Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac, Barretts Esophagus, Addisons, And Hashimotos Are They Related?
0

3 posts in this topic

I have recently been diagnosed with Barretts esophagus, Hashimotos, Addisons and Celiac disease. I am feeling beyond overwhelmed. I have always thought I was a healthy person :). My blood test for celiac was strong positive for Tissue transglutaminase and Deamidated glidian. My biopsy was normal. I am wondering if those other diseases could cause a positive blood test? I have been gluten free for a month and am still feeling really fatigued. I was just diagnosed yesterday for Addisons and Hashimotos so I haven't really had a chance to get meds yet for those. Are all of these things related??? I am so bummed out. I feel like my body is just falling apart. In my sorrow yesterday, I gave up and ate some bread and chocolate chip cookies. Now I am mad at myself. I guess I am still in denial!

0

Share this post


Link to post
Share on other sites


Ads by Google:

I have recently been diagnosed with Barretts esophagus, Hashimotos, Addisons and Celiac disease. I am feeling beyond overwhelmed. I have always thought I was a healthy person :). My blood test for celiac was strong positive for Tissue transglutaminase and Deamidated glidian. My biopsy was normal. I am wondering if those other diseases could cause a positive blood test? I have been gluten free for a month and am still feeling really fatigued. I was just diagnosed yesterday for Addisons and Hashimotos so I haven't really had a chance to get meds yet for those. Are all of these things related??? I am so bummed out. I feel like my body is just falling apart. In my sorrow yesterday, I gave up and ate some bread and chocolate chip cookies. Now I am mad at myself. I guess I am still in denial!

Don't beat yourself up....you are going through that tough time many here have lived through...myself included. I also have Hashi's and Celiac so know what you speak of with regards to the fatigue. Let's see if I can explain things well....Hashi's can raise tTg, however, all of these issues you have been diagnosed with can result from undiagnosed Celiac....they are associated with celiac disease. The fact that your biopsy came back normal means only that you may not have had time to develop full blown intestinal damage. You are showing antibodies to gluten in your blood but are lucky to not have gotten to the point where your small intestine has been trashed....that is good! If you had continued to be undiagnosed and eating gluten, things could have progressed far worse.

You are going to have to get your adrenals and thyroid happy again with meds before that fatigue is going to go away. Do not become depressed as this is all fixable. Addison's requires you to take cortisol, I believe, and Hashi's requires thyroid hormone. Both are naturally occurring hormones in your body so it's not like you will be taking meds that are foreign to the way your body naturally works. You also need to stay very gluten free and your body will start to heal....which will benefit your thyroid and adrenal glands.

Barrett's is often a result of Celiac or one of the complications...acid reflux. If you stay gluten-free, I believe Barrett's can heal over time, like the other problems. This may take a year or more to happen so be very patient....easier said than done, I know. You may also be able to cut back on dosages for your meds for the other problems, once you heal and start absorbing better. That happened to me...I was able to cut my thyroid med almost in half....but it took 5 years for that to happen. I am also 51 years old...younger folks may have faster results.

Please read Dr. Peter Green's book: Celiac Disease: A Hidden Epidemic. It's full of useful info, especially for the problems you have, and will give you a lot of great info on how to manage this disease well. He also has a chapter on associated diseases, like the ones you have.

You will be OK...really, and you are not falling apart! It only seems that way! I was a 97 pound, frail, you could blow me over with a feather, Celiac

at diagnosis and have recovered very well. I have 4 autoimmune diseases, total, and they have gotten much better (except one of them!) with the gluten-free diet.

Just hang around and ask questions and we'll get you there. :D

0

Share this post


Link to post
Share on other sites

This is just my opinion, but with a little research you'd find there is a strong connection in the scientific literature for all of these disorders. Addison's is basically adrenal fatigue taken to the worst extreme and you will feel very, very fatigued with Addison's. Hypothyroidism can poop you out, (and depress you) too. There is no 'quick fix' so gear up for some hefty work on dietary issues to improve how you feel. I'm sure your doctors will prescribe lots of things but much improvement can be accomplished with a knife and fork.

Celiac's disorder could certainly be an underlying cause for the autoimmune issues, and correcting the diet to be strict gluten free (and I mean absolutely STRICT) will certainly help in every area of health but it takes time to see improvements and up to 2 years to heal the leaky gut. I myself am a 'silent celiac' so I don't show gut symptoms but several years before I found out about the Celiac's I experienced subclinical hypothyrodism and Chronic Fatigue Syndrome (low adrenal function) plus a bunch of other complicated health issues. Finding the Celiac's diagnosis was a big help in my feeling better.

In my opinion if your blood test showed Celiac's, then the normal biopsy could possibly mean that you don't have as much gut damage (yet) but the autoimmune disorders are indicators that your health is in serious jeopardy. Thus being strictly gluten-free would be a great first step. If you need a comfort cookie then choose a gluten-free cookie. If you need a comfort bread then find a gluten-free bread. Being gluten-free doesn't mean you can't eat comfort food. Personally, I find Betty Crocker's new gluten-free brownies (mix) to be a 'fallback' food, or a homemade black bean brownie :) Clean out your pantry, refrigerator, freezer, and spice shelf and get started on a healthier life!

Overcoming adrenal fatigue is a long haul. Addison's is a very difficult disorder, and can be life threatening so it's important to learn all about it. From personal experience (adrenal fatigue, thyroid issues and Celiac's) it takes about 2 years of real attention to diet to substantially improve Adrenal Fatigue, and that's not as far down the health scale as Addison's. (You may be one of the lucky one's helped by meds.) Thyroid medication was really helpful to me on a number of hypothyroid symptoms but also took a couple of months to find the optimal dosages of thyroid hormones. (I do best on Armour thyroid instead of the synthetic Synthroid). Knowing you have an adrenal problem as well as a thyroid problem is very important and useful finding!

Oh - on a side issue, I have found that in correcting vitamin deficiencies connected to the various disorders I have, I do best with either blended green smoothies and/or liquid vitamin supplements. All of those health problems I mentioned impaired my digestive system and I wasn't getting what I needed out of my food or from traditional supplements in tablet or capsule form. I found I felt noticeably better after a couple of weeks using a liquid multivitamin in addition to an improved diet.

Currently I'm following a 'Paleo' eating plan as I find it simpler (for me) to follow this type of meal plan than the traditional gluten-free/casein-free meal plans that use alternative grains and substitutions for dairy. 'Paleo' as a diet is grain-free and dairy free by definition, (though many Paleo people do use dairy). I don't eat dairy as I'm also casein intolerant. Fortunately, the levels of animal protein recommended in Paleo are very helpful in improving adrenal function and thyroid function so the 'Paleo diet' sort of fits all my personal health issues. (I couldn't improve my adrenal function as a vegan or vegetarian) Dr. Loren Cordain's revised edition of 'THE PALEO DIET' is out in paperback and it's a good read and there are lots of web sites devoted to Paleo style eating, recipes, etc. so even though it's not a 'Celiac' diet, it works for Celiac's becasue it's gluten-free.

So be hopeful! Lot's of us have been where you are now. Life does get better! You have more pieces to the puzzle! You do have options! Lots of books lots of web sites, lots of people who've been down the same road. Now - go out and find some gluten-free comfort foods for those bummed out moments, pour yourself some gluten-free Almond milk, and have a gluten-free brownie for me!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,369
    • Total Posts
      917,525
  • Topics

  • Posts

    • Should I get tested for Celiac Disease?
      I wanted to come back and give an update. I decided to have my rash biopsied when I got home from vacation and the results thankfully came back positive for DH. What really prompted me to go ahead with that was how reliably the rash would worsen within mere hours of eating gluten. I figured it would be the easiest way for me to definitely know and since I could actually see the damage I was pretty confident by eating gluten until the appointment something would show up. Luckily my experiments of going multiple days here and there in the weeks prior to the test didn't effect the results. (Obviously that probably isn't recommended and I was taking a chance at inconclusive results by going ahead with it so I'm fortunate I got the positive results I expected.) The dermatologist wants me to see a GI doc but for now I'm holding off on doing that because of all the reasons I mentioned previously. It is my understanding that DH qualifies me for the tax write off for food and the small intestine biopsy would just be a technicality and see how much intestinal damage is present. I will follow up with my family doc soon to do blood work and check for any deficiencies. Since finding out I've done pretty well. I did discover gluten in my shampoo after wondering why my elbows had flared up when I hadn't eaten gluten that day. I had gluten unintentionally this weekend in some sushi and I'm recovering from that at the moment but it hasn't been too bad compared to how I've felt most days for the last year and a half while eating it. I did connect with a lady in my ED recovery group who has celiac and we have been talking about navigating gluten free in the context of recovery/remission from anorexia. I think part of me was scared I'd become afraid of food again but I think as long as my only rule is to replace gluten I will be fine.  Now my latest gluten discovery is in my home hair color. I was about to color my grays when I read the label and noticed one ingredient was wheat gluten. I guess I'll exchange that for something different. If I was getting it done at a salon I probably wouldn't worry because of the way they rinse it out with your head tipped back in the bowl but at home I think it's harder to keep the water from running into my mouth accidentally. If I hadn't had the shampoo incident I probably wouldn't be so cautious. I'm sure some people can relate to trying to get well and not wanting to make things worse again! I hope everyone here is doing well!
    • Can U A Bone Marrow Donor?
      Another reply to an old thread. We have a family friend whose son (aged 4) is struggling with leukemia. I went through the initial process (online screening question/answer form) of donating bone marrow, but was immediately rejected by the automatic screening due to my Celiac Disease. 
    • TRUSTING OTHERS about GLUTEN! how do you know if someone has used gluten free flour?
      It can be difficult to refuse food from others but, with time, you can learn to not let it bother you.  Yeah, easier said than done, I know.  But your sense of humor came through in places in your post so use that to make "empowered no BS responses"!  
    • What Are Your Brands & Flavors Of Gluten Free Ice Cream ?
      This is a common sense answer!  I used to eat Godiva years ago and was dismayed they had no interest in appealing to anyone with a food allergy/intolerance.  That's OK......Ghirardelli chocolates are very good about divulging what they do and most of their chocolates are gluten-free.  Again, you have to understand label reading and investigate further, if need be.  Turns out, I think their chocolates are just as good, if not better.
    • Children and Gluten Freedom
      How do you know when your child has gluten sensitivity, gluten intolerance, or celiac disease? If gluten issues run in your family and you know there is a predisposition to having problems with gluten in foods, then you may be alert to signs that it has been passed on to your child. View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,515
    • Most Online
      1,763

    Newest Member
    Dave G
    Joined