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Low Weight
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Hello all.

I am wondering if many have a problem gaining weight or have recently lost a lot of weight rapidly. I have had a hard time maintaining a proper weight level ever since being diagnosed with Celiac's in 2007. I am about 5'7" and weigh from 105-110lbs, never more. My Doctor said that this is very common in Celiac patients, but it is still very alarming to me. I have always been a string bean (as was my mother, grandmother, father), but recently have noticed people making remarks about my weight constantly and am starting to feel a bit uncomfortable with this. Can anyone give me some advice on how to enhance weight gain or should I just accept that this is how things are? Both would help.

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Hello all.

I am wondering if many have a problem gaining weight or have recently lost a lot of weight rapidly. I have had a hard time maintaining a proper weight level ever since being diagnosed with Celiac's in 2007. I am about 5'7" and weigh from 105-110lbs, never more. My Doctor said that this is very common in Celiac patients, but it is still very alarming to me. I have always been a string bean (as was my mother, grandmother, father), but recently have noticed people making remarks about my weight constantly and am starting to feel a bit uncomfortable with this. Can anyone give me some advice on how to enhance weight gain or should I just accept that this is how things are? Both would help.

I get this all the time; I'm 5'10 and 119 on a good day. I get the comments all the time.

I'm drinking protein drinks first thing in the morning...it seems to maintain the weight. I really have a hard time "putting weight on" because it seems like I'll feel better for 2 weeks, and then have some sort of relapse or something that has me eating very little or very bland foods, and I feel like I have to start over again. (I've only been at this since July '10)

the protein drinks I like the best are Orgain and I order them off amazon. they are gluten free and organic, and the chocolate is quite tasty. sometimes I'll have another around 3:00 just for the added calories.

I think I've just grown to accept that this is how I'm going to be...I don't see me packing on 20 pounds any time soon, it would just be impossible with the diet restrictions, but I feel like I'm eating healthy and starting to feel better, which is the important part. :)

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im sorry... you ladies are speaking a different language no?? ;)

i have never ever in my whole life had this problem. if it will help u at all: the more complex carbs i eat- the harder it is for me to lose weight.

good luck, i guess ;)

maybe you should get your fat percentage tested... women should be AT LEAST over 11% body fat... as long as you're above that and healthy- and have a normal cycle... then you might have to just learn to love your own individual weight.

but ya, sugar & carbs packs it on me.... white rice- you can add white rice to every meal really- like the Hawaiians do- that stuff will stick at least another 5lbs on u.. it should

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I get this all the time; I'm 5'10 and 119 on a good day. I get the comments all the time.

I'm drinking protein drinks first thing in the morning...it seems to maintain the weight. I really have a hard time "putting weight on" because it seems like I'll feel better for 2 weeks, and then have some sort of relapse or something that has me eating very little or very bland foods, and I feel like I have to start over again. (I've only been at this since July '10)

the protein drinks I like the best are Orgain and I order them off amazon. they are gluten free and organic, and the chocolate is quite tasty. sometimes I'll have another around 3:00 just for the added calories.

I think I've just grown to accept that this is how I'm going to be...I don't see me packing on 20 pounds any time soon, it would just be impossible with the diet restrictions, but I feel like I'm eating healthy and starting to feel better, which is the important part. :)

Thank you!

I will try Orgain. I know exactly what you are talking about with bland for weeks, seems to be a pattern. I also am being tested for a few heart and thyroid problems, which may be a reason for my poor weight gain.

Once again thank you.

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    • I just now saw the second reply and I see what you mean. Again, the issue is that I may have to go with the gluten until close to the end of the year.

      However, an idea did just come to mind, and that is, can my primary care doctor do such a test? I had normal blood work done, but they didn't really say anything about testing for celiacs. I can get an appointment with my primary care doctor much sooner than a GI.

      When I was talking to my PCP last, I asked her what I should expect as far as testing goes or what she may have been concerned about. Her reply was about a HIDA scan for the gallbladder but also any test needed in case of IBS or Celiacs. Just the way she threw that in there like an after thought and left me hanging kinda had me worried.
    • I am not a doctor that's for sure.  So, I can't even answer your questions.  If you know you have pre-diabetes, you probably are working with a doctor.  Can you email them and ask for a celiac blood panel?   You can work on the weight loss and diabetes -- that you can handle yourself now and take action.  I have diabetes and my glucose readings are fairly normal now without medication and I'm thin.  Being overweight does not cause diabetes.  It's either autoimmune (type 1) or you become insulin resistant (type 2).  You can cut out all sugar and  processed stuff ASAP to help take action and start walking 10,000 steps (helps with the insulin resistance).    But the prediabetes is not going to kill you in the next year.  Whatever's in your gut is more likely going to get you much sooner.  But heck, I'm not a doctor and I don't even know you!    
    • Hi Steph, Yes, celiac disease can cause a myriad of symptoms and damage to the body,  Have you completed all celiac disease testing?  Usually they do the blood antibodies test first and then do an endoscopy.   You shouldn't go gluten-free until all testing is completed. Gluten is in many processed foods.  But if you stick with whole foods it is not hard to avoid gluten.  Getting used to eating gluten-free may take some time, as we need to adjust our preferences in diet.  But there are many foods that are naturally gluten-free.  Gluten is the protein found in wheat, rye and barley.  Some celiac disease organizations recommend avoiding oats also for the first 18 months of the gluten-free diet. Celiac disease impairs the ability of the body to absorb nutrients (including vitamins).  That can make it hard for the body to maintain itself and heal/repair damage.  So celiac can easily impact any part of the body. Sardines, tuna, mackeral and salmon have good amounts of vitamin D in them.  There are supplements available also, but not all are good.  You can check them at the labdoor website.  Nature Made is a good one and not expensive.  Internal damage from celiac can cause liver issues.  Those will probably clear up after being on the gluten-free diet a while. Recovery from celiac can take  months, and can be a rocky road.  The more you stick with whole foods and avoid cross-contamination issues the sooner you will heal IMHO. You may find that dairy causes problems for your digestion at first.  But it make stop being a problem after you have healed up some. welcome to the forum!
    • Will this be dangerous considering how long I have to wait for any testing? I may not even get a blood test in November but here is hoping. I just worry having to wait so long will cause serious issues, not to mention delay of weight loss which I need for the pre-diabetes. Do ulcers have a chance to cause yellow stools though? I suppose a stool test will be needed for that for any signs of blood in stools but visually it does not seem so. The biggest issue is not knowing what else could be causing the yellow stools as this would not be a diabetic or ulcer thing. And without negative signs on the gallbladder or liver, it is narrowing down the list.

      At the very least this is making me assume I can wait on a final scan of gallbladder and attempt blood tests and endoscopy if they recommend it.
    • The first step is getting a celiac blood panel.   Any medical doctor can order one.  Live near Chicago?  They are do free screenings this month (check their website).  The cost is less than $400 for the complete panel.  If you get a positive on any one of them, then you should be referred to a GI for an endoscopy to obtain intestinal biopsies.   Here's more information from a reliable source and not just some lady on the internet: http://www.cureceliacdisease.org/screening/ Having had my gallbladder removed (probably ruined from undiagnosed celiac disease, but I don't know that for sure), I would recommend a HIDA scan.  I have no idea how expensive that one is.  It's a nuclear test that checks for functionality.  Basically, is your gallbladder squeezing bile into your small intestines when those fries or bacon come down the tube.  Mine happened to actually be rotting (infected).  ER suspected appendicitis, but it was a rotten gallbladder.  I never had any stones (that's what the CT or the ultrasound can find).  I am sorry that you are ill.  Keep eating gluten until all testing is complete.  This is important.  Go gluten free now?  Here's why you shouldn't..... http://theceliacmd.com/2013/04/six-reasons-to-test-for-celiac-disease-before-starting-a-gluten-free-diet/  
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