Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How Long Does It Take To Heal The Gut And Regain Weight?
0

9 posts in this topic

We have a 23month old girl who has been glutenfree for 3 months now. We (incl. our GI) believe that she might be Celiac, since she has the gene and I personally have an undiagnosed condition that got resolved with glutenfree and dairy free diet. She had also recurring c.diff infections for 10 months and Celiac could have created a favorable environment for bacterial overgrowth.

Our daughter used to have some strange emotional behavior that resolved completely within weeks on a glutenfree diet. According to our GI that is typically seen with Celiacs. We have also seen a great improvement in the stools and have less issues with constipation. We have however not seen much weight gain. She has grown some in height, but just not put on any weight. Her appetite has improved some, but not to the point that she would be gaining weight. I am wondering what other people have seen? I would have expected to see bigger improvements in terms of growth within 3 months.

I should add that we had a lot of teething going on over the last few months (4 molars!). We had late tooth eruption and as soon as we were glutenfree, it seemed like all teeth started coming in at once. I am sure that is contributing to the poor appetite, but I would have still expected better results.

I would appreciate any input.

Evelyn

0

Share this post


Link to post
Share on other sites


Ads by Google:

We are still working on my dd gaining weight. She has not gained any weight in a year and I am very concerned about that. She is 7 soon to be 8. She has been completely gluten free for a year, but her antibody levels are still high indicating she is getting contaminated somewhere. Was she tested for antibodies at all? For us the antibody check has been very beneficial. I wouldn't have realized that even as close as I thought we were being that she was still being exposed to gluten. With the follow up lab work I realized that the whole family had to go gluten free and I have concerns that my dd is in the super sensitive camp. Just wondering if she could be being exposed or contaminated and that's why she's not gaining. I know that from what I have read it can take a while for the gut to heal. We're not there yet so I don't know. Sorry if I'm not much help. We're still learning a lot.

0

Share this post


Link to post
Share on other sites

From what I understand, it can take up to 2 years to totally heal, but 6 months is a reasonable time to hope for. My son (he's almost 7) was diagnosed the end of November through a biopsy and he's be gluten-free since that point. He also has ADHD, so while his eating is more normal (not the I'm starving to death binges of before), he's now feeling the affects of appetite suppresent from his meds. Just this past week, we've finally noticed a weight gain. We are supplimenting his diet with Ensure (250 calories each) several times a day to try to help with the weight gain. His weight is currently in about the 3% range (previously 50%).

We have a 23month old girl who has been glutenfree for 3 months now. We (incl. our GI) believe that she might be Celiac, since she has the gene and I personally have an undiagnosed condition that got resolved with glutenfree and dairy free diet. She had also recurring c.diff infections for 10 months and Celiac could have created a favorable environment for bacterial overgrowth.

Our daughter used to have some strange emotional behavior that resolved completely within weeks on a glutenfree diet. According to our GI that is typically seen with Celiacs. We have also seen a great improvement in the stools and have less issues with constipation. We have however not seen much weight gain. She has grown some in height, but just not put on any weight. Her appetite has improved some, but not to the point that she would be gaining weight. I am wondering what other people have seen? I would have expected to see bigger improvements in terms of growth within 3 months.

I should add that we had a lot of teething going on over the last few months (4 molars!). We had late tooth eruption and as soon as we were glutenfree, it seemed like all teeth started coming in at once. I am sure that is contributing to the poor appetite, but I would have still expected better results.

I would appreciate any input.

Evelyn

0

Share this post


Link to post
Share on other sites

We are still working on my dd gaining weight. She has not gained any weight in a year and I am very concerned about that. She is 7 soon to be 8. She has been completely gluten free for a year, but her antibody levels are still high indicating she is getting contaminated somewhere. Was she tested for antibodies at all? For us the antibody check has been very beneficial. I wouldn't have realized that even as close as I thought we were being that she was still being exposed to gluten. With the follow up lab work I realized that the whole family had to go gluten free and I have concerns that my dd is in the super sensitive camp. Just wondering if she could be being exposed or contaminated and that's why she's not gaining. I know that from what I have read it can take a while for the gut to heal. We're not there yet so I don't know. Sorry if I'm not much help. We're still learning a lot.

Thank you for the reply. Yes, she has been tested for antibodies, but it was negative. Her igA was very low, so it could be a false negative. Wouldn't it be possible that the antibodies you are seeing are old antibodies, rather than new ones? I would think antibodies stay around for a while?

0

Share this post


Link to post
Share on other sites

From what I understand, it can take up to 2 years to totally heal, but 6 months is a reasonable time to hope for. My son (he's almost 7) was diagnosed the end of November through a biopsy and he's be gluten-free since that point. He also has ADHD, so while his eating is more normal (not the I'm starving to death binges of before), he's now feeling the affects of appetite suppresent from his meds. Just this past week, we've finally noticed a weight gain. We are supplimenting his diet with Ensure (250 calories each) several times a day to try to help with the weight gain. His weight is currently in about the 3% range (previously 50%).

Thanks for the reply. Our daughter is also in the 3rd percentile (from 75% at 3 months). Our GI gave us Duocal, which is hydrolized corn that can be added to foods for extra calories. So far, I have not been successful in adding it to anything, will try to add it to rice and coconut milk now. Hopefully she will take it, it does change the consistency.

0

Share this post


Link to post
Share on other sites




Chris's GI suggested using pediasure (not sure if that contains dairy or not). I was thinking you could also get Ensure in a non-dairy form. Ensure is 250 calories and we also give Chris whole milk. He drinks a milkshake every night that I have up to about 800 calories too :) We use whole milk, bananas, ice cream, and chocolate syrup. The calories are alot more difficult when you can't use whole milk though.

I would suspect that you daughter might be getting some small amounts of cross contamination somewhere. We discovered in December that a breakfast drink we were giving my son all of the sudden contained wheat. Have you gone back through your go-to foods and verified they are still gluten free?

Thanks for the reply. Our daughter is also in the 3rd percentile (from 75% at 3 months). Our GI gave us Duocal, which is hydrolized corn that can be added to foods for extra calories. So far, I have not been successful in adding it to anything, will try to add it to rice and coconut milk now. Hopefully she will take it, it does change the consistency.

0

Share this post


Link to post
Share on other sites

We are still working on my dd gaining weight. She has not gained any weight in a year and I am very concerned about that. She is 7 soon to be 8. She has been completely gluten free for a year, but her antibody levels are still high indicating she is getting contaminated somewhere. Was she tested for antibodies at all? For us the antibody check has been very beneficial. I wouldn't have realized that even as close as I thought we were being that she was still being exposed to gluten. With the follow up lab work I realized that the whole family had to go gluten free and I have concerns that my dd is in the super sensitive camp. Just wondering if she could be being exposed or contaminated and that's why she's not gaining. I know that from what I have read it can take a while for the gut to heal. We're not there yet so I don't know. Sorry if I'm not much help. We're still learning a lot.

I have found that I keep running into things I didn't expect there to be gluten in. Possibly that is your problem with your daughter. I was using a mega green juice to make smoothies in the morning and just discovered after a month of stomach aches that there is barley in it, should have read the label but never thought it would be there. Yogurts, ice cream, sour cream all can have gluten as a thickener in them. You have to contact the company or buy one that says gluten free and then sometimes I see that even though they have gluten free, they are made in a fascility that also has wheat etc., or there are traces of itm which I don't know how they can say it is gluten free then, anyway just a thought for you. also I use gluten free personal care products

Good luck

Pame

0

Share this post


Link to post
Share on other sites

I have found that I keep running into things I didn't expect there to be gluten in. Possibly that is your problem with your daughter. I was using a mega green juice to make smoothies in the morning and just discovered after a month of stomach aches that there is barley in it, should have read the label but never thought it would be there. Yogurts, ice cream, sour cream all can have gluten as a thickener in them. You have to contact the company or buy one that says gluten free and then sometimes I see that even though they have gluten free, they are made in a fascility that also has wheat etc., or there are traces of itm which I don't know how they can say it is gluten free then, anyway just a thought for you. also I use gluten free personal care products

Good luck

Pame

Yes, we've found a couple places that she has been being exposed to gluten still so we're still working on this. She's getting contaminated out of the home I think, but still working on pinpointing all the sources. It's very frustrating.

0

Share this post


Link to post
Share on other sites

Does she go to daycare? If so - I would strongly suspect she's getting cross contamination there. My daughter's nanny worked in a daycare that had a child with Celiac Disease (probaby about your daughter's age). Their way of avoiding CC was to sit her in the same seat all the time. They didn't clean very well and didn't tell anyone else their braintrust method, so other workers would set other kids there. I also heard stories of teachers feeding her cookies and stuff without realizing she wasn't to have them. If she is in daycare, I would create a plan to review with the director and her teachers to explain exactly what you expect and why it is so important.

Yes, we've found a couple places that she has been being exposed to gluten still so we're still working on this. She's getting contaminated out of the home I think, but still working on pinpointing all the sources. It's very frustrating.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,644
    • Total Posts
      921,579
  • Topics

  • Posts

    • Three years ago I lost about 40kgs (Aussie lol) by better diet & exercise. All was going great til I stopped losing. I upped my exercise but bizarrely started gaining weight. One night a week of not being able to sleep soon became two, then virtually every night with either 1-2hrs tops or none at all. These weird symptoms started about two years ago, becoming worse in say, the last 9mnths. Then I started to get diarrhea. Occasionally then weirdly 2-3 days with multiple occurences then a day or two with nothing, then back to loose & offensive. My GP ran tests, including the TTga (hope that's  right) antibody blood test. Negative so he tells me that's not it. After 9mnths of this he shrugs and says, "I don't know what it is I've run out of ideas what ideas do you have?" Finally refers me to a gastrointerogist.  Private, of course and can't really afford it but we (my fiance and I) go. Stools and blood samples are ordered, basically bye, see you in a month. I have looked my symptoms up and they seem to point to Celiac. Today we went back. I have been having bloated stomach, sore back and limbs,  lovely burps, constant urination and crushing anxiety attacks folowed by depression (which I have never had before in my life). Admitted over the last weekend I didn't sleep for two and a half days and found myself hallucinating and crying to just be able to sleep. Mr fancy pants gastrointerogist says," Hey great news, the stools samples rule out parasites and Crohns!" I tell him how excrutiating the last month has been to which he replies, "It's not Celiac disease, (points at negative blood test results). Celiac doesnt present with diarrhea, anxiety and frquent urination all together." I also had a fecal occult blood test which showed positive & notes say are maybe due to a lower gi bleed, and a ct scan that says shows some damage which, in their words, could be due to a condition such as Celiac disease. He has booked me for a double scope as the next step, has a few ideas what it could be (won't tell me because he doesn't want me to be 'anxious'). Told me to consider that all these symptoms could be me just worrying and being anxious. Told him when this started I was not worried about anything, shrugged and said, It could stil have happened, hey, sometimes we never find out what causes it and your just stuck with diarrhea forever." Then as I was leaving he slapped me on the back and said, "Don't worry so much, see you soon." I need to have the scopes done but is it me or are the things I was told today not true?  I would honestly love it not to be Celiac disease but could he be wrong?
    • Sigh. I totally do love the packs of stretch pants at Costco though...
    • hey, i'm vegetarian and gluten free as well
      have you tried making any recipes with cashew nuts like cashew cheese or pasta sauce? they're really good, easy to make and an excellent way to get more protein/iron
      i can send you some of the easy recipes if you like  
    • Right, fistulas or fissures are usually associated with Crohns, but not celiac.  It is not impossible to have both conditions though.
    • Bravo for being strong enough to bring this topic up.  Depression, anxiety, and other mental or neurological issues are common in celiacs and those with NCGI.  Science is finally catching up to what many of us have already known to be true.   http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3641836/ I have suffered from anxiety and still have some neuropathies.  At first I blamed menopause (that alone can make you crazy), but my symptoms tend kick in after a Gluten exposure and improve as I heal.   You are not crazy!  Gluten can cause so many problems.  What other disease requires that the patient be in charge of "medicating" and caring for themselves?  Most of us after a diagnosis get a "Well, just avoid gluten.  Lucky you that there are so many restaurants that offer a gluten free menu!", speech from our doctors.  We never get time off from thinking about food, our next meal and will it be safe?  Our relationship with food changes dramatically and it can be exhausting.   We do need more resources and support from medical, but for now, at least this forum is helpful!    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,651
    • Most Online
      3,093

    Newest Member
    Kricket73
    Joined