
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celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
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Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

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HLA-DQB1 Molecular analysis, Allele 2 0303

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#4 littlekimmie

 
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Posted 11 February 2011 - 09:00 PM

I had 100's of symptoms when I was ingesting gluten but one of them was NOT vomiting. I got glutened off of a supposidly gluten free menu at a restaurant and half way through the meal I had to run to the bathroom to throw up. I have heard others say the symptoms are worse once you rid your body of gluten too.



I had a feeling that the symptoms might get worse after not exposing your body to gluten . I was just hopping they didnt. Vomiting has never been a symptom of mine eather , but ive only been a celiac for a year. do you mind if i ask how long it took your body to heal ?
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went undiagnosed for one year and was latter diagnosed in October of 10.

#5 littlekimmie

 
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Posted 11 February 2011 - 09:12 PM

I was hopping that the symptoms would get easier, but it makes sence that the body would react more drastically after not being exposed for so long.ive never experienced vomiting but i do experiance severe nausea and cant keep my eyes focused almost every time ive been glutened.I know within 15 minutes if ive had any gluten. but it has always been small amounts accidentally. I havent had cravings yet. yeah i miss some things but knowing if i eat it my health will be damaged helps me say no. But thank you id love some new recipies.i havent got very many since im a newbie. id love to hear about both of your experiences as celiacs if you wouldnt mind sharing.Im the only celiac in my family and dont know a whole lot about it.thankyou so much for your comments :)
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went undiagnosed for one year and was latter diagnosed in October of 10.

#6 sa1937

 
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Posted 12 February 2011 - 05:13 AM

But thank you id love some new recipies.i havent got very many since im a newbie.

Have you checked the Gluten-Free Recipes - Baking & Cooking Tips section of the forum? Or you can post your question there as to what kind of recipes you're looking for.
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#7 hnybny91

 
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Posted 12 February 2011 - 06:11 AM

I had a feeling that the symptoms might get worse after not exposing your body to gluten . I was just hopping they didnt. Vomiting has never been a symptom of mine eather , but ive only been a celiac for a year. do you mind if i ask how long it took your body to heal ?

Oh, i have only been gluten free for about six weeks and this incident was two weeks ago. I am not completely healed yet.
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#8 dumbfounded

 
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Posted 20 February 2011 - 05:05 PM

I'm new to this whole Celiac Disease, but I am amazed at how helpful all you people are....... reading and learning about this has helped me keep my sanity Thank you,Thank you Thank you
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#9 bear 62

 
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Posted 24 February 2011 - 05:27 PM

WOW god bless you and your family!!
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#10 Candicep

 
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Posted 22 February 2012 - 09:38 PM

I was wondering the same thing! I went gluten free for the first time recently. I went for about two weeks. I grabbed a bite of popcorn from the movie theater thinking that it would be safe. Not long after my throat felt kinda like it was tighter... Not like an allergy...just felt weird. Within an hour or so my stomach bloated up like crazy/hurt. It felt like there was a bowling ball in my belly. And THEN later on that night my boyfriend saw that I had this weird rash all over my back!! Ive never had that symptom before! So I looked up info on the popcorn. It said that some popcorn salts/butters might contain gluten through means such as artificial flavorings etc. Anyhoo...the rash thing was new and thats why I was wondering if my body was freaking out more than normal because it was used to being gluten free.
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#11 kareng

 
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Posted 22 February 2012 - 09:42 PM

I was wondering the same thing! I went gluten free for the first time recently. I went for about two weeks. I grabbed a bite of popcorn from the movie theater thinking that it would be safe. Not long after my throat felt kinda like it was tighter... Not like an allergy...just felt weird. Within an hour or so my stomach bloated up like crazy/hurt. It felt like there was a bowling ball in my belly. And THEN later on that night my boyfriend saw that I had this weird rash all over my back!! Ive never had that symptom before! So I looked up info on the popcorn. It said that some popcorn salts/butters might contain gluten through means such as artificial flavorings etc. Anyhoo...the rash thing was new and thats why I was wondering if my body was freaking out more than normal because it was used to being gluten free.

Actually, most, if not all movie theater popcorn and fake butter is gluten-free. What's in the fake butter might be scary.


http://www.glutenfre...ad/plate-vol9-1



Also, in the US you can't " hide" wheat. It must be declared in the ingredients. It's really not that sneaky.
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#12 Candicep

 
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Posted 22 February 2012 - 10:40 PM

Actually, most, if not all movie theater popcorn and fake butter is gluten-free. What's in the fake butter might be scary.


http://www.glutenfre...ad/plate-vol9-1



Also, in the US you can't " hide" wheat. It must be declared in the ingredients. It's really not that sneaky.



Yeah Ive read most is safe. I was at a non-chain movie theater so i'm wondering what they used on it. After the reaction I saw lots of sites saying the flavorings etc could be a problem. Im not sure since im still new to this but thats the only thing I ate at the time. So now i'm scared of trying out the mom and pop places, lol. I guess I should stick to Cinemark.
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#13 cavernio

 
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Posted 30 March 2012 - 02:37 PM

Yes your symptoms can get worse.

In fact, I recall reading a thread just the other day on the forum that had a link to an abstract to a paper. The thread was about wishing some treatment used on mice were available for people to use, since the results were promising.
When I read the abstract, I was actually more surprised about how they got gluten sensitive mice to use for the study. They bred 3 generations of mice that didn't eat any gluten...
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#14 WendyLee

 
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Posted 31 March 2012 - 11:26 PM

I'm new to this whole Celiac Disease, but I am amazed at how helpful all you people are....... reading and learning about this has helped me keep my sanity Thank you,Thank you Thank you

May I just "ditto" this message? :)
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#15 JustNana

 
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Posted 02 April 2012 - 10:26 AM

dumbfounded and Wendy Lee

I could not agree more. I was just diagnosed with Celiac, Dermatitis Hepetiformis and Hashimoto's all within the last 7 weeks. My Dr gave me a list of resources and this forum was on it. I am so grateful. Aside from one friend, who now lives in another state, I knew no one with Celiac. The people here have given me so much information, hope and inspiration. I can't imagine what it would have been like to have Celiac disease 20 years ago with no gluten-free products to speak of, no support groups and no Internet to access it all!

The whole lifestyle change is tough enough but going it alone would be terrifying. Thank you all from the bottom of my achy, itchy, depressed but hopeful heart!!!!!!!
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