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I Feel Like The Only Guy Who Cant Eat Gluten


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24 replies to this topic

#1 jasonD2

 
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Posted 14 February 2011 - 01:26 PM

Seriously, every single person i meet or hear about w/ a gluten intolerance is female. I feel like the only guy who has it...why?
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Endoscopy & blood panel all negative 12/09 after being strict w/ gluten free diet

As of 8/09 - Candida Overgrowth, C.difficile overgrowth, elevated fecal anti-gliadin, elevated putrefactive SCFA's

Developed severe lactose intolerance, IBS and food sensitivities in 02 after contracting Giardia from a river in Oregon

Had negative celiac blood work in 02

Elevated stool anti-gliadin Ab (21 with 10 being cutoff for normal) - 2008

Positive for DQ8- 2008

Tested high positive for egg, dairy, soy, ginger, mustard - 2008

Lactulose/Mannitol (leaky gut) test indicated slight intestinal permeability

Improved with gluten free diet but still have spastic constipation

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#2 mushroom

 
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Posted 14 February 2011 - 02:10 PM

Could just be that women are generally more in tune with their bodies and more likely to explore and accept that they have things wrong with them.
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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#3 psawyer

 
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Posted 14 February 2011 - 02:19 PM

You must just have a knack for meeting women. :P:

It is estimated that the prevalence of celiac disease is equally divided among males and females, but that many more females are actually diagnosed. Given the difficulty in getting a correct diagnosis, persistence is often required. A woman is much more likely to keep pushing and going to the doctor to get the real answer. A man is much more likely to accept IBS as a diagnosis (it isn't) and continue washing his pizza down with beer. :o

Of the members of this board who indicate gender in their profile, 24% are male.

I'm a guy with celiac disease. The board owner and two of my fellow moderators are men with celiac disease.
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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#4 shopgirl

 
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Posted 14 February 2011 - 03:38 PM

I also think women are more likely to join a forum to discuss their issues than men. Unfortunately.

There's nothing girly about gluten intolerance. :)
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"My experience has been that there is, surprisingly, always hope." - Eleven

Positive blood test & endoscopy / Gluten-free 10-07-10 / Dairy-free / Soy-free

#5 ravenwoodglass

 
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Posted 14 February 2011 - 03:47 PM

Yea in my family it was 2 and 2. The men in my family would never likely join a support group for anything. There are plenty of celiac guys out there but some are 'in the closet' so to speak. A lot of guys wouldn't want people to know for whatever reason. It is like they taught us in one CPR class I took... We were asked what the most common thing was for a man to do who was in a restaurant and thought he was having a heart attack. The answer was he would go to the rest room where he would die all by himself. Whereas a woman would be more likely to ask for help.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#6 quincy

 
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Posted 15 February 2011 - 05:52 AM

Seriously, every single person i meet or hear about w/ a gluten intolerance is female. I feel like the only guy who has it...why?

That's an interesting point, though I am a male with Celiac. I go to a celiac support group in New Jersey and
there are a good number of men there, though definitely outnumbered by the females. Part of the danger for guys is that they will ignore their symptoms for many years until it gets to the point where they have no choice. I did not do that myself, and to top it off, my GP kept telling me the discomfort under my ribs was a pulled muscle from working out... so lame. SO you are not alone!
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#7 lynnelise

 
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Posted 15 February 2011 - 06:23 AM

I think men are more likely to trust what the doctor tells them. Plus, I know in my experience the men I know go to the doctor much less often than women. My husband only goes to urgent care clinics when he thinks he has bronchitis and my dad was 70 before he started seeing a doctor for check-ups.

My husband was sick for a week once with a blocked bile duct before he finally went to the hospital. He had gone to a regular doctor when the pain started and was told it was acid reflux. I kept urging him to see someone else because it was obvious it wasn't acid reflux...but he didn't seek help until he was doubled over in pain, turning yellow, and his urine was bright red.
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#8 Dixiebell

 
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Posted 15 February 2011 - 09:54 AM

My stepfather may not have known, for a while, about his high blood pressure. He went to the eye Dr. and they checked his BP and it was high. He told him he needed to get to the hospital but would not let him just leave until my mom came to get him. I don't think my biological father even has a Dr. So yes, I agree that a lot of men just ignore symptoms and don't go to the Dr. and if they do, they believe everything the Dr. says and do no further research for themselves.
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Started on this journey w/ my 9 yr old son after a bout w/ the flu in the fall of 2009.
2 neg celiac blood tests, mine was also neg. No endo done. Son had x-ray, showing severe constipation. Son has latex allergy. KP for both of us.
Long family history of bowel problems, auto-immune and all sorts of cancers. My G-mother informed me that she was put on a gluten free diet after she had my mom (1950's), of course she stopped when she felt better. She has had problems ever since I can remember.
So here we are! I do have my son's Dr to thank for even bringing up celiac! Thank You Dr.B!
My adult daughter also has been helped by eating gluten-free.

#9 mushroom

 
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Posted 15 February 2011 - 11:51 AM

So yes, I agree that a lot of men just ignore symptoms and don't go to the Dr. and if they do, they believe everything the Dr. says and do no further research for themselves.


So maybe the docs think, oh no, not another female patient :o All these head-case, know-it-all wimmen :ph34r: Men are much easier to deal with.
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#10 GFinDC

 
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Posted 15 February 2011 - 03:58 PM

... All these head-case, know-it-all wimmen :ph34r: Men are much easier to deal with.


Well shoot, don't we all know that's true! :blink: B) :D Har de har, just kidding!

I am male too, and and I do agree it seems like their are women "out there" as it were, for whatever reason. I figure maybe women are more social than men, kind of like cats you know. So more likely to get involved in groups and organizations and letting it all hang out.

I wouldn't be surprised if more of the "undiagnosed" are men than women too.
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#11 mushroom

 
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Posted 15 February 2011 - 04:37 PM

I figure maybe women are more social than men, kind of like cats you know. So more likely to get involved in groups and organizations and letting it all hang out.


Yes, but have you ever tried to herd them??:P
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#12 Igg postive

 
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Posted 15 February 2011 - 08:39 PM

Itís good to hear from the "men". Often they have a different perspective on the subject. I worked in an engineering environment. Often there can be created a synergy of ideas, and this can apply to this forum with people from different back grounds. So donít be afraid to speak up even if now you seem to be in the minority. We need that viewpoint!
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#13 lynnelise

 
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Posted 16 February 2011 - 08:42 AM

Another thing I've noticed is that guys don't seem to find bodily functions to be as embarrassing as women do. At various workplaces I've been they seem almost proud to wreak havoc in the restroom. The women I know would like it to be thought that they only go to the restroom to check their reflection and touch up their make-up! So I guess when women have symptoms that cause them embarrassing bathroom trips they want to get it diagnosed and fixed pronto!
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#14 GF BRO

 
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Posted 17 February 2011 - 01:43 AM

I have never met anyone in person who has Celiacs that is a guy. But I agree with what people are saying. I know a lot of my friends have stomach issues but would rather just grin and bear it then have to deal with going to a doctor. To be honest, I was the same way until the pain just got to tough to deal with. Sucks to feel like there are fewer guys to relate to with the disease, but I think more and more males will be diagnosed in coming years.
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#15 Fire Fairy

 
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Posted 17 February 2011 - 09:58 AM

My brother never went to the Doctor as an adult until he started feeling really bad. When he finally went the Dr checked his blood. His blood sugar was so high the Dr wanted him to go straight to the emergency room! That was 10 years ago and he was diagnosed type 1 diabetic. He is the only type 1 diabetic in my entire family. I strongly suspect he has undiagnosed Celiac disease. He's gone to the ER three times with DKA. The family had to force him to go all three times.
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If you over-salt a dish while you are cooking, that's too bad. Please recite with me the real woman's motto: 'I made it, you will eat it and I don't care how bad it tastes!'-unknown




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