Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

Kidney Problems?


scuzy

Recommended Posts

scuzy Rookie

Hello,

I have self diagnosed myself with Celiac Disease back in August. I have been feeling sooooo much better since I have been gluten free. It took me about two years to figure out that I had Celiac Disease and am wondering what kind of damage could I have done to my body within those two years of horrible symptoms.

Before I went gluten free I would get these really sharp pains in my lower right back (the doc says the kidneys). I noticed that when I went gluten free they almost went away. I also noticed if I were to get one of those painful episodes it was always around if I got glutened by something. So since I don't have health insurance I never went to the doctor for it. I finally went the other day because I had a really really really ext... painful episode for about 5 hours. The doctor felt around and said that he felt a mass on my right kidney and he also found blood in my urine. I had a CT scan today and the doctor called me to tell me he was stumped. Everything came back fine, there was nothing abnormal about the scan, he has no idea what is wrong with me. I mentioned to him I believe I have Celiac Disease so he said that it could be causing pain and that when my insurance starts next month to go to a Gastroenterologist. So my question to everyone is... Does anyone know if Celiac can cause kidney problems? And how would the doctor figure it out if I am gluten free? I would hope he wouldn't have to gluten me to figure it out...

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I have the same issues with the kidneys that you describe. As long as I stay away from gluten I am pain and bleeding free. Can't say it will be the same for you. If you want a diagnosis of celiac from the GI you need to go back on gluten for a couple of months. If you just can't stand the pain of that then keep in mind we don't need a doctors permission to be gluten free.

Link to comment
Share on other sites
scuzy Rookie

I have the same issues with the kidneys that you describe. As long as I stay away from gluten I am pain and bleeding free. Can't say it will be the same for you. If you want a diagnosis of celiac from the GI you need to go back on gluten for a couple of months. If you just can't stand the pain of that then keep in mind we don't need a doctors permission to be gluten free.

True. But is it possible that the gluten has damaged them somehow? And that it could have caused some other medical condition that we should know about? I mean kidneys are very important. :)

Link to comment
Share on other sites
ravenwoodglass Mentor

True. But is it possible that the gluten has damaged them somehow? And that it could have caused some other medical condition that we should know about? I mean kidneys are very important. :)

If you are continueing to have pain and blood in your urine and possible problems with your kidney that are concerning you then it might be a good idea to see a nephrologist. They specialize in kidney issues. If your symptoms have been relieved with the diet then IMHO it would be counterproductive to gluten yourself for the 2 or 3 months it would take to see a GI and possibly end up still with a false negative on celiac testing.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,466
    • Most Online (within 30 mins)
      7,748

    Tlbaked13
    Newest Member
    Tlbaked13
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Tlbaked13! Have you been officially diagnosed with celiac disease? It is well-known that celiac disease can result in peripheral neuropathy but so can diabetes. 
    • shadycharacter
      Lactic acid bacteria start to develop as soon as flour and water are mixed, so I assumed that in a yeast dough with long proofing time there could be some effect of fermentation and gluten break down. 
    • Tlbaked13
      I am COMPLETELY new to this celiac disease however I have had the same feelings and then some with my feet for years now and been diagnosed with peripheral neuropathy myself but they blamed and attempted to treat due from my type 1 diabetes and none of the treatment has helped at all so far so possible from celiac disease? Just sharing MY thoughts on this I've had zero confirmation 
    • Hannah24
      I've not heard of the DNA test I will definitely look into that. And I did not know that the neuropathy was symptoms of vitamin deficiency. I have been trying to get on a good vitamin regimen. Thank you!  
    • Hannah24
      My GI Doctor took blood work and said my Iron levels were actually high. But they took my blood a couple weeks after my infusion so I'm thinking that's why they were showing so high, but they knew I had the infusions. The infusions did help greatly but I am also on an Iron pill that I can instantly notice if I have not taken it for a few days.  Yes, I have read up on that! Thank you so much! I sure that will be fun! Hahaha
×
×
  • Create New...