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Gluten Intolerance Is It The Same As Celaic?


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14 replies to this topic

#1 Mama Melissa

 
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Posted 16 February 2011 - 05:52 AM

Hey guys i was diagnosed with celiac disease via blood and biopsy in sept.Agood friend of mine has since been having alot of the same problem i have and i suggested she get a celiac test well what do you know the doctor said she was probably gluten intolerant and borderline diabetic that he wants her to loose 30 lbs and try the gluten-free diet.My question is from a blood test can you tell if someone is just gluten intolerant???If shes making any antibodys on a celiac blood test wouldnt that suggest it??Also what is the difference between the 2, i was told by gp that they were both the same but then heard from others that they were in fact not. Cant gluten intolerance cause celiac??and will gluten intolerance ever go away??I know celiac wont:( Thank you i just want to address my friend correctly as it seems her doctor is confusing her xoxoo
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Melissa
9/10 Diagnosed celiac via bloodwork/endo
9/10 Gluten free

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#2 ravenwoodglass

 
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Posted 16 February 2011 - 06:35 AM

Personally I agree with your GP. Both are autoimmune, both need to be just as strict with the diet although sometimes it is different parts of the body that are attacked by the antibodies. Some consider blood test and/or biopsy negative folks to be gluten intolerant rather than celiac although the both tests have a high false negative rate.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 Mama Melissa

 
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Posted 16 February 2011 - 06:54 AM

hey raven
My gp is awesome!!!But i heard from other sources that celiac disease is autoimmune which causes the damage and in turn the worst case cancer and other autoimmune diseases, and gluten intolerance is not an autoimmune which only causes symptoms but not the actual damage its soo confusing:(
  • 0
Melissa
9/10 Diagnosed celiac via bloodwork/endo
9/10 Gluten free

#4 ravenwoodglass

 
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Posted 16 February 2011 - 07:41 AM

hey raven
My gp is awesome!!!But i heard from other sources that celiac disease is autoimmune which causes the damage and in turn the worst case cancer and other autoimmune diseases, and gluten intolerance is not an autoimmune which only causes symptoms but not the actual damage its soo confusing:(


I personally would not agree with that but I am not a doctor. Some would consider me to be gluten intolerant rather than celiac because I don't show up in blood work and am not DQ2 or DQ8. I had a great deal of autoimmune problems that cleared up on the diet.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#5 jeanne-

 
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Posted 16 February 2011 - 09:21 AM

hey raven
My gp is awesome!!!But i heard from other sources that celiac disease is autoimmune which causes the damage and in turn the worst case cancer and other autoimmune diseases, and gluten intolerance is not an autoimmune which only causes symptoms but not the actual damage its soo confusing:(



Hi Mama Melissa,

I have been dx'ed with non-celiac gluten sensitivity. It has led to my next dx of Hashi's which is autoimmune. So even if gluten sensitivity isn't auto immune, I still ended up with an autoimmune disease from it anyway. So what's the diff? Still have to be gluten free to be healthy.
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#6 Kate79

 
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Posted 16 February 2011 - 09:26 AM

Hey guys i was diagnosed with celiac disease via blood and biopsy in sept.Agood friend of mine has since been having alot of the same problem i have and i suggested she get a celiac test well what do you know the doctor said she was probably gluten intolerant and borderline diabetic that he wants her to loose 30 lbs and try the gluten-free diet.My question is from a blood test can you tell if someone is just gluten intolerant???If shes making any antibodys on a celiac blood test wouldnt that suggest it??Also what is the difference between the 2, i was told by gp that they were both the same but then heard from others that they were in fact not. Cant gluten intolerance cause celiac??and will gluten intolerance ever go away??I know celiac wont:( Thank you i just want to address my friend correctly as it seems her doctor is confusing her xoxoo


I saw a doc at the University of Chicago Celiac Center, and she told me that they don't actually know a lot about gluten intolerance. All they can tell for sure is that gluten intolerance mimics many of the symptoms of celiac disease, but doesn't cause the actual intestinal damage. Gluten intolerance could be a precursor of celiac (at least in some people) but they just don't know for sure yet. U of C is conducting a lot of research on the issue right now. She also said that if someone is just intolerant they should still stick to a gluten free diet. personally, I've had blood test indicative of celiac, as well as a positive genetic test and family history of it. I was already gluten free, so I opted not to have a challenge for the biopsy. After all, I'd still stick to the diet whatever the result, as I feel a lot better!
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#7 aeraen

 
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Posted 16 February 2011 - 09:43 AM

I refer to myself as gluten intolerant simply because I have never officially been diagnosed. I started gluten-free to see if it helped, and yes, my symptoms did go away, so now its too late to get a diagnosis... unless I want to gluten myself to do so... and I don't.

I don't want to claim a disease that has not been diagnosed by a doctor, so "gluten-intolerant" works for me. Either way, I don't think it matters to me. The diet doesn't change.
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#8 Mama Melissa

 
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Posted 16 February 2011 - 10:17 AM

yes i agree the diet does not change.But if you get a celiac panel and one or 2 things look a little elevated and the doctor decided you are gluten intolerant or celiac how do they determine from bloodwork is what i want to know cause from my bloodwork they told me i was celiac right away.just curious how it works???but my friends they said the level/levels looked A little elevated then they said gluten intolerance anyone have similar experience??
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Melissa
9/10 Diagnosed celiac via bloodwork/endo
9/10 Gluten free

#9 bridgetm

 
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Posted 16 February 2011 - 11:44 AM

I was told that when gluten intolerance causes extensive damage, it is then termed Celiac; if you are gluten intolerant it acts more like a regular food allergy than an autoimmune response. I consider myself simply gluten intolerant because blood work and endoscopy were negative for Celiac. It is still a possibility since I had already been off gluten for a few weeks when I had the tests and I am not willing to do a 1-3 month long gluten challenge just to confirm that I do indeed have trouble with gluten. But I often do my grocery shopping with Celiac in mind, not just gluten intolerance.
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#10 mushroom

 
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Posted 16 February 2011 - 12:05 PM

On the celiac lab tests, each lab has ranges for the results (which are measuring antibodies). To give a hypothetical example, let's say that under 7 is definitely negative, 8-15 is mildly positive, and anything 16 and over is celiac. If you score an 8, you are neither negative nor positive. Same if your score is 14. But if you hit the magic 16 number, you are celiac. And what do these numbers represent? Specific markers in the blood for a specific autoimmune reaction to gliadin. Sometimes, if you wait long enough and then are retested, you will score high enough to be called celiac :blink: But do you really want to ace this test? Well, it doesn't really matter to the patient whether they pass the test or not, because the patient is still being affected by gluten whether they pass or not, but it seems to matter to the doctors that you have to score the magic 16. Many of them will tell you, if you don't pass the test, to go away and eat gluten and be happy. The smarter ones will tell you to try the gluten free diet and see if it makes a difference for you. Because, as OP's have said, the research is in its infancy and they really don't know a lot about gluten intolerance :unsure:
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#11 Mama Melissa

 
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Posted 16 February 2011 - 01:15 PM

wow soo interesting i told my friend she should stick to the diet for life as i do to be honest she seems to be having more problems than me and i am celiac and taking into account her borderline diabetic whicch could possibly be from being overweight and extremely low vit d dosent help her either i just hope she takes it as seriously as i do.Cause to be honest the results sound like they could both be the same
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Melissa
9/10 Diagnosed celiac via bloodwork/endo
9/10 Gluten free

#12 MsCurious

 
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Posted 16 February 2011 - 04:43 PM

On the celiac lab tests, each lab has ranges for the results (which are measuring antibodies). To give a hypothetical example, let's say that under 7 is definitely negative, 8-15 is mildly positive, and anything 16 and over is celiac. If you score an 8, you are neither negative nor positive. Same if your score is 14. But if you hit the magic 16 number, you are celiac. And what do these numbers represent? Specific markers in the blood for a specific autoimmune reaction to gliadin. Sometimes, if you wait long enough and then are retested, you will score high enough to be called celiac :blink: But do you really want to ace this test? Well, it doesn't really matter to the patient whether they pass the test or not, because the patient is still being affected by gluten whether they pass or not, but it seems to matter to the doctors that you have to score the magic 16. Many of them will tell you, if you don't pass the test, to go away and eat gluten and be happy. The smarter ones will tell you to try the gluten free diet and see if it makes a difference for you. Because, as OP's have said, the research is in its infancy and they really don't know a lot about gluten intolerance :unsure:


Those... in a nutshell... are some very wise words!
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~ MsCurious ~
"If you keep doing what you're doing... You'll keep getting what you're getting!"

tTg IgA IgG borderline 1/25/11 Posted Image
HLA DQ2.5 Positive 2/11/11
Biopsy 4/11/11
100% Lactose/Dairy Free 4/11/11
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Life is SO MUCH better gluten-free!

#13 Mama Melissa

 
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Posted 16 February 2011 - 05:36 PM

So basically Mushroom theres a heck of a lot of celiacs out there just not on paper but it causes the same ill effects.Boy ,am i glad to be offically diagnosed and not misguided i really feel for the people who really aren't sure :(
  • 1
Melissa
9/10 Diagnosed celiac via bloodwork/endo
9/10 Gluten free

#14 mushroom

 
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Posted 16 February 2011 - 05:46 PM

So basically Mushroom theres a heck of a lot of celiacs out there just not on paper but it causes the same ill effects.Boy ,am i glad to be offically diagnosed and not misguided i really feel for the people who really aren't sure :(


Well, like I say, most doctors wouldn't even call them gluten intolerants, let alone celiacs. They tell them they have IBS :P
  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#15 Mama Melissa

 
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Posted 16 February 2011 - 05:57 PM

Well, like I say, most doctors wouldn't even call them gluten intolerants, let alone celiacs. They tell them they have IBS :P




Lolzz soo true mushroom!!!I love your realizations and really like your sense of humor it helpss soo much in life :D
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Melissa
9/10 Diagnosed celiac via bloodwork/endo
9/10 Gluten free




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