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Celiac, Barretts Esophagus, Addisons, And Hashimotos Are They Related?
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I have recently been diagnosed with Barretts esophagus, Hashimotos, Addisons and Celiac disease. I am feeling beyond overwhelmed. I have always thought I was a healthy person :). My blood test for celiac was strong positive for Tissue transglutaminase and Deamidated glidian. My biopsy was normal. I am wondering if those other diseases could cause a positive blood test? I have been gluten free for a month and am still feeling really fatigued. I was just diagnosed yesterday for Addisons and Hashimotos so I haven't really had a chance to get meds yet for those. Are all of these things related??? I am so bummed out. I feel like my body is just falling apart. In my sorrow yesterday, I gave up and ate some bread and chocolate chip cookies. Now I am mad at myself. I guess I am still in denial!

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I have recently been diagnosed with Barretts esophagus, Hashimotos, Addisons and Celiac disease. I am feeling beyond overwhelmed. I have always thought I was a healthy person :). My blood test for celiac was strong positive for Tissue transglutaminase and Deamidated glidian. My biopsy was normal. I am wondering if those other diseases could cause a positive blood test? I have been gluten free for a month and am still feeling really fatigued. I was just diagnosed yesterday for Addisons and Hashimotos so I haven't really had a chance to get meds yet for those. Are all of these things related??? I am so bummed out. I feel like my body is just falling apart. In my sorrow yesterday, I gave up and ate some bread and chocolate chip cookies. Now I am mad at myself. I guess I am still in denial!

Don't beat yourself up....you are going through that tough time many here have lived through...myself included. I also have Hashi's and Celiac so know what you speak of with regards to the fatigue. Let's see if I can explain things well....Hashi's can raise tTg, however, all of these issues you have been diagnosed with can result from undiagnosed Celiac....they are associated with celiac disease. The fact that your biopsy came back normal means only that you may not have had time to develop full blown intestinal damage. You are showing antibodies to gluten in your blood but are lucky to not have gotten to the point where your small intestine has been trashed....that is good! If you had continued to be undiagnosed and eating gluten, things could have progressed far worse.

You are going to have to get your adrenals and thyroid happy again with meds before that fatigue is going to go away. Do not become depressed as this is all fixable. Addison's requires you to take cortisol, I believe, and Hashi's requires thyroid hormone. Both are naturally occurring hormones in your body so it's not like you will be taking meds that are foreign to the way your body naturally works. You also need to stay very gluten free and your body will start to heal....which will benefit your thyroid and adrenal glands.

Barrett's is often a result of Celiac or one of the complications...acid reflux. If you stay gluten-free, I believe Barrett's can heal over time, like the other problems. This may take a year or more to happen so be very patient....easier said than done, I know. You may also be able to cut back on dosages for your meds for the other problems, once you heal and start absorbing better. That happened to me...I was able to cut my thyroid med almost in half....but it took 5 years for that to happen. I am also 51 years old...younger folks may have faster results.

Please read Dr. Peter Green's book: Celiac Disease: A Hidden Epidemic. It's full of useful info, especially for the problems you have, and will give you a lot of great info on how to manage this disease well. He also has a chapter on associated diseases, like the ones you have.

You will be OK...really, and you are not falling apart! It only seems that way! I was a 97 pound, frail, you could blow me over with a feather, Celiac

at diagnosis and have recovered very well. I have 4 autoimmune diseases, total, and they have gotten much better (except one of them!) with the gluten-free diet.

Just hang around and ask questions and we'll get you there. :D

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This is just my opinion, but with a little research you'd find there is a strong connection in the scientific literature for all of these disorders. Addison's is basically adrenal fatigue taken to the worst extreme and you will feel very, very fatigued with Addison's. Hypothyroidism can poop you out, (and depress you) too. There is no 'quick fix' so gear up for some hefty work on dietary issues to improve how you feel. I'm sure your doctors will prescribe lots of things but much improvement can be accomplished with a knife and fork.

Celiac's disorder could certainly be an underlying cause for the autoimmune issues, and correcting the diet to be strict gluten free (and I mean absolutely STRICT) will certainly help in every area of health but it takes time to see improvements and up to 2 years to heal the leaky gut. I myself am a 'silent celiac' so I don't show gut symptoms but several years before I found out about the Celiac's I experienced subclinical hypothyrodism and Chronic Fatigue Syndrome (low adrenal function) plus a bunch of other complicated health issues. Finding the Celiac's diagnosis was a big help in my feeling better.

In my opinion if your blood test showed Celiac's, then the normal biopsy could possibly mean that you don't have as much gut damage (yet) but the autoimmune disorders are indicators that your health is in serious jeopardy. Thus being strictly gluten-free would be a great first step. If you need a comfort cookie then choose a gluten-free cookie. If you need a comfort bread then find a gluten-free bread. Being gluten-free doesn't mean you can't eat comfort food. Personally, I find Betty Crocker's new gluten-free brownies (mix) to be a 'fallback' food, or a homemade black bean brownie :) Clean out your pantry, refrigerator, freezer, and spice shelf and get started on a healthier life!

Overcoming adrenal fatigue is a long haul. Addison's is a very difficult disorder, and can be life threatening so it's important to learn all about it. From personal experience (adrenal fatigue, thyroid issues and Celiac's) it takes about 2 years of real attention to diet to substantially improve Adrenal Fatigue, and that's not as far down the health scale as Addison's. (You may be one of the lucky one's helped by meds.) Thyroid medication was really helpful to me on a number of hypothyroid symptoms but also took a couple of months to find the optimal dosages of thyroid hormones. (I do best on Armour thyroid instead of the synthetic Synthroid). Knowing you have an adrenal problem as well as a thyroid problem is very important and useful finding!

Oh - on a side issue, I have found that in correcting vitamin deficiencies connected to the various disorders I have, I do best with either blended green smoothies and/or liquid vitamin supplements. All of those health problems I mentioned impaired my digestive system and I wasn't getting what I needed out of my food or from traditional supplements in tablet or capsule form. I found I felt noticeably better after a couple of weeks using a liquid multivitamin in addition to an improved diet.

Currently I'm following a 'Paleo' eating plan as I find it simpler (for me) to follow this type of meal plan than the traditional gluten-free/casein-free meal plans that use alternative grains and substitutions for dairy. 'Paleo' as a diet is grain-free and dairy free by definition, (though many Paleo people do use dairy). I don't eat dairy as I'm also casein intolerant. Fortunately, the levels of animal protein recommended in Paleo are very helpful in improving adrenal function and thyroid function so the 'Paleo diet' sort of fits all my personal health issues. (I couldn't improve my adrenal function as a vegan or vegetarian) Dr. Loren Cordain's revised edition of 'THE PALEO DIET' is out in paperback and it's a good read and there are lots of web sites devoted to Paleo style eating, recipes, etc. so even though it's not a 'Celiac' diet, it works for Celiac's becasue it's gluten-free.

So be hopeful! Lot's of us have been where you are now. Life does get better! You have more pieces to the puzzle! You do have options! Lots of books lots of web sites, lots of people who've been down the same road. Now - go out and find some gluten-free comfort foods for those bummed out moments, pour yourself some gluten-free Almond milk, and have a gluten-free brownie for me!

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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