Posted 25 February 2011 - 01:21 PM
I had this issue at my daughters wedding not too long ago. While the person that catered the wedding said everything would be gluten free since I had a long drive the next day I wasn't sure I wanted to risk it. I ate before I went and made sure I had something in my room at the hotel and then ate mostly the fruit cup at the wedding. They were more than happy to refill it when I asked. One thing that will help out a lot is if you are traveling to the event get a room that has a kitchenette or at least a fridge and microwave. I brought my own toaster along, pnut butter, bread, fruit and Dinty Moore beef stew with a pot to heat it in. Don't worry about offending anyone if you don't eat the food that is served as chances are everyone will be so caught up in the days activities that no one will notice anyway.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)