Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Other Issues - Where To Start?
0

31 posts in this topic

For whatever it's worth, I react more violently to soy than gluten. You may want to try eliminating soy. It's tough because soy is in everything including cosmetics but it made a huge difference for me. Also have you eliminated all dairy or only lactose. It could be a casein problem. I got testing through enterolab.com and it helped with the guess work.

I did attempt to eliminate the soy, but wow yes it is in a lot of my vitamins. I have a pretty large stock pile of those that cost so much $$$. I did finally eliminate all dairy and my sinuses are so much clearer.

My doctor gave me the name of an allergist to visit and I'll be making the appt. this afternoon. Hoping to get some kind of answers. It's hard doing this on my own....it does feel like a guessing game. What kind of test does enterolab do? I know the allergy testing is not 100%. Just hoping for a guide and not too many surprises!

At least the stomach pain and belching are almost gone now. Unfortunately the bloating remains.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I did attempt to eliminate the soy, but wow yes it is in a lot of my vitamins. I have a pretty large stock pile of those that cost so much $$$. I did finally eliminate all dairy and my sinuses are so much clearer.

My doctor gave me the name of an allergist to visit and I'll be making the appt. this afternoon. Hoping to get some kind of answers. It's hard doing this on my own....it does feel like a guessing game. What kind of test does enterolab do? I know the allergy testing is not 100%. Just hoping for a guide and not too many surprises!

At least the stomach pain and belching are almost gone now. Unfortunately the bloating remains.

Glad to hear some of the symptoms are easing for you and good luck with the appointment.

Enterolab does testing for gluten, soy, casein, chicken egg and yeast as well as genetic testing. You can order the test yourself without a script and you pay for the tests directly and some insurances will reimburse for the testing. I found it very helpful but still feel like I have additional intolerances which I need to narrow down.

I hear you on soy in vitamins. I have thrown out a bunch myself as well as ALL lipsticks and lip balms. Freeda vitamins are all gluten, soy and casein free and pricing is reasonable.

0

Share this post


Link to post
Share on other sites

Glad to hear some of the symptoms are easing for you and good luck with the appointment.

Enterolab does testing for gluten, soy, casein, chicken egg and yeast as well as genetic testing. You can order the test yourself without a script and you pay for the tests directly and some insurances will reimburse for the testing. I found it very helpful but still feel like I have additional intolerances which I need to narrow down.

I hear you on soy in vitamins. I have thrown out a bunch myself as well as ALL lipsticks and lip balms. Freeda vitamins are all gluten, soy and casein free and pricing is reasonable.

Thank you irisheyes13. I never answered your question about casein...I did eliminate it totally. A couple days after I totally stopped eating it, my sinuses cleared up completely.

On a good note, had a 2 week check up with the gastro yesterday and my catscan showed NO diverticulitus - yay I'm cleared to eat nuts, seeds and popcorn again! Wooohooo!!!

0

Share this post


Link to post
Share on other sites

Good for you Joni! It's always fun to be able to add a variety back into our diet and more importantly that you no longer show signs of diverticulitis.

I am a big fan of Enterolab testing since I finally got some answers recently after YEARS of suffering with no answers from multiple GI physicians. None ever suggested going gluten free or anything free for that matter after my endoscopy came back negative; as a matter of fact they told me to feel free to eat all the gluten I wanted after I went gluten free for 1 month. I want to also mention that I am in no way affiliated with or have any vested interest in the lab. I named the lab testing in two posts and I have been flagged as a potential spammer but I am just enthusiastic about finally feeling better.

Let me know what you think about the lamb. I have never tried it as well. I remember my grandmother cooking leg of lamb when I was a kid and hated the smell but maybe it's time to give it a try.

0

Share this post


Link to post
Share on other sites

Yes, thank you -it is a relief. Let me tell you though...he wanted to do a colonoscopy, but was refusing to do an endoscope. I figured if I was going to get one test and prep for it, I might as well have both done. He said there was no need since I know I have celiac disease and am gluten free. Funny all my symptoms were on the left side just below the rib cage...sounds like endoscope territory to me. I'm not going back there again...2 local GI's down. One day I will find a good one...or at least one that will listen. My family doctor is pretty good about listening and testing me for the tests I really believe I should have. And I have a great Nurse Practitioner I see for vitamins and nutritional advice.

I'm glad you found Enterolab and their tests. Many people on this forum have used them when doctors refused to test them or they were seeking answers. I totally understand your enthusiasm about them. Finding answers and feeling better means so much!

How long have you been gluten free? How long did it take you to find out you needed to be gluten free?

0

Share this post


Link to post
Share on other sites




EnteroLab stool test for gluten, yeast, egg, dairy and soy. $99 per food. This test is the most reliable.

Then for the other foods, I suggest www.NowLEAP.com for $500. They will test over 250 foods. This test caught over 80% of my other sensitivities and their tips of starting a food diary and doing an elimination diet has helped me catch the remaining foods.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,503
  • Topics

  • Posts

    • I already did. Thats how i found the place. Its amazing to actually go to a restraunt again.
    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,417
    • Most Online
      1,763

    Newest Member
    Suzette Porter
    Joined