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Some Questions I Have?
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4 posts in this topic

I'm new here and looking for advice on whether or not my symptoms sound like Celiac or a gluten intolerance.

To start with I've had stomach issues my entire life. I've always had cramps, bloating, gas and gas cramps that were intermittent. I never went to the doctors to find the cause of it so I just lived with it. I've always had anxiety and would get terrible stomach aches when ever I was nervous. I've always been skinny and no matter how much I eat I've never been able to gain weight.

Starting in June things seemed to get worse. Five times since June I'll be eating and I'll have to run to the bathroom because I'll get cramps and diarrhea. The last time it happened I was eating Spaghetti. Since June I've had these symptoms which haven't gone away;

- Gas (almost every night, which doesn't always get released)

- Bloating (don't know if it's really considered bloating but gas just seems to move around in my stomach/intestines and doesn't get released)

- Gurgling Stomach/Intestines

- Pain on left side

- Ribbon stools (intermittent)

- Twitching on left side (ribbon stools follow when this happens)

- Diarrhea (intermittent)

- Hair Loss

- Weight Loss (I'm down from 135 lbs to about 118 lbs since June for no reason)

My doctor wanted to test me for Celiac but I told him I had done a gluten free diet for 2 months and it didn't help. At the time I was still eating gluten but wasn't aware of it (theres gluten in more things then I realized). I stopped eating gluten 2 days ago the gas hasn't been as bad. I have a doctors appointment on March 2 so I was wondering if I should ask to be tested? and if I do, will I still have to eat gluten until I'm tested?

One last question, if I get tested and my tests come back positive and I go on a gluten free diet, how long until the gas, gurgling, diarrhea and ribbon stools go away?

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I think you should get tested.I had many of the symptoms you have and was diagnosed Celiac.As far as the gas,bloating,and gurgling go I am six months gluten free it is better but not completely gone.Everyone heals at different rates I am still waiting.Follow your DR. advice and get tested.Good luck.

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If you want accurate testing, you'll need to continue eating gluten until you get the tests done.

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Thanks for the help, I'm definitely going to ask to be tested. So is hair loss, ribbon stools, occasional abdominal twitching and left sided abdominal pain associated with celiac? I was reading a few sites and didn't see those symptoms listed. The main symptoms listed weren't very helpful, they really only listed gas, bloating and diarrhea as common GI symptoms.

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    • Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you.  I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related.  I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more.  Best of luck! Matt
    • Your scalp sounds like seborrheic dermatitis. I have that and although its better after going gluten-free its very persistent. The dermatologist recommended Nizoral shampoo for it and it does help. I think dairy has a big part to play with skin problems, for me at least. 
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
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