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4 replies to this topic

#1 Canuck86

 
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Posted 22 February 2011 - 02:44 PM

I have an appointment with my doctor on March 2 and I'm going to ask to be tested for Celiac, as he suggested this a few months ago. I know you have to be eating gluten to get proper results but I've been on a gluten free diet for the last 3 days. I'm wondering if I can continue to be gluten free until March 2? Will a week and a few days really make a difference when getting tested? Will the results still show up as positive?
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#2 Igg postive

 
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Posted 22 February 2011 - 07:00 PM

From all I have read you need to be on the gluten diet for the blood test and biospy. Three days should not hurt but I would tell your doctor that you where on the diet for three days. Make sure you get the full celiac blood panel. What kind of doctor are you seeing? GP, GI, Endo? I have read it really makes a difference to go to a doctor who specializes in Celiac. I had a good endo that suspected I might have Celiac.
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#3 Canuck86

 
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Posted 22 February 2011 - 08:04 PM

I'm seeing a GP, my family doctor. He referred me to a GI specialist but I don't know when that appointment will be yet, it's a long wait. So in the mean time I want to ask him about testing for celiac as he mentioned it to me a few months back. My appointment with my doctor isn't until March 2 so it will be longer then 3 days that I'll be on a gluten free diet when/if the test is done. So will a week of being gluten free make a difference?
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#4 Igg postive

 
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Posted 23 February 2011 - 03:23 PM

When my doctor called me about the results of the Celiac Panel he told me NOT to go on the Celiac diet until I had the biopsys. I would call your doctor and let him know that you have been on the Celiac diet and for how long.
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#5 ravenwoodglass

 
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Posted 23 February 2011 - 03:51 PM

I'm seeing a GP, my family doctor. He referred me to a GI specialist but I don't know when that appointment will be yet, it's a long wait. So in the mean time I want to ask him about testing for celiac as he mentioned it to me a few months back. My appointment with my doctor isn't until March 2 so it will be longer then 3 days that I'll be on a gluten free diet when/if the test is done. So will a week of being gluten free make a difference?


Go back on gluten today and stay on it until all your tests are done.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)




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