Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Some Questions I Have?
0

4 posts in this topic

I'm new here and looking for advice on whether or not my symptoms sound like Celiac or a gluten intolerance.

To start with I've had stomach issues my entire life. I've always had cramps, bloating, gas and gas cramps that were intermittent. I never went to the doctors to find the cause of it so I just lived with it. I've always had anxiety and would get terrible stomach aches when ever I was nervous. I've always been skinny and no matter how much I eat I've never been able to gain weight.

Starting in June things seemed to get worse. Five times since June I'll be eating and I'll have to run to the bathroom because I'll get cramps and diarrhea. The last time it happened I was eating Spaghetti. Since June I've had these symptoms which haven't gone away;

- Gas (almost every night, which doesn't always get released)

- Bloating (don't know if it's really considered bloating but gas just seems to move around in my stomach/intestines and doesn't get released)

- Gurgling Stomach/Intestines

- Pain on left side

- Ribbon stools (intermittent)

- Twitching on left side (ribbon stools follow when this happens)

- Diarrhea (intermittent)

- Hair Loss

- Weight Loss (I'm down from 135 lbs to about 118 lbs since June for no reason)

My doctor wanted to test me for Celiac but I told him I had done a gluten free diet for 2 months and it didn't help. At the time I was still eating gluten but wasn't aware of it (theres gluten in more things then I realized). I stopped eating gluten 2 days ago the gas hasn't been as bad. I have a doctors appointment on March 2 so I was wondering if I should ask to be tested? and if I do, will I still have to eat gluten until I'm tested?

One last question, if I get tested and my tests come back positive and I go on a gluten free diet, how long until the gas, gurgling, diarrhea and ribbon stools go away?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I think you should get tested.I had many of the symptoms you have and was diagnosed Celiac.As far as the gas,bloating,and gurgling go I am six months gluten free it is better but not completely gone.Everyone heals at different rates I am still waiting.Follow your DR. advice and get tested.Good luck.

0

Share this post


Link to post
Share on other sites

If you want accurate testing, you'll need to continue eating gluten until you get the tests done.

0

Share this post


Link to post
Share on other sites

Thanks for the help, I'm definitely going to ask to be tested. So is hair loss, ribbon stools, occasional abdominal twitching and left sided abdominal pain associated with celiac? I was reading a few sites and didn't see those symptoms listed. The main symptoms listed weren't very helpful, they really only listed gas, bloating and diarrhea as common GI symptoms.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,636
    • Total Posts
      921,534
  • Topics

  • Posts

    • I have 2 insurance policies, one with my husband's company and one through mine. I also stretch out the more major work into the next year, so I can make the most use of my benefits. So, a dental implant for me takes about a year for me to complete.  I have the post put in at the end of one year and the tooth made about 6 months later. Honestly, the insurance company probably hates me because I max out my benefits every year. You do what ya gotta do!  I still have to pay for some of the work out of pocket but about 75% gets covered. If you pay cash for procedures then they usually charge a lower price. Haggle with the dentist over price. They like getting cash.
    • Did your doctor check for SIBO, H. pylori, ulcers, etc. when he was obtaining biopsies to check for celiac disease?  
    • Oh, and as I mentioned in my own post on pain, xanax. I swear. I tried it just to deal with the occasional panic I had at weird scary symptoms and clueless doctors. I am not a fan of long term use. But I recently found that .25 mg seems to aid with the neuropathic pain. It does not go away, but it helps. 
    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,639
    • Most Online
      3,093

    Newest Member
    NickyW_UK
    Joined