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      READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Over 50
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6 posts in this topic

I have been gluten-free for 7 months now and am still having days where I feel bloated and generally uncomfortable. I am very careful about what I eat but still need to boost my weight, b/c I don't eat dairy, I need to find nuts that are gluten-free and affordable as well as dried fruits that are affordable. I have looked on gluten-free mall and the nuts and fruits are in small packages and are EXPENSIVE as they are in the local healthfood stores here in my hometown, which is in Victoria, Vancouver Island, BC Canada. Does anyone know of a venue that sells nuts and dr/fruits in larger quantities at 'reasonable' prices? If I have to order from the states so-be-it, but 'twould be easier to order from Canada. Any info would be most helpful..Thankyou.

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Hello over50,

As I am sure you have noticed nothing in the gluten free world is inexpensive. I buy alot of my nuts, almonds, walnuts, pistachios at Aldi's which seems to have the best prices. Sorry but I am not familiar with what's available in Canada.:D

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NutsOnline.com

I LOVE them. It is a goldmine of great stuff.

Plus they have a selection of Certified Gluten Free flours and foods.

They also have candies, spices, dried fruits, and bulk prices.

I highly recommend them. :D

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If you're buying plain unseasoned, unroasted nuts you don't need to worry about gluten. I just buy plain nuts or seeds (packaged, never bulk) and have never had a problem. Some packages do warn about traces of wheat so I stay away from those ones. For dried fruit, sunmaid is okay - never had a problem. We're okay in Canada - dried fruit is mixed with oil to avoid sticking together. Be careful however in other countries as they may use flour (I've only ever seen this in warmer countries like Australia (presumably oil would go rancid). If you're near a Costco, they've got good prices for big packages of nuts and dried fruit.

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If you're buying plain unseasoned, unroasted nuts you don't need to worry about gluten.

My own experience wouldn't agree with that, I'm sorry to say. I have no allergies to nuts, but I've gotten glutened from unseasoned, unroasted nuts multiple times (lovely vertigo reaction - loads of fun). Haven't really found any nuts at the regular grocery store that haven't given me at least a small reaction. Unfortunately, quite a few nuts are processed in facilities with wheat, whether the label says so or not (it's not legally required to say 'also processed with wheat).

Transportation and growing practices may contaminate plain nuts, too, I understand, if one is sensitive enough. :-(

We've just started trying anuts.com for nuts and I believe rawfromthefarm.com also has dried fruits that should be gluten free. Depends on your level of sensitivity, though.

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I second the suggestion for Costco. I've had great luck with their large packages (Kirkland brand) of raw nuts and have never been glutened. I checked on-line and it appears there is one near you.

Good luck!

Michelle

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  • Forum Statistics

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    • Itchy skin
      Cool compresses may help a bit. Hot baths or showers used to really aggravate my itchy skin so go with warm or cool ones to see if it helps. Keep well hydrated both inside and out. Be sure to check and make sure any lotions you use are gluten free. Shea butter, olive or coconut oil may help. Since you say this is not DH, no blisters etc. I would not advise Dapsone. It is quite a toxic med but if you do talk to your doctor about it make sure that they do blood work before prescribing and frequently during the time you are on it.  Some celiacs have liver impact and Dapsone can be damaging to the liver. I also had both DH and the all over itchies. Being strictly gluten free and avoiding obvious sources of iodine like iodized salt or iodine in supplements will help you heal. I hope you get some relief soon.
    • Where do I start??
      I will be going for my endoscopy on Februry 19. The other day in reading about Celiacs, I read about the strange rashes often associated with celieacs and gluten intolerrance. About six months ago, a rash exactly as you describe showed up on the backs of my knees. The doctor didn't know what it was, hought maybe it was ringworm, and gave me some topical medicine, and the spots did go away with time. However, I've had the same type of spots show up in other places occassionally. I know for a fact they were not ringworm.
    • Advice on reintroducing dairy.
      I can!   Start with hard cheeses, then yogurt/butter, soft cheeses and finally milk/cream.  Start slowly and build.  Give yourself time to get your body to release the enzymes necessary to digest lactose.  Certified gluten-free enzymes for lactose can help the transition.  Lactose free milk and ice cream are helpful too.  Remember, that genetically some of us are predisposed to being lactose intolerant no matter what (e.g. aging, race).   I wish you success!      
    • Gluten free diet, positive celiac screen...what should I eat now?
      Here is a link that explains why you should get tested (completely) for celiac disease: https://celiac.org/celiac-disease/diagnosing-celiac-disease/diagnosis/ As far as the link to the functional doctor....why?  If you get a celiac diagnosis, chances are you will heal on a gluten free diet.  As you have probably seen on this forum, most of us encourage newly diagnosed members to eat a whole-foods, easy-to-digest (a.k.a "cooked to death")  gluten-free diet to speed healing.  Going Paleo might not be the best right now, if you have celiac disease.  Eating lots of nuts, raw fruits and veggies can be tough on a damaged gut.  You can try that diet later!   Everyone is different due to various degrees of damage, so some may have temporary intolerances  (e.g. lactose).  You just have to experiment.   Save your money and spend it on good wholesome food.  I heartily support getting away from the SAD (Standard American Diet).   Celiac disease is the one autoimmune disorder that is healed by avoiding a food -- gluten!  
    • Itchy skin
      I have DH and itchy skin is a symptom.     Your Dermatologist could write a script for Dapsone, provided you're not allergic to Sulphur.     Expect blood labs to go with using Dapsone.      You need to study everything that goes in your mouth for possible gluten content, including all meds.
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