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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

6 Yr Old Constantly Telling My Her Stomach Hurts
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My youngest daughter is gluten intolerant. I have not had her tested for celiac yet because she improved alot since we removed gluten and reacts to even minute amounts of it. I gave her a piece of regular bread after deciding to put her back on a gluten diet so I could get her tested and she started vomiting and had white poop when she had her next bowl movement. I didn't feel like it was safe to feed it to her. Anyway our home is gluten free now. My older 2 kids only get gluten at grandparents house or my oldest at school. My oldest has been telling me several times a day for about 2 months that her stomach hurts. She will just tell me and then go off and do something else. I don't know if this is something that she really is feeling or if she is just saying it to get attention. Sometimes she acts like it does hurt and will go lay down but other times she will just tell me and continue playing. Do you think she is also gluten intolerant or just trying to get attention? I am going to be taking her totally off gluten to see if she stops saying her tummy hurts. However she gets gluten at snack time at school. I can pack her a snack I suppose, I just don't know how well received that will be in her class. Her teacher is kind of a pill and she is already having issues with being 'different' from the other kids because the teacher decided to separate my daughter from the other kids in order to 'help' her pay attention better in class. How do you deal with an unsupportive teacher when a kid is not a diagnosed celiac?

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Tell your "teacher" that you are removing gluten from her diet, through medical advice. And supply the snacks.

It has been well documented that removing gluten, aids children with ADD and Autism.

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Tell your "teacher" that you are removing gluten from her diet, through medical advice. And supply the snacks.

It has been well documented that removing gluten, aids children with ADD and Autism.

My daughter is really hyper and in her own world alot of the time. I have noticed that since we removed the majority of gluten from her diet she does better in school and homework time is not entirely filled up with my trying to draw her attention back to her work. I definitely wondered if it was related. We have had several meetings with the teacher and are about to have another one because she has yet to supply me with the curriculum that I asked for 2 weeks ago. So I suppose I will just tell her then that I will be supplying her snack from now on. I just don't want my daughter to feel 'different' any more than she already does. I suppose it can't be helped though.

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Well that was my dd's symptoms. Well not the inattention, but the constant complaining of stomach hurting. And she didn't really act sick. I thought she just was trying to get out of doing things because she'd say it on days she didn't want to do stuff. Then as soon as she got to stay home she'd go right back to playing. I felt awful once she got diagnosed for not catching it sooner. Since your little one is still eating gluten I'd go see about getting tested if you can. That would give you a real good idea about your other one as well and that way you wouldn't have to put your other child back on gluten. If one child has it then the other is a lot more likely to have it. Now that's just what *I* would do, but if you don't want to test then you can always do gluten elimination. What I like about doing the blood test is that I can check her levels with a follow up so I can see if she's being contaminated and me not realizing it. If I hadn't been following her with blood tests I would not have realized how much gluten contamination she was getting. She would still be sick and she'd not be getting better. Honestly though those symptoms sound like they definitely could be celiac.

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My daughter is really hyper and in her own world alot of the time. I have noticed that since we removed the majority of gluten from her diet she does better in school and homework time is not entirely filled up with my trying to draw her attention back to her work. I definitely wondered if it was related. We have had several meetings with the teacher and are about to have another one because she has yet to supply me with the curriculum that I asked for 2 weeks ago. So I suppose I will just tell her then that I will be supplying her snack from now on. I just don't want my daughter to feel 'different' any more than she already does. I suppose it can't be helped though.

Please google: Autism and Celaic, and ADD or ADHA and Celiac. There is a tremendous amount of information of good character out there, that can help you. Make copies and supply them to the school. Then get a doctor to support your documentation.

The goal is to help your daughter, inform the school and create a good working environment. :)

PS: remove ALL of the gluten, not just the majority of gluten. My bet, is that you will see great things happen. :) If you need help with that, we can offer any assistance you may need.

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When my son started complaining of stomach aches his grades plummeted (he'd been in the gifted program and taking honors classes) He was finally diagnosed with celiac, but teachers are not empathetic. I think they think he is lazy. Fight for your kid and listen to how they are feeling. The pieces will eventually fall in to place.

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And while you are at it you may want to give serious consideration to getting off gluten yourself. Full time.

This stuff is just bad news and we can't digest it. It's been causing chronic issues for thousands of years. More so now because it is in everything.

Your daughters sound like me when I was young. Always with an upset stomach, after a while I stopped telling my parents because they would just dismiss it as me being difficult.

At 30 I finally figured it out and I don't have Celiac, but I do have Hypo-thyroid and Gluten Syndrome (Sensitivity). And up until a few months ago I had Depression too. ;)

Oh the wonderful things that gluten-free fixes. :)

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I don't know how the snack thing works, but if there is opportunity you can always send the whole class a gluten free snack and they can share some days.

I mean, really, what would you rather eat, same old same old or a decent brownie, slice of banana cakebread, or chocolate chip cookie, even if it is gluten free ? You could make up ziplock baggies with Ocean Spray craisens (generic craisens in the bin may be cross contaminated, so use a sealed bag from a known supplier to be safe) gluten free chocolate chips, and almonds (no peanuts) and some sort of Chex cereal for "trail mix," for example. Or just regular raisins and gluten-free chocolate chips. You can also send corn chips and salsa in little condiment cups. Tortillas and jam/jelly. A wedge of a round flatbread with jam. Toast with cinnamon sugar. Rice cake with humus. Just because we are avoiding regular food doesn't mean we can't feed others our stuff.

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Ok hi I know what you r saying my 5 year old has said the samething about his tummy and he has celiac and there is a lot to it more than just wheat so you know. and on the school thing you make then do what you want they have to know matter what you just keep on them if they dont do what you want. if you need help with foods let me know.

My youngest daughter is gluten intolerant. I have not had her tested for celiac yet because she improved alot since we removed gluten and reacts to even minute amounts of it. I gave her a piece of regular bread after deciding to put her back on a gluten diet so I could get her tested and she started vomiting and had white poop when she had her next bowl movement. I didn't feel like it was safe to feed it to her. Anyway our home is gluten free now. My older 2 kids only get gluten at grandparents house or my oldest at school. My oldest has been telling me several times a day for about 2 months that her stomach hurts. She will just tell me and then go off and do something else. I don't know if this is something that she really is feeling or if she is just saying it to get attention. Sometimes she acts like it does hurt and will go lay down but other times she will just tell me and continue playing. Do you think she is also gluten intolerant or just trying to get attention? I am going to be taking her totally off gluten to see if she stops saying her tummy hurts. However she gets gluten at snack time at school. I can pack her a snack I suppose, I just don't know how well received that will be in her class. Her teacher is kind of a pill and she is already having issues with being 'different' from the other kids because the teacher decided to separate my daughter from the other kids in order to 'help' her pay attention better in class. How do you deal with an unsupportive teacher when a kid is not a diagnosed celiac?

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    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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